Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Home testing help - new here!


DC98

Recommended Posts

DC98 Newbie

 

Hi,

I have had a range of stuff going on through my GP.

I was told I was mildly folic acid deficient. I spoke to my GP today and mentioned a few symptoms like being tired, loose stools for over a month, extreme flatulence etc. I also have a lovely rash under my nose which I was told was originally seborrhoeic dermatitis but the prescription hasn't calmed it too much.

My GP mentioned being tested for coeliac and has requested bloods and a faecal sample. I will do these - in the meantime I bought a home testing kit SELFCHECK. I know these aren't reliable, I work in a medical setting so know getting tested is the best course. It came back as positive - what is the accuracy of these? 
 

I used to eat a lot of porridge and weetabix and noticed these bloated me out and made me very gassy so stopped eating them. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

Not familiar with SELFCHECK but more so with home test kit products from Imaware which I believe are pretty reliable.

I just want to caution you that until all testing for celiac disease is complete you should continue to eat regular amounts of gluten. If you cut back too much beforehand you will invalidate the tests.

DC98 Newbie

Hi, 

 

thank you. Yes, I intend to keep eating as I am or you are right, testing through my doctor may not be correct. Thanks for your comment! 

knitty kitty Grand Master

Welcome to the forum, @DC98!

You may be deficient in all eight  B vitamins.  Celiac Disease damages the small intestine where most of the vitamins are absorbed.  

The rash under your nose is indicative of Riboflavin B2 deficiency.  I had this myself.  

Thiamine B1 in the form Benfotiamine will help you feel less fatigued and help with your digestive symptoms. 

Be sure to discuss with your doctor and nutritionist the benefits of supplementing while healing.  

Hope you feel better!  

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,011
    • Most Online (within 30 mins)
      7,748

    Ana li
    Newest Member
    Ana li
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • JoJo0611
    • Martha Mitchell
      Scott I also have different symptoms than most people. It affects me bad. Stomach ache, headache, nauseous, heart racing, whole body shaking, can't walk then my throat starts to close. It attacks my nervous system. The only thing that saves me is a 1/2 of Xanax...it calms down my nervous system 
    • Martha Mitchell
      Scott Adams. I was dealing with a DR that didn't care about me being celiac. I repeatedly told him that I was celiac and is everything gluten-free. He put an acrylic lens from j&j. I called the company to ask about gluten and was told yes that the acrylic they use has gluten....then they back tracked immediately and stopped talking to me. The Dr didn't care that I was having issues. It took me 6 months and a lot of sickness to get it removed.... which can only happen within 6 months. The Dr that took it out said that it was fused and that's why I lost vision. If they would have removed it right away everything would be fine. He put in a silicone one that was gluten-free and I've had no issues at all in the other eye. Do not do acrylic!
    • Scott Adams
      Welcome @Martha Mitchell, I too would like to know more about your prior lenses, and especially about the potential of gluten in lenses. In theory this should not harm most celiacs, as the autoimmune reaction normally begins in the gut, however, in those who are super sensitive or have dermatitis herpetiformis it may be a potential issue. 
    • Scott Adams
      It's most likely going to be a celiac disease diagnosis based on your blood test results, but wait for your doctor to give you a green light for going gluten-free, as they may want to do additional testing. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.