Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Yet More On Milk/etc


VydorScope

Recommended Posts

VydorScope Proficient

(orginal issue --> Open Original Shared Link

Okay well I was at the Kroger buying the lactose free milk to try and I was thristy, so I grabed a " Silk Alive Smoothie" And drank like a 13rd of it. tasted like flavored chalk... But I am gassy/etc just like I was the other day after drinking that milk+lactait pills+hersy's carmel syrup. :o

I tripple check the silk ingredinents.. nothing there supicius... unless SOY is my issue? I did not react to soy in the scratch tests. UGH why cant this be simple. :(


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I didn't react to soy in the scratch test, either. But I can not tolerate soy. Makes me bloat, and gives me terrible cramping, gas and D. I can do soy oil and lecithan in relatively small amounts. I believe that's because the proteins are not in the oil. It's not unusual for us to become sensitive to other things once we're gluten-free for a while. Or, the additional intolerance becomes more evident once the gluten is out.

Mango04 Enthusiast

:( bummer

I'm intolerant to dairy, gluten and soy. For the longest time I insisted on drinking the occasional soy latte, but finally had to accept the fact that I just cannot do it.

It is my understanding that casein and soy protein can both cause gluten-like reactions due to their similarities in structure to gluten. You might drive yourself crazy trying to find some sort of test that will give you the answers.

It can't hurt to eliminate all three for atleast a little while and see if it makes a difference. Then reintroduce soy and dairy, one at a time, and you'll probably have your answer.

(sorry I know it's a pain - literally)

Carriefaith Enthusiast

Sorry if you've mentioned this before, but how long have you been 100% gluten free? Maybe you just need more time to heal before you can tolerate certain foods. The enzymes that break down lactose, sucrose, and maltose and located in the villi and when the villi are damaged, lactose, sucrose, and maltose may not be broken down well if at all, causing problems. Silk would have a lot of sugar in it and obviously milk has lactose. Just something to consider.

VydorScope Proficient
Sorry if you've mentioned this before, but how long have you been 100% gluten free? Maybe you just need more time to heal before you can tolerate certain foods. The enzymes that break down lactose, sucrose, and maltose and located in the villi and when the villi are damaged, lactose, sucrose, and maltose may not be broken down well if at all, causing problems. Silk would have a lot of sugar in it and obviously milk has lactose. Just something to consider.

Carrie,

I thought about that, but a recent endoscopy could not find any damage at all. So that should mean most of my little vila are okay. Does not mean no damage, of course, but even my iron levels are working back up so some signifigant healing must have been done.

The other thing is the villa are in the instestine, the reactions were imediate, so the milk/etc was still in the stomache.

This reaction is ALOT less then the cup of milk. I mean other a little pain and gass Im fine. Its litterly the only thing besides water I have had in hours though so it has to be the silk.

As for avioding soy for a while.. I almost never have soy to start with. I just plain do not like the taste of it. I do not realy look hard for it so I am sure some gets by occasionaly. I only tried the soy drink as to not contimate the milk test I wanted to try. heh so much for that plan!

I just dont know any more. I do have Alomnd Mlik and Rice Milk to use in my cearel at least. Almond taste better then soy, but little to nutty for me, hopeully the rice be better....

Matilda Enthusiast

..

Carriefaith Enthusiast
Carrie,

I thought about that, but a recent endoscopy could not find any damage at all. So that should mean most of my little vila are okay. Does not mean no damage, of course, but even my iron levels are working back up so some signifigant healing must have been done.

The other thing is the villa are in the instestine, the reactions were imediate, so the milk/etc was still in the stomache.

This reaction is ALOT less then the cup of milk. I mean other a little pain and gass Im fine. Its litterly the only thing besides water I have had in hours though so it has to be the silk.

As for avioding soy for a while.. I almost never have soy to start with. I just plain do not like the taste of it. I do not realy look hard for it so I am sure some gets by occasionaly. I only tried the soy drink as to not contimate the milk test I wanted to try. heh so much for that plan!

I just dont know any more. I do have Alomnd Mlik and Rice Milk to use in my cearel at least. Almond taste better then soy, but little to nutty for me, hopeully the rice be better....

Since you did have an endoscopy and the villi appeared to be ok, I would guess that they are digesting lactose, sucrose, and maltose. You may have an intolerance or be allergic to soy. Have you considered getting an allergy blood test done? I had one allergy blood test about a month ago and it tested for about 30 different foods including soy, milk, wheat, eggs, nuts, ect.

I'm not sure if you can get these in the US, but they are soy, gluten, and dairy free.

Open Original Shared Link

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

You could make your own almond milk if you can tolerate nuts. There's a ton of recipes on the Internet just search for "nut milk recipe" and you should be able to find them. They're really easy to make too.

VydorScope Proficient
Since you did have an endoscopy and the villi appeared to be ok, I would guess that they are digesting lactose, sucrose, and maltose. You may have an intolerance or be allergic to soy. Have you considered getting an allergy blood test done? I had one allergy blood test about a month ago and it tested for about 30 different foods including soy, milk, wheat, eggs, nuts, ect.

I'm not sure if you can get these in the US, but they are soy, gluten, and dairy free.

I have, and my son meets with our alergy doc next firday, I plan to ask him. Only seen him once or twice, but seems like a nice knowledgable guy so far.

Carriefaith Enthusiast
I have, and my son meets with our alergy doc next firday, I plan to ask him. Only seen him once or twice, but seems like a nice knowledgable guy so far.
Keep us posted!
plantime Contributor

Scratch tests only tell part of the story. For reactions other than IgE, you need a blood test. What you are describing is indicative of an allergy, just not an anaphylactic one. Ask your doctor to do a blood test for allergies.

VydorScope Proficient

We are going cause I am hoping htat my son has out grown his egg allergy for Easter :D but that wont stop me from asking about a blood test and if they will do it I'll just schedual it. I guess thats the only way I will get any real answers.

VydorScope Proficient

ODD! I had TWO big mugs of hot cocoa today using real cocoa, raw sugar, and lactaid fat free milk...

I do not feel any worse then before drinking it....

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,099
    • Most Online (within 30 mins)
      7,748

    skinnedthin
    Newest Member
    skinnedthin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • rei.b
      So far 3 months in - worsening symptoms. I have had the worst constipation in my life and I am primarily eating naturally gluten-free foods like potatoes, eggs, salad with homemade dressing, corn tortillas, etc. I hate gluten-free bread and pasta so I don't eat it. Occasionally I eat gluten-free almond flour crackers. As stated in the post, I don't have any vitamin deficiency. I was already tested.
    • rei.b
      As I said, I do not have any vitamin deficiency. I was already tested.
    • Wheatwacked
      Talk to your  Talk to your provider about testing for vitamin and mineral deficiency.  celiac disease causes malabsorption and eventually malnutrition.  Especially vitamin D. Having the gallbladder removed seems to be a common step on the way to a Celiac Disease Diagnosis,  Gallbladder is a sympton of deficient Choline. Eggs and red meat are the primary source..Choline makes up a majority of the bile salts.  The bile gets thick, doesn't get enough into intestine to digest fats well.  Can eventually back up into gallbladder, cause gallstones.  Without bile, bowel movements can become hard. Try to avoid all processed foods while you are healing, The gluten-free foods are not fortified with vitamins and use various ingredients to mimic fat that bothers many Celiacs.  Choose vegatables with low omega 6.  Optimum omega 6 to omega 3 ratio is less than 3:1.  Wheat flour is 22:1.  Grass fed milk is 1:1.   Commercial Dairies milk is 5:1.  They feed wheat, rye and barley Gluten as part of the food mix.  
    • trents
      Your DGP-G is also high. The thing to do now would be to trial the gluten-free diet for a few months to see if there is improvement in symptoms.
    • trents
      Welcome to the forum, @Roses8721! How long were you off gluten before getting the celiac blood testing done? The testing is not valid after having been gluten free for a significant period of time. Many of your symptoms align with celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.