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Feels like I can’t eat anything


SargeMaximus

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SargeMaximus Collaborator
8 minutes ago, Wheatwacked said:

You'll have good days and bad days.  Some times it feels like one step forward and two back. Which vitamins are you taking now?

8 minutes ago, Wheatwacked said:

You'll have good days and bad days.  Some times it feels like one step forward and two back. Which vitamins are you taking now?

Really? Why is that? It makes no sense that improving your diet would hurt your body.

 

currently only take benfotiamine, vitamin D3, and Zinc (sometimes)


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Wheatwacked Veteran
1 hour ago, SargeMaximus said:

Why is that?

Don't know. You could add Nicotinic acid (B3), Pantothenic acid (b5) and increase your choline (the eggs and  meat are good but you may need more for healing. Increasing your potassium to 5 grams a day, from food only. 98% of K is in the cell, so you can slowly lose a lot before it ever shows in a blood test. Potassium supplements have been flagged by the FDA for causing small intestine leasions.  Potassium Deficiency – Is Gluten To Blame?

Are you getting enough iodine. Essential for muscle tone.

SargeMaximus Collaborator
17 hours ago, Wheatwacked said:

Don't know. You could add Nicotinic acid (B3), Pantothenic acid (b5) and increase your choline (the eggs and  meat are good but you may need more for healing. Increasing your potassium to 5 grams a day, from food only. 98% of K is in the cell, so you can slowly lose a lot before it ever shows in a blood test. Potassium supplements have been flagged by the FDA for causing small intestine leasions.  Potassium Deficiency – Is Gluten To Blame?

Are you getting enough iodine. Essential for muscle tone.

Everything I eat is potassium dense. Sweet potatoes, peanut butter, oatmeal, beans. It’s all potassium.

Edit: I added maca capsules today and maca has iodine supposedly

Beverage Proficient

If you have been eating gluten free oatmeal, try not eating it for awhile. I used to not be able to eat it at all when first diagnosed with celiacs, but now I can eat purity protocol oats.

SargeMaximus Collaborator
1 hour ago, Beverage said:

If you have been eating gluten free oatmeal, try not eating it for awhile. I used to not be able to eat it at all when first diagnosed with celiacs, but now I can eat purity protocol oats.

It’s not that simple. I work a physically demanding job. If I cut out oatmeal I will starve to death as there isn’t much I can eat as it is

Wheatwacked Veteran
On 2/19/2023 at 10:11 PM, SargeMaximus said:

Took an omega 3 pill and the swelling seems to be down.

Looks like a smoking gun to me. Optimum would be 1:1 ratio as is found in 100% grass fed milk.

Sweet potato per 100 grams omega 6 = 60 mg; omega 3 = 4 mg. That equals 60/4 = 15:1 ratio. 90 calories. Sugars = 6.5 grams

Russet potato per 100 grams omega 6 = 32 grams; omega 3 = 10. Equals 3.2:1 ratio. 97 calories. Sugars = 1.1 grams.

Beef, brisket per 100 grams omega 6 = 202 gm; omega 3 = 80 bm. Equals 2.5:1 ratio. 213 calories. zero sugar.

Cereals, oats, instant, fortified omega 6 = 409 mg; omega 3 = 13 mg. Equals 31.5:1. 68 calories. Sugars = 0.5 grams.

 

Potatoes, Russet, flesh and skin, baked

ravenwoodglass Mentor
6 hours ago, SargeMaximus said:

It’s not that simple. I work a physically demanding job. If I cut out oatmeal I will starve to death as there isn’t much I can eat as it is

Have you tried Cream of Buckwheat? It is gluten free and has a good amount of protein that is easily digested. I use Pocono brand. It is grown and packaged near me and by a company that only grows and packages it so no issues with CC from growing or processing. Also please drop the Cliff bars and go with a snack bar that doesn't contain oats. Simple Mills make one as do Lara Bars and others.


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SargeMaximus Collaborator
3 hours ago, Wheatwacked said:

Looks like a smoking gun to me. Optimum would be 1:1 ratio as is found in 100% grass fed milk.

Sweet potato per 100 grams omega 6 = 60 mg; omega 3 = 4 mg. That equals 60/4 = 15:1 ratio. 90 calories. Sugars = 6.5 grams

Russet potato per 100 grams omega 6 = 32 grams; omega 3 = 10. Equals 3.2:1 ratio. 97 calories. Sugars = 1.1 grams.

Beef, brisket per 100 grams omega 6 = 202 gm; omega 3 = 80 bm. Equals 2.5:1 ratio. 213 calories. zero sugar.

Cereals, oats, instant, fortified omega 6 = 409 mg; omega 3 = 13 mg. Equals 31.5:1. 68 calories. Sugars = 0.5 grams.

 

Potatoes, Russet, flesh and skin, baked

I don’t get it 

Wheatwacked Veteran
(edited)

Omega 6 causes inflammation. Omega 3 causes healing. Taking the omega 3 oil changes the ratio. Sweet potato is high in omega 6. meat and russet potato is low for the same calories. With sufficient B vitamins and Choline our bodies should switch easily between modes: fat, protein, carb for energy.

For what its worth a teaspoon of sugar (5 grams) is 19 calories with no omega 6. https://nutritiondata.self.com/facts/sweets/5606/2 For an instant energy burst, pure quick burning calorie intake, a teaspoon of sugar.  Compare to 5 grams of sweet potato at 4 grams per 5 gram serving. Way cheaper than a Clif Bar if energy is the goal. Bring a bottle of sugar water to work.  Don't be prey to the marketing.

Quote

 

Anthropological research suggests that our hunter-gatherer ancestors consumed omega-6 and omega-3 fats in a ratio of roughly 1:1. It also indicates that both ancient and modern hunter-gatherers were free of the modern inflammatory diseases, like heart disease, cancer, and diabetes, that are the primary causes of death and morbidity today.

At the onset of the industrial revolution (about 140 years ago), there was a marked shift in the ratio of n-6 to n-3 fatty acids in the diet. Consumption of n-6 fats increased at the expense of n-3 fats. This change was due to both the advent of the modern vegetable oil industry and the increased use of cereal grains as feed for domestic livestock (which in turn altered the fatty acid profile of meat that humans consumed).

    Between 1935 and 1939, the ratio of n-6 to n-3 fatty acids was reported to be 8.4:1. From 1935 to 1985, this ratio increased to 10.3:1 (a 23% increase). Other calculations put the ratio as high as 12.4:1 in 1985. Today, estimates of the ratio range from an average of 10:1 to 20:1, with a ratio as high as 25:1 in some individuals. 

  In plain english, what this means is that the more omega-3 fat you eat, the less omega-6 will be available to the tissues to produce inflammation. Omega-6 is pro-inflammatory, while omega-3 is neutral. A diet with a lot of omega-6 and not much omega-3 will increase inflammation. A diet of a lot of omega-3 and not much omega-6 will reduce inflammation.  How Too Much Omega-6 and Not Enough Omega-3 Is Making Us Sick

 

 

Edited by Wheatwacked
SargeMaximus Collaborator
1 hour ago, Wheatwacked said:

Omega 6 causes inflammation. Omega 3 causes healing. Taking the omega 3 oil changes the ratio. Sweet potato is high in omega 6. meat and russet potato is low for the same calories. With sufficient B vitamins and Choline our bodies should switch easily between modes: fat, protein, carb for energy.

For what its worth a teaspoon of sugar (5 grams) is 19 calories with no omega 6. https://nutritiondata.self.com/facts/sweets/5606/2 For an instant energy burst, pure quick burning calorie intake, a teaspoon of sugar.  Compare to 5 grams of sweet potato at 4 grams per 5 gram serving. Way cheaper than a Clif Bar if energy is the goal. Bring a bottle of sugar water to work.  Don't be prey to the marketing.

 

You must not have read my previous post where I mentioned the downsides of sugar and russet potatoes on my skin. I’m insulted

Wheatwacked Veteran
(edited)

So 10 pages, one mention of using a sugar substitute, one mention of sugar in candy bar causing face to flare and another mention that sugar causes swelling, subsquently resolved with omega 6. Omega 3 will only work on omega 6. Could the roscacia be cross contamination with walnuts and cashews on the assembly line?

No mention ever of a problem with potatoe except constipation and multiple mention of wanting to cook meat and potatos. Russet never mentioned at all. All of your patterns point to the rush when you eat gluten followed by the let down. Same rush alcoholics have on that first drink of the day. Why the anger when gluten free is mentioned. Bet you can't go a month.  As I remember you said you were fine until the new job made you eat bread and you want to gain weight. eating gluten now causes more problems. Thats a classic Celiac response. One action of the opiods is contipation. That's why it used to be a treatment for diahrea.

You are in classic denial. Get over it, already.

How about a stuffed baked potato wrapped in foil. Hand food. Healthy snack.

This is the second time you have insulted me for no good reason, which by the way is another indication of someone struggling with addiction. Keep working to raise your D as fast as you can and consider adding 5 mg a day of Lithium Picolate to help with the impatience and anger.

  1. Did you know that 1 cup of white potatoes has 305mg of potassium and only 166 calories? Making a ratio of 2.69  Posted December 23, 2022
  2. Second of all, go away until you can learn to reply without assuming you know everything about me. Posted December 24, 2022
  3. burgers (which have sugar in the mustard and ketchup, tomatoes in the ketchup, pickles, Soy lechtin in the Patties, processed cheese and white bread for the bun) affect me in a VERY positive way. Like, I feel invincible and get a lot of lasting energy for the whole day whenever I eat them. Posted December 27, 2022
  4. sweet potatoes but I always get that pain in my right upper abdomen afterwards. Posted January 2
  5. potatoes cause constipation Posted January 5
  6. I had a few protein bars today just randomly and I felt absolutely incredible! Any idea why? “Healthy food” doesn’t give me this feeling. Posted January 9
  7. I've had bad brain fog lately. I always seem to come back to bread because it's the only thing my body seems to respond to. Posted January 10
  8.  I want to be able to cook my meat ant potatoes Posted January 29
  9. issues that brought me here in the first place that were present without bread in my diet Posted February 4
  10. I’m thinking of making some potato wedges. My face flares up when I eat sugar as well Posted February 7
  11. Update: been off gluten since last week I believe. Had bowel issues today. also, my boss took us to Denny’s today I had SO much energy and just felt good in general.   Posted February 9
  12. cashews and walnuts give me rosacea. I’m having worse digestive issues than I ever had with gluten now that I’m gluten free Posted February 10
  13. Digestive issues started after I quit eating bread  Posted February 11
  14. I never had digestive issues. The digestive issues happened AFTER I went gluten free. I rationalized that I need carbs because I can’t put on weight. Keep in mind I was entirely gluten free for years before the last 2 Posted February 11
  15. today I had a&w but I had my burger wrapped in lettuce No digestive issues Posted February 13
  16. IBS is back today Posted February 15
  17. Like NOTHING helped all day till I had that cliff bar. Posted February 19
  18. My right hand and fingers have been slightly swollen for a few days. I think it’s the sugar. Took an omega 3 pill and the swelling seems to be down. Posted February 19
  19. Feeling irritated and brain fog last few days. Not eating any gluten except for whatever is in a clif bar (can’t be enough to matter, Posted February 22
Edited by Wheatwacked
patty-maguire Contributor

You're over thinking this and being rude to people who are taking their time to try to help you.

A healthy diet is not about measuring micrograms of this or that mineral, it's about eating food.  Unless you have labs that say you are deficient or over in a particular nutrient, just eat food.

If you think you have an intolerance, gluten or something else, try an elimination diet.  Take it out of your diet for a few weeks then add it back in.  If you have an intolerance you'll react.

All this worrying about details can be stressful which can cause rashes and digestive upset.

Look at your diet as a whole, not as a chemistry project.  Look into the Mediterranean diet, it's a good standard healthful approach to eating and can be done gluten free if necessary.

Try to be patient with yourself and others.  You'll be happier and so will those around you.

SargeMaximus Collaborator
2 hours ago, Wheatwacked said:

So 10 pages, one mention of using a sugar substitute, one mention of sugar in candy bar causing face to flare and another mention that sugar causes swelling, subsquently resolved with omega 6. Omega 3 will only work on omega 6. Could the roscacia be cross contamination with walnuts and cashews on the assembly line?

No mention ever of a problem with potatoe except constipation and multiple mention of wanting to cook meat and potatos. Russet never mentioned at all. All of your patterns point to the rush when you eat gluten followed by the let down. Same rush alcoholics have on that first drink of the day. Why the anger when gluten free is mentioned. Bet you can't go a month.  As I remember you said you were fine until the new job made you eat bread and you want to gain weight. eating gluten now causes more problems. Thats a classic Celiac response. One action of the opiods is contipation. That's why it used to be a treatment for diahrea.

You are in classic denial. Get over it, already.

How about a stuffed baked potato wrapped in foil. Hand food. Healthy snack.

This is the second time you have insulted me for no good reason, which by the way is another indication of someone struggling with addiction. Keep working to raise your D as fast as you can and consider adding 5 mg a day of Lithium Picolate to help with the impatience and anger.

  1. Did you know that 1 cup of white potatoes has 305mg of potassium and only 166 calories? Making a ratio of 2.69  Posted December 23, 2022
  2. Second of all, go away until you can learn to reply without assuming you know everything about me. Posted December 24, 2022
  3. burgers (which have sugar in the mustard and ketchup, tomatoes in the ketchup, pickles, Soy lechtin in the Patties, processed cheese and white bread for the bun) affect me in a VERY positive way. Like, I feel invincible and get a lot of lasting energy for the whole day whenever I eat them. Posted December 27, 2022
  4. sweet potatoes but I always get that pain in my right upper abdomen afterwards. Posted January 2
  5. potatoes cause constipation Posted January 5
  6. I had a few protein bars today just randomly and I felt absolutely incredible! Any idea why? “Healthy food” doesn’t give me this feeling. Posted January 9
  7. I've had bad brain fog lately. I always seem to come back to bread because it's the only thing my body seems to respond to. Posted January 10
  8.  I want to be able to cook my meat ant potatoes Posted January 29
  9. issues that brought me here in the first place that were present without bread in my diet Posted February 4
  10. I’m thinking of making some potato wedges. My face flares up when I eat sugar as well Posted February 7
  11. Update: been off gluten since last week I believe. Had bowel issues today. also, my boss took us to Denny’s today I had SO much energy and just felt good in general.   Posted February 9
  12. cashews and walnuts give me rosacea. I’m having worse digestive issues than I ever had with gluten now that I’m gluten free Posted February 10
  13. Digestive issues started after I quit eating bread  Posted February 11
  14. I never had digestive issues. The digestive issues happened AFTER I went gluten free. I rationalized that I need carbs because I can’t put on weight. Keep in mind I was entirely gluten free for years before the last 2 Posted February 11
  15. today I had a&w but I had my burger wrapped in lettuce No digestive issues Posted February 13
  16. IBS is back today Posted February 15
  17. Like NOTHING helped all day till I had that cliff bar. Posted February 19
  18. My right hand and fingers have been slightly swollen for a few days. I think it’s the sugar. Took an omega 3 pill and the swelling seems to be down. Posted February 19
  19. Feeling irritated and brain fog last few days. Not eating any gluten except for whatever is in a clif bar (can’t be enough to matter, Posted February 22

I’m more than a month gluten free at this point and I’ve done years before. Stop projecting. Sugar and white potatoes cause rosacea flare up and inflammation. End of

SargeMaximus Collaborator

update: Hard to concentrate and brain fog lately. No gluten for over a month. Today I ate:

sweet potatoes, oatmeal, ground beef, gluten free bread, coconut oil, whey protein, peanut butter, black beans, honey, and Oolong tea. That’s what I eat most days.

knitty kitty Grand Master

Hey, @SargeMaximus!  

Still struggling, I see. 

Does the whey protein cause you inflammation?  Dairy is very inflammatory for me.  It's not just lactose intolerance, it's a reaction to casein, the protein in dairy.  Whey is going to have some casein in it, too.

Are you taking magnesium?  Thiamine needs magnesium to function properly.  

Are you taking a B Complex?  All eight B vitamins work together, so a B Complex in addition to the Benfotiamine and magnesium might help. 

Tryptophan (a form of Niacin B 3) and Pyridoxine B6 are often low.   Tryptophan helps heal the intestines.  Pyridoxine B6 makes enzymes with Thiamine. 

Hope this helps!

SargeMaximus Collaborator
5 hours ago, knitty kitty said:

Hey, @SargeMaximus!  

Still struggling, I see. 

Does the whey protein cause you inflammation?  Dairy is very inflammatory for me.  It's not just lactose intolerance, it's a reaction to casein, the protein in dairy.  Whey is going to have some casein in it, too.

Are you taking magnesium?  Thiamine needs magnesium to function properly.  

Are you taking a B Complex?  All eight B vitamins work together, so a B Complex in addition to the Benfotiamine and magnesium might help. 

Tryptophan (a form of Niacin B 3) and Pyridoxine B6 are often low.   Tryptophan helps heal the intestines.  Pyridoxine B6 makes enzymes with Thiamine. 

Hope this helps!

Thanks for checking in. Yeah still having issues. I feel worse tbh. It’s almost like my body can’t use these non gluten carbs.

I’ve eaten whey for years and not had trouble. I removed honey from my protein sandwich (the one I put whey in) and felt a bit better today so maybe it was the honey idk. But overall just feel tired and drained like I can’t get any energy. 
 

I eat black beans which are high in magnesium.

I will take a B complex as I already have one but when I do I usually feel worse and my pee turns green so I assume that is an excess of the vitamins

SargeMaximus Collaborator

Update: feeling better today. Had a Mars bar yesterday. Maybe sugar in small doses is ok. Have also developed a craving for coffee lately. I used to be strictly a tea guy

SargeMaximus Collaborator

Update: after feeling like I was dying yesterday I decided to take a few vitamins this morning to see if that did anything (it honestly feels like going gluten free is similar to cutting off a limb to stop a paper cut from bleeding. Not worth it and very damaging) anyhow I took: 

D3, Benfotiamine, Zinc, B12

 

i feel much better but still not 100%. Haven’t had gluten in over 30 days. 

SargeMaximus Collaborator

Update: tried the same combo of vitamins yesterday and didn’t feel any better so I don’t know why I did the first time.

today my face is peeling hella badly. I’m thinking it’s the coffee (for some reason I’m craving it a lot recently). Still no gluten. I switched back to tea but if the face isn’t resolved the only new addition that remains are the daily vitamins 

shadycharacter Enthusiast
On 3/16/2023 at 5:44 PM, SargeMaximus said:

Update: after feeling like I was dying yesterday I decided to take a few vitamins this morning to see if that did anything (it honestly feels like going gluten free is similar to cutting off a limb to stop a paper cut from bleeding. Not worth it and very damaging) anyhow I took: 

D3, Benfotiamine, Zinc, B12

 

i feel much better but still not 100%. Haven’t had gluten in over 30 days. 

Just a thought, if flour is fortified with folate where you live, maybe that's why you crave wheat? 

shadycharacter Enthusiast
2 hours ago, SargeMaximus said:

Update: tried the same combo of vitamins yesterday and didn’t feel any better so I don’t know why I did the first time.

today my face is peeling hella badly. I’m thinking it’s the coffee (for some reason I’m craving it a lot recently). Still no gluten. I switched back to tea but if the face isn’t resolved the only new addition that remains are the daily vitamins 

If the peeling you're talking about is exfoliating dermatitis, then this could perpaps be of interest:

Nine patients with chronic exfoliative dermatitis were studied in order to delineate the problem of folate loss and absorption in this condition. Low serum folate activity was found in six patients. The folate content of exfoliated skin was compared with values obtained from normal skin, and a four- to six-fold increase was observed. At least 5μg to 20μg of folate activity were lost daily in the exfoliated skin from these patients. The gastrointestinal absorption of folic acid was normal in the three patients in which this was studied. It is shown that significantly large folate losses occur from skin sloughing in exfoliative dermatitis.

https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/575159

This has grown into a long thread by now, and I admit I haven't read up on everything that has been written. Perhaps you said you'd been to the doctor for tests and that everything was OK, I don't remember. Has anyone diagnosed the skin problem you mention? Anyway, I hope you find a solution.

SargeMaximus Collaborator
5 minutes ago, shadycharacter said:

If the peeling you're talking about is exfoliating dermatitis, then this could perpaps be of interest:

Nine patients with chronic exfoliative dermatitis were studied in order to delineate the problem of folate loss and absorption in this condition. Low serum folate activity was found in six patients. The folate content of exfoliated skin was compared with values obtained from normal skin, and a four- to six-fold increase was observed. At least 5μg to 20μg of folate activity were lost daily in the exfoliated skin from these patients. The gastrointestinal absorption of folic acid was normal in the three patients in which this was studied. It is shown that significantly large folate losses occur from skin sloughing in exfoliative dermatitis.

https://jamanetwork.com/journals/jamainternalmedicine/fullarticle/575159

This has grown into a long thread by now, and I admit I haven't read up on everything that has been written. Perhaps you said you'd been to the doctor for tests and that everything was OK, I don't remember. Has anyone diagnosed the skin problem you mention? Anyway, I hope you find a solution.

Thanks for stopping by. So I don’t normally peel. It’s exclusively because of things I eat and over the years I’ve learned what I can eat that doesn’t trigger it. Are you saying maybe I just need folate?

shadycharacter Enthusiast
2 minutes ago, SargeMaximus said:

Thanks for stopping by. So I don’t normally peel. It’s exclusively because of things I eat and over the years I’ve learned what I can eat that doesn’t trigger it. Are you saying maybe I just need folate?

I've no idea, really. Was just thinking that in some countries wheat flour is fortified with folate, so that without wheat you get less, unless you get the same amount from something else. 

 

SargeMaximus Collaborator
7 minutes ago, shadycharacter said:

I've no idea, really. Was just thinking that in some countries wheat flour is fortified with folate, so that without wheat you get less, unless you get the same amount from something else. 

 

I’m not actively taking folate. I didn’t even think it was a thing but this skin flare up seems to be onset with the coffee. So coffee, sugar, cream, could all be doing it. Or maybe the vitamins like I said. I remember taking a multivitamin once and I got really sick. Also, when I took B vitamins in the past I got mouth sores that my doctor told me were caused by a LACK of B vitamins! So very peculiar 

SargeMaximus Collaborator

Update: Felt amazing this morning and my skin was clearer. All I had eaten were some salted peanuts, Doritos, and coffee. I didn’t take any vitamins or supplements.

im currently testing to see if the vitamins are causing my skin issues so I will be eating everything I normally do minus the vitamins and supplements.

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    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
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