Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feels like I can’t eat anything


SargeMaximus

Recommended Posts

SargeMaximus Collaborator
53 minutes ago, Wheatwacked said:

Sorry about the delay on your posts. 

You might look at Dr Hyman's "Pegan Diet". It's a combo of Paleo and Vegan. He is head of the Cleveland Clinic Functional Medicine Department. A Celiac antibody screening might make sense if only to prove gluten is not an issue.

Me too, but I am 71, 6' 2". Maxed out at185 but that was all belly fat. I always felt 155 was my optimum. According to Dr Fuhrman when you are eating enough nutrition your body will gravitate to optimum. The problem with wheat is that the modern wheat, 80% of the market, that has replaced the wheat I grew up with, has added chromosomes to enhance unending growth, insect and disease resistance and fat storage.

"For a healthy adult, there’s no significant evidence that potassium from foods can cause hyperkalemia (16). For this reason, potassium from foods doesn’t have a tolerable upper intake level. This is the most a healthy adult can consume in a day without negative effects (6Trusted Source). Hyperkalemia generally affects people with poor kidney function or people who take medications that may affect kidney function."  https://www.healthline.com/nutrition/how-much-potassium-per-day#TOC_TITLE_HDR_8

Don't. You'll thank me later. 😀 Eat anything but.

 You could make a spreadsheet to track your intake. Here is an example of what I made for myself.  http://nutrientlog.doodlesnotes.net/. The National Nutrition Database is an excellant source of information. I used it real time to track my intakes. Increasing my iodine intake by eating Nori definitely helped my muscle tone.

First of all, don't assume I haven't tried Keto. I have. When I say I need carbs this is based on experience not assumption.

Second of all, go away until you can learn to reply without assuming you know everything about me. Because clearly you also don't know that I DO track all my food and calories meticulously.

Unbelievable. Where's the downvote button?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 347
  • Created
  • Last Reply

Top Posters In This Topic

  • SargeMaximus

    165

  • knitty kitty

    52

  • Wheatwacked

    41

  • trents

    40

Top Posters In This Topic

  • SargeMaximus

    SargeMaximus 165 posts

  • knitty kitty

    knitty kitty 52 posts

  • Wheatwacked

    Wheatwacked 41 posts

  • trents

    trents 40 posts

Posted Images

Wheatwacked Veteran

I am sorry. I don't know what you know. I wrote what I thought would be helpful to you because it had been to me. No intent to insult you.

SargeMaximus Collaborator
19 hours ago, Wheatwacked said:

I am sorry. I don't know what you know. I wrote what I thought would be helpful to you because it had been to me. No intent to insult you.

Ok, fair enough. I’m gonna look into getting “Teff”. Seems like my best shot from what I’ve researched at this point

SargeMaximus Collaborator

Did more research on this issue this weekend. Seems all the wheat substitutes aren’t good either. Millet negatively affects the thyroid, Teff has way too much copper and other minerals in it to eat in any meaningful quantities, lentils have a ton of potassium, buckwheat has 78% of your daily value of magnesium per 100 grams but only 92 calories for the same serving. 
 

it seems hopeless. I don’t know how you guys do it

trents Grand Master

Sarge, you worry about many things. If you use several of those alternative grains in rotation I am reasonably certain you won't get an overload of any minerals. Don't make trouble where there is none.

cristiana Veteran

I'm a worrier, Sarge but I think trents is right though - try the rotation approach.   

SargeMaximus Collaborator
7 hours ago, trents said:

Sarge, you worry about many things. If you use several of those alternative grains in rotation I am reasonably certain you won't get an overload of any minerals. Don't make trouble where there is none.

What do you eat?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



knitty kitty Grand Master

@SargeMaximus,

I eat Autoimmune Protocol Diet, shown scientifically to help heal the gastrointestinal tract.

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

Because the AIP diet can be deficient in certain micronutrients (as any gluten free diet can be), I take B vitamins, other vitamins and minerals.

I take high dose Thiamine as Dr. Lonsdale recommends.

https://www.hormonesmatter.com/thiamine-deficiency-causes-problems/

More on Thiamine...

https://www.healthline.com/nutrition/thiamine-deficiency-symptoms#basics

One of the subtle early symptoms of Thiamine insufficiency is irritability.  I know when i was deficient in Thiamine, the smallest things would set me off.  Thiamine helps our brains function.  Our brains just thinking can use as much Thiamine as the muscles of a marathon runner.  

Eating a diet high in carbohydrates requires more Thiamine to process it into energy.  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

Hope this helps!

SargeMaximus Collaborator
16 minutes ago, knitty kitty said:

@SargeMaximus,

I eat Autoimmune Protocol Diet, shown scientifically to help heal the gastrointestinal tract.

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

Because the AIP diet can be deficient in certain micronutrients (as any gluten free diet can be), I take B vitamins, other vitamins and minerals.

I take high dose Thiamine as Dr. Lonsdale recommends.

https://www.hormonesmatter.com/thiamine-deficiency-causes-problems/

More on Thiamine...

https://www.healthline.com/nutrition/thiamine-deficiency-symptoms#basics

One of the subtle early symptoms of Thiamine insufficiency is irritability.  I know when i was deficient in Thiamine, the smallest things would set me off.  Thiamine helps our brains function.  Our brains just thinking can use as much Thiamine as the muscles of a marathon runner.  

Eating a diet high in carbohydrates requires more Thiamine to process it into energy.  

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

Hope this helps!

Very helpful, thank you. I have been awfully irritated lately. I’ll look into this. Cheers

trents Grand Master
(edited)
1 hour ago, SargeMaximus said:

What do you eat?

For breakfast, I rotate between gluten-free oatmeal, buckwheat, and Might Tasty Hot Cereal (all of these are Bob's Red Mill products). I put a scoop of Bob's gluten-free flax seed meal in for fiber. I add to that a poached egg,  a strip of gluten-free turkey bacon (from Costco), V8 and a glass of either soy milk or skim milk (alternate mornings) with half a scoop of whey protein. I use erythritol as the sweetner. Cofee or tea. I have a sensitivity to eggs so I poach them. The steaming in the poaching process creates a hydrolysis effect that alters the protein.

For lunch, I usually eat a sandwich with gluten-free turkey or ham and a slice of American cheese and a piece of fresh fruit. I use Franz bakery's gluten-free sandwich bread.

The evening meal is a lot of different things with a meat (chicken, pork, beef or fish), a starch (rice, potato, or gluten-free chick pea noodles) and a fruit. My wife makes me gluten-free snacks such as brownies or cupcakes but I also snack on various things like pork rinds and potato chips. I'm not a big confection person but do eat deserts in moderation. I suffer from migraines so there are a number of things I try not to eat much of, particularly things high in tyramine such as pickled and aged things, peanuts and tree nuts. I also limit nightshades.

There are a lot of things that trigger migraines for me but I can eat many of them in smaller amounts and occasionally and I'm okay. It's the gut/brain axis thing at work.

I'm not a particularly sensitive celiac so I will allow myself to eat things sometimes that are not labeled gluten-free but could only contain trace amounts of gluten from handling and processing.

Edited by trents
SargeMaximus Collaborator
56 minutes ago, trents said:

For breakfast, I rotate between gluten-free oatmeal, buckwheat, and Might Tasty Hot Cereal (all of these are Bob's Red Mill products). I put a scoop of Bob's gluten-free flax seed meal in for fiber. I add to that a poached egg,  a strip of gluten-free turkey bacon (from Costco), V8 and a glass of either soy milk or skim milk (alternate mornings) with half a scoop of whey protein. I use erythritol as the sweetner. Cofee or tea. I have a sensitivity to eggs so I poach them. The steaming in the poaching process creates a hydrolysis effect that alters the protein.

For lunch, I usually eat a sandwich with gluten-free turkey or ham and a slice of American cheese and a piece of fresh fruit. I use Franz bakery's gluten-free sandwich bread.

The evening meal is a lot of different things with a meat (chicken, pork, beef or fish), a starch (rice, potato, or gluten-free chick pea noodles) and a fruit. My wife makes me gluten-free snacks such as brownies or cupcakes but I also snack on various things like pork rinds and potato chips. I'm not a big confection person but do eat deserts in moderation. I suffer from migraines so there are a number of things I try not to eat much of, particularly things high in tyramine such as pickled and aged things, peanuts and tree nuts. I also limit nightshades.

There are a lot of things that trigger migraines for me but I can eat many of them in smaller amounts and occasionally and I'm okay. It's the gut/brain axis thing at work.

I'm not a particularly sensitive celiac so I will allow myself to eat things sometimes that are not labeled gluten-free but could only contain trace amounts of gluten from handling and processing.

Fantastic I will try these. Thank you so much 🙏 

Oh and I don’t have a poacher for my eggs, is there another way to poach them? Thanks

trents Grand Master
SargeMaximus Collaborator
trents Grand Master

Poaching helps some people who have sensitivity to egg protein. No guarantees that it will work for you but it's worth a try. Please note that I am not saying this will enable you to eat all the eggs you want. It may help but you still might have to limit the quantity of eggs you would like to consume. This has been my experience. But eggs are such a powerful source of nutrition that I don't want to entirely eliminate them if I can help it. And as I mentioned earlier, my experience with many or most food sensitivities (excluding gluten and a few others) is that I can eat these things as long as I don't eat too much of them and/or too often. There is a threshold.

SargeMaximus Collaborator
26 minutes ago, trents said:

Poaching helps some people who have sensitivity to egg protein. No guarantees that it will work for you but it's worth a try. Please note that I am not saying this will enable you to eat all the eggs you want. It may help but you still might have to limit the quantity of eggs you would like to consume. This has been my experience. But eggs are such a powerful source of nutrition that I don't want to entirely eliminate them if I can help it. And as I mentioned earlier, my experience with many or most food sensitivities (excluding gluten and a few others) is that I can eat these things as long as I don't eat too much of them and/or too often. There is a threshold.

Yea I’m noticing that as well. For example, burgers (which have sugar in the mustard and ketchup, tomatoes in the ketchup, pickles, Soy lechtin in the Patties, processed cheese and white bread for the bun) affect me in a VERY positive way. Like, I feel invincible and get a lot of lasting energy for the whole day whenever I eat them.

 

meanwhile eating a so called healthy diet I feel like I’m dying and lethargic 

Grammy9 Rookie

Another reason for not being able to gain weight or keep your weight is high blood sugar. Often overlooked. People always associate diabetics with overweight. I am celiac. Diagnosed at 73 years young. I am not diabetic but many in my family are and they are all bean poles. Get checked. 

Wheatwacked Veteran
On 12/27/2022 at 11:16 AM, SargeMaximus said:

I don’t have a poacher for my eggs

Boil a pot of water a few inches deep with a teaspoon of vinegar (or not). Break the eggs one at a time into a large spoon and settle into the water. Scoop out when cooked and cool in a pot of ice water.

Wheatwacked Veteran
On 12/27/2022 at 1:03 AM, SargeMaximus said:

buckwheat has 78% of your daily value of magnesium per 100 grams but only 92 calories

I did not know that. I may try it.  I am often on the wrong side of that 50%. There is no upper limit on magnesium in food. It's the supplements that need to be watched. Notice the UL is less than the EAR for males over 30.  Here is a chart that may be helpful.  Happy Holidays.

Quote

 

NIH Magnesium Fact Sheet for Health Professionals   Magnesium is a cofactor in more than 300 enzyme systems that regulate diverse biochemical reactions in the body, including protein synthesis, muscle and nerve function

Estimated Average Requirement (EAR): Average daily level of intake estimated to meet the requirements of 50% of healthy individuals

...Dietary surveys of people in the United States consistently show that many people consume less than recommended amounts of magnesium....The chronic diarrhea and fat malabsorption resulting from Crohn’s disease, gluten-sensitive enteropathy (celiac disease), and regional enteritis can lead to magnesium depletion over time.

 

image.png.9ce99d2ff95eb64b33ce3ba229c6b897.pngVitaminRDA Upper

SargeMaximus Collaborator
18 minutes ago, Wheatwacked said:

I did not know that. I may try it.  I am often on the wrong side of that 50%. There is no upper limit on magnesium in food. It's the supplements that need to be watched. Notice the UL is less than the EAR for males over 30.  Here is a chart that may be helpful.  Happy Holidays.

image.png.9ce99d2ff95eb64b33ce3ba229c6b897.pngVitaminRDA Upper

Magnesium can definitely be overdosed if you’re not careful

trents Grand Master

Magnesium overdose is quite rare and is unlikely to happen in the absence of some underlying health issues: https://www.healthline.com/health/food-nutrition/magnesium-overdose-whats-the-likelihood#symptoms-of-overdose

Practically speaking, the only significant concern with magnesium overdose is the laxative effect. More than likely, that would tell you if you are overdosing and even then, you probably aren't harming yourself in other ways. Actually, magnesium deficiency is more likely when not supplementing than overdosing is from supplementing.

SargeMaximus Collaborator

Ok so I been trying buckwheat and sweet potatoes but I always get that pain in my right upper abdomen afterwards. I think it’s just too much fibre. Also, there’s barely any calories. I honestly don’t know how you guys do it

SargeMaximus Collaborator

Celiac.com sent me an email asking if my question has been answered. It hasn’t. So far I’ve tested most of the suggestions here and only discovered further complications. Buckwheat doesn’t appear to agree with me, potatoes cause constipation, I’m currently trying lentils and beans but there aren’t enough calories. According to my food app, 1 cup of lentils is only 230 calories! And I need to eat at least 3000 calories a day! That’s a lot of lentils w t f

knitty kitty Grand Master

@SargeMaximus,

Have you tried adding Thiamine (thiamine hydrochloride, benfotiamine, Allithiamine) to your diet? 

Constipation is an early symptom of Thiamine insufficiency.  

Thiamine is needed to turn carbohydrates into energy.  

The more carbohydrates you include in your diet, the more Thiamine is needed. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

"The early symptoms of TD are non-specific and may be easily attributed to any number of disease processes. Unrelenting or uncharacteristic fatigue, changes in mood with a tendency towards hyper-irritability and mood lability are common [4]. A sense of mental fuzziness and subtle decrements in memory are often reported, along with loss of appetite, sleep disturbances and/or gastrointestinal (GI) discomfort and dysmotility. Food intolerances and vomiting may develop as the deficiency progresses. Experimental [5] and case literature [6] suggest GI discomfort and dysmotility may be more prevalent early indications of TD than currently appreciated. A form of GI beriberi has been identified but is under-recognized [7]."

SargeMaximus Collaborator
1 hour ago, knitty kitty said:

@SargeMaximus,

Have you tried adding Thiamine (thiamine hydrochloride, benfotiamine, Allithiamine) to your diet? 

Constipation is an early symptom of Thiamine insufficiency.  

Thiamine is needed to turn carbohydrates into energy.  

The more carbohydrates you include in your diet, the more Thiamine is needed. 

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

"The early symptoms of TD are non-specific and may be easily attributed to any number of disease processes. Unrelenting or uncharacteristic fatigue, changes in mood with a tendency towards hyper-irritability and mood lability are common [4]. A sense of mental fuzziness and subtle decrements in memory are often reported, along with loss of appetite, sleep disturbances and/or gastrointestinal (GI) discomfort and dysmotility. Food intolerances and vomiting may develop as the deficiency progresses. Experimental [5] and case literature [6] suggest GI discomfort and dysmotility may be more prevalent early indications of TD than currently appreciated. A form of GI beriberi has been identified but is under-recognized [7]."

This sounds very much like me. I did a quick search on google and it says good sources of thiamin are Pork (which I eat in every meal Most days) and lentils (Which I just added to my diet).

Any other ways to get it? And why would I be defficient if I eat pork regulrly? Thanks

knitty kitty Grand Master
(edited)

@SargeMaximus,

Salting, smoking or curing can inactivate thiamine.  So if you're eating sausages, bacon and hams, you're not getting enough thiamine.  

Caffeine in soda pop, coffee and black tea will also inactivate thiamine.  

Sweet potatoes contain thiaminase, an enzyme that breaks thiamine down so it doesn't work. 

If you've got Small Intestinal Bacterial Overgrowth (SIBO), your gut bacteria can absorb it before you do.  

Certain medications can prevent thiamine from being absorbed.  Other medications block thiamine transporters that allow thiamine into the cells.  This causes a functional thiamine deficiency...you might have "normal" blood levels, but still have this functional deficiency because the thiamine is not able to get inside the cells.  

Thiamine Transporters turn off when there's not enough thiamine.  In order to turn the transporters back on, the system must be flooded with Thiamine so there's a gradient (moving from areas of high concentration to low concentration).  

High doses of thiamine are needed to flood the system, more than you can eat realistically.  

The World Health Organization states that a diagnosis of thiamine deficiency can be made if improvement is seen after a patient has been given 500 - 2000 mg thiamine hydrochloride for a week.  

I started with Thiamine Hydrochloride in 100 mg tablets for five bucks.  I took 300 mg every three hours, increasing to six times a day.  I took magnesium glycinate at night because magnesium is needed to work with thiamine.  

I had improvement as soon as I took my first dose.  It really made a dramatic difference.  I learned about the fat soluble forms, Allithiamine and Benfotiamine and Thiamax (which contains magnesium).  Benfotiamine has been scientifically shown to promote healing in the gastrointestinal tract.  Allithiamine and Thiamax help with brain function.  

     Thiamine is safe and nontoxic.  Any excess not absorbed is easily excreted in urine.  There's no upper limit because it is nontoxic.  

Thiamine with Vitamin C and hydrocortisone has been used to help people with Covid survive.

Hydrocortisone, Ascorbic Acid and Thiamine (HAT Therapy) for the Treatment of Sepsis

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6265973/

I hope you will try it.  Such a cheap easily available test.  Give it a week.  

Edited by knitty kitty
Typo correction

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,294
    • Most Online (within 30 mins)
      7,748

    Dianr
    Newest Member
    Dianr
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • max it
    • cristiana
      My chest pain has been caused by costochondritis, as well as times when iron supplements has given me such bad bloating it has put pressure on my back and chest, and reflux can do the same. Also, along the lines of Wheatwacked's suggestion above, is it possible you had an injury to your chest/ribs way back that is being set off by either some sort of gastrointestinal bloating/discomfort? I distinctly remember really hurting a rib over forty years ago when I misjudged a wall and thought it was just behind me but in fact it wasn't.  I fell badly against the wall and I think I cracked a rib then.  For some strange reason I didn't tell anyone but I think had I gone to hospital an X-ray would have revealed a fracture. I think that rib has not been right since and I am sure that bloating makes it worse, as well as heavy lifting.
    • Dora77
      Sorry for the long post. I’m 18, and I was diagnosed with celiac disease and type 1 diabetes (T1D). My transglutaminase IgA was >128 U/mL, EMA IgA positive twice, and I’m HLA-DQ2 and DQ8 positive. I’ve been completely asymptomatic since diagnosis, even when I cheated with gluten sometimes in the past and used to eat out(2-5 years ago) I don’t get the typical celiac reactions, which makes it really hard to know when (or if) I’ve been glutened. But for the past year, I’ve been the most strict with my diet, and that’s also when a bunch of new issues started. I eat completely glutenfree, never eat out, dont eat food that says „may contain gluten“.   Current Health Problems • Floating, undigested stools for over a year now. Dont think its related to celiac as it was like this since im 17 and not 13-16( i got diagnosed at 13). • Chronic back pain started gradually, worsens with movement, lots of cracking/popping sounds. Been ongoing for a year now. First noticed in the gym. • Abdominal bulge on the right side, not painful but seems to be getting slightly bigger. Doctor didn’t find a hernia on ultrasound, but it was done lying down (I’ve read those can miss hernias). Noticed it like 6 months ago, couldve been there longer. • extremely dry and mildly swollen hands (this started before I started excessive hand-washing), and bloated face. • Signs of inattentive ADHD (noticed over the past 3 years), now combined with severe OCD focused on contamination and cross-contact. • Growth/puberty seemed to started after going gluten-free. Before that I was not developing. Dont know if any of these are because of celiac as my dad doesnt have those and he is a lot less strict gluten-free then me. I also had pancreatic elastase tested four times: values were 46 (very low), 236, 158, and 306 (normal). Gastroenterologist said one normal value is enough and I don’t have EPI. Family doctor prescribed Kreon anyway (after I pushed for it), and I just started taking 1 capsule (10,000 units) with meals 2 days ago, but couldn‘t see effects yet because I’ve been constipated the last few days. Maybe because of thyroid. I don’t have Hashimoto’s. No thyroid antibodies. But I took levothyroxine for slightly low FT4 levels. My thyroid levels fluctuated between borderline low and low-normal. And recently lowered my dose so that may have caused the constipating. I probably didn’t need it in the first place, and am thinking about stopping it soon.   Current Diet Right now, I only eat a very limited set of “safe” foods I prepare myself: • Gluten-free bread with tuna or cheese • Milk and cornflakes • gluten-free cookies/snacks • Bananas (the only fruit I trust right now) I rarely eat other fruits or vegetables, because I’m scared of contamination. My dad, who also has celiac but doesn’t care about CC, buys fruits, and he might’ve picked them up right after handling gluten bread. That makes me feel unsafe eating them. Even fruit at stores or markets feels risky because so many people with gluten on their hands touch them.   My Home Situation (Shared Kitchen) We’re a family of 5. Only my dad and I have celiac. He eats glutenfree but doesn’t care about CC and sometimes (but rarely) cheats. My mom and siblings eat gluten bread at every meal. My mom is honest (so if i ask her to be cautious, she most likely would try to), but doesn’t seem to understand how serious celiac is. She: • Stopped using gluten flour • only cooks gluten-free meals (but they still heat up gluten bread and also cook gluten noodles) • Keeps separate butter/jam/jars for me • Bought me a stainless steel pan Bu we didn’t replace old wooden utensils, cutting boards, or other pans. The new they bought me pan was even carried home in a shopping bag with gluten bread in it, which triggered my OCD. It also has a rubber handle and I’m scared it might still hold onto gluten. Even if it’s washed well, it’s stored next to other pans that were used for gluten food/bread. Our kitchen table is used for eating gluten bread daily. My mom wipes it but not with soap. I’m scared tiny particles remain. If she made gluten-free bread dough on a board at the table, I’d still worry about cross contmaination contamination even with something under the dough and on the table as at one point the dough would probably touch the table. So I stopped eating anything she makes.   I know OCD is making it worse, but I can’t tell how much of my fear is real and how much is anxiety. Examples: • I wash my hands 20–30 times a day — before eating, after touching anything at home or outside, after using my phone/laptop. • I don’t let others touch my phone, and I’m scared to use my laptop because friends at school or my brother (who eat gluten) have touched it. And it annoys me a lot when others touch my stuff and feels like it got contaminated and is unsafe instantly. • I stopped eating while using my phone or laptop, afraid of invisible gluten being on them. • I wash my hands after opening food packaging (since it was on store cashier belts where gluten food is placed). • I avoid sitting anywhere except my bed or one clean chair. • I won’t shake hands with anyone or walk past people eating gluten. • At school, when switching classes, I wash my hands before getting out my laptop, again before opening it, etc. • I open door knobs with my elbows instead my hands   Job Concerns (Powder Coating, Sandblasting, Etc.) I’m working a temporary job right now that involves: • Powder coating • Sandblasting • Wet spray painting • Anodizing There’s also a laboratory. I don’t need this job, and my OCD makes me believe that dust or air particles there might contain gluten somehow. Should I quit?   Doctors Haven’t Helped My family doctor told me: “Asymptomatic celiac isn’t serious, if you have no symptoms, your intestines won’t get damaged, so you don’t need a gluten-free diet.” I knew that was wrong, but he wasn’t open to listening. I just nodded and didn‘t argue. My gastroenterologist (who’s also a dietitian) said: „If your antibodies are negative, there’s no damage. It might even be okay to try small amounts of gluten later if antibodies stay negative.“ Also said, pepper that says “may contain gluten” is fine if it only contains pepper. She was more informed than my family doctor but didn’t seem to fully understand celiac either.   Questions I Need Help With 1. Is it realistically safe to eat food my mom cooks, if we get separate pans/ and boards even if gluten is still used in the same kitchen? There will always be low risk of cc chances like that she will still touch stuff that was touched by her and my siblings after they ate gluten. And as there are gluten eaters in the house and she also prepares and eats gluten. So would opening the fridge then getting the food and touching the food be okay? So basically what i am doing, washing my hands multiple times while preparing food, she would only wash it once before, then touch anything else (for example water tap or handles) that were touched with gluteny hands, then also touch the food. I dont know if I ever could feel safe, I could try telling her how important cc really is. And I trust her so she wouldnt lie to me then be careless about cc, but idk how safe it really can be if she and everyone else keeps eating gluten and touching stuff in the house after eating. 2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or school desks? Or like if i went to the gym, I would be touching stuff all the time, so there will be small amounts of gluten and those would get transferred on my phone if I touch my phone while in the gym. But I want to knos if it would be enough to do damage. 3. Is an endoscopy (without biopsy) enough to tell if my intestines are healed? I’d pay privately if it could help and if i dont get a refferal. Or do i need a biopsy? 4. Could my job (powder coating, sandblasting, etc.) expose me to gluten or damage my intestines through air/dust? 5. Do I need certified gluten-free toothpaste, hand soap, shampoo, or moisturizer? (For example: Vaseline and Colgate don’t contain gluten ingredients but say they can’t guarantee it’s gluten-free.) 6. Is spices like pepper with “may contain traces of gluten” safe if no gluten ingredients are listed? Or does everything need to be labeled gluten-free?  7. Is continuing to only eat my own food the better choice, or could I eventually go back to eating what my mom cooks if she’s careful? 8. is cutlery from dishwasher safe if there are stains? Stuff like knives is used for cutting gluten bread or fork for noodles etc. I often see stains which i dont know if its gluten or something else but our dish washer doesnt seem to make it completely clean. 9. I wash my hands multiple times while preparing food. Do i need to do the same when touching my phone. Like if i touch the fridge handle, I wash my hands then touch the phone. I dont eat while using my phone but i leave it on my bed and pillow and my face could come in contact with where it was.  10. Do i need to clean my phone or laptop if theyve been used by people who eat gluten? Even if no crumbs fall onto my keybaord, i mean because of invisible gluten on their fingers. 11. Does medication/supplements have to be strictly glutenfree? One company said they couldn‘t guarantee if their probiotics don’t contain traces of gluten.  12. I had bought supplements in the past, some of them say glutenfree and some of them dont(like the brand „NOW“ from iherb). I bought them and used them when i wasnt washing my hands so often, are they still safe? As I touched and opened them after touching door knobs, water taps etc. It was like a year ago when i bought those and even though i was eating gluten-free, I never worried about what i touch etc. I know this post is long. I’m just extremely overwhelmed. I’m trying to protect myself from long-term health damage, but the OCD is destroying my quality of life, and I honestly don’t know what’s a reasonable level of caution anymore. Thanks for reading.
    • lmemsm
      I've been making a lot of black bean brownies lately because it's one of the few gluten free dessert recipes that actually tastes palatable.  I've also seen chocolate cake recipes with black beans.  Someone mentioned a cookie recipe using lentils in place of flour.  Just wondering if anyone's run across any tried and true recipes using beans, lentils or peas for desserts?  I've seen a lot of recipes for garbanzo flour but I'm allergic to garbanzo beans/chickpeas.  Was wondering if adzuki or pinto beans might be useful in replacing some or all of the flour in baking.  Since gluten free flours can be crumbly was hoping the beans might help produce a better, less crumbly consistency.  Any recommendations for recipes?  Thanks.
    • lmemsm
      I've seen a lot of recipes for chia pudding, so I decided to make some with chia, water, cocoa and honey.  Didn't like the taste, so I added ground sunflower and ground pumpkin seed to it.  It tasted okay, but came out more like frosting that pudding.  I used to make pudding with tapioca starch, milk powder, water and sugar.  It came out very good but I haven't figured out what to use to replace the milk powder to make it dairy free.  Most starches will work in place of tapioca starch but quantity varies depending on the type of starch.  If I didn't add enough starch to get a pudding consistency, I'd add gelatin as well to fix it.  Avocado and cocoa makes a good dessert with a pudding like consistency.  Unfortunately, I have a bad reaction to avocados.
×
×
  • Create New...