Advice please

[Dawn s D]

Hi.i have had my endoscopy  and colostomy today.with my endoscopy the doc said I have generalised billary gastritis??i now have to wait 6-8 wks for biopsy results.he said not to stop gluten yet??.y ttg iga was 66.7. Normal range is 0-20.he said stomach lining was inflamed?does that mean it might not be celiac?

[derekjones160]

12 hours ago, Dawn s D said:

Hi.i have had my endoscopy  and colostomy today.with my endoscopy the doc said I have generalised billary gastritis??i now have to wait 6-8 wks for biopsy results.he said not to stop gluten yet??.y ttg iga was 66.7. Normal range is 0-20.he said stomach lining was inflamed?does that mean it might not be celiac?

Bro, my normal range for ttg iga was 0-3  and I was at 5 (They labeled me as intolerant). My biopsy came back negative after a week. Then I called the director and said I was really messed up. She had me do another gluten challenge. Then they ran the Celiac Serology dual antigen test. The normal range is 0-20. It came back 36 and was diagnosed with Celiac disease with a negative biopsy but high antigens, Hope this helps. 

[trents]

3 hours ago, derekjones160 said:

My biopsy came back negative after a week. 

 

A week of what? Consuming gluten after having been gluten free for a significant period?

Edited January 1, 2023 by trents

[Wheatwacked]

Hi Dawn.  As long as they are testing you do need to continue gluten, more is better because the test results depend on finding damage.  Biliary Gastritis is caused by bile from the gall bladder backing up into the stomach, and low stomach acid allows the bad bacteria to survive. Liver and gall bladder issues may be caused by not enough Choline from eggs and meat. It is one of the many vitamins and minerals affected by the intestinal villi damage caused by Celiac Disease. Choline Fact Sheet for Health Professionals.

[derekjones160]

4 hours ago, trents said:

 

A week of what? Consuming gluten after having been gluten free for a significant period?

I was probably gluten free for 2 months. Then i did a 3 week gluten challenge right before my biopsy. It took week to get my results back. Then about 3 months later did a 6 week gluten challenge with no biopsy, just blood work. Apparently not all Celiac patients create high antibodies (iga) when our immune system is tired of fighting our own body. It's common to see autoimmune people with low lymphocytes but are some what in range just on the low side. Seems that the Antigen test is more accurate than the IgA test. 

[Dawn s D]

Thanx I think I just want to not have it so still hoping

5 hours ago, Wheatwacked said:

Hi Dawn.  As long as they are testing you do need to continue gluten, more is better because the test results depend on finding damage.  Biliary Gastritis is caused by bile from the gall bladder backing up into the stomach, and low stomach acid allows the bad bacteria to survive. Liver and gall bladder issues may be caused by not enough Choline from eggs and meat. It is one of the many vitamins and minerals affected by the intestinal villi damage caused by Celiac Disease. Choline Fact Sheet for Health Professionals.

I had op with and half years ago and they said a out inflammed bile duct.is that what it means?

[Wheatwacked]

yup.

If you look at choline in terms of egg equivilancies, the minimum daily is 4 eggs. (Or 10 cups of cooked broccolli if you are vegan)The US Safe upper limit is is 24 large eggs. 3500 mg.  Side effects rarely seen until 7000 mg. Most common are low BP and "fishy" body odor.  MORE THAN METHYLATION: THE CRUCIAL ROLE OF CHOLINE WITH DR JONATHAN BORTZ

Choline is converted by the liver into phosphatidylcholine used for cell mebranes. Choline reduces the risk of baby neural tube defects. A study in California showed that replacing a bagel with 2 eggs at breakfast caused weight loss in the egg group.

I doubt your doctor will mention it and will probably respond with a pat answer because he doesn't know any better, or he would have suggested it.

No reason to not increase your choline as much as you can now, while you are waiting.  It won't heal you of Celiac Disease, nothing except GFD will do that, but you will at least start to get relief.

Other vitamins to consider that deficiencies seem be ubiquitous with Celiac Disease are D, and the B's. Again, no reason to wait. In 6 weeks you can improve your gall bladder health plus the other benefits.

A Gluten Free Diet with a diet that replenishes your vitamin deficiencies will make you feel so much better.