New diagnosed with gluten allergy

[Lindquist]

Hi people, i got my results yesterday from hospital here in North Sweden that i have allergy to gluten doctor say and i also have little allergy to milk. I never heard of gluten allergy before he could say celiac was a better way to say it. But is gluten allergy the same? He didnt say it was wheat allergy, only gluten allergy. He send me a letter home that say that i wrote here. He saw that i have a inflammation in my colon and i have difficult to melt down fat in food, because the colon is inflammed. Thats why i have being on the b12 and folate supplements because my colon has been inflammed. When i was to doctor in 2019 they only say i have anxiety, anorexia and other stupid things. When i told them that i have so pain in my stomach , feels that a rat eating me inside. But they say you have anxiety, i have not had that i am always calm, never stressed.

[GodsGal]

  On 3/17/2023 at 4:46 PM, Lindquist said:

Hi people, i got my results yesterday from hospital here in North Sweden that i have allergy to gluten doctor say and i also have little allergy to milk. I never heard of gluten allergy before he could say celiac was a better way to say it. But is gluten allergy the same? He didnt say it was wheat allergy, only gluten allergy. He send me a letter home that say that i wrote here. He saw that i have a inflammation in my colon and i have difficult to melt down fat in food, because the colon is inflammed. Thats why i have being on the b12 and folate supplements because my colon has been inflammed. When i was to doctor in 2019 they only say i have anxiety, anorexia and other stupid things. When i told them that i have so pain in my stomach , feels that a rat eating me inside. But they say you have anxiety, i have not had that i am always calm, never stressed.

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Hi!

Thanks for sharing your story. I am not a medical professional, so this is not medical advice. I can see how what your doctor said would be confusing. I would ask your doctor for clarification. 

Technically celiac is not a "true allergy". Sometimes the word allergy is used incorrectly. 

Did you have an endoscopy/biopsy to discover the inflammation? Did you have any blood tests with that? If So, do you know which of your antibodies were tested? For celiac disease they test for certain IgA and IgG antibodies. But for allergies they look for IgE antibodies.

 

 

 

[Lindquist]

They saw that on diffrent blood in liver called Alat, i dont know what it is in USA. They saw on gastroscopy i have a inflammation in duodeom too. Sorry for bad english, i talk swedish every day.

It was that test Transglutaminas test

I have also milkprotein allergy what they say. 

[GodsGal]

  On 3/18/2023 at 7:53 AM, Lindquist said:

They saw that on diffrent blood in liver called Alat, i dont know what it is in USA. They saw on gastroscopy i have a inflammation in duodeom too. Sorry for bad english, i talk swedish every day.

It was that test Transglutaminas test

I have also milkprotein allergy what they say. 

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I actually love the fact that this online community is international. Don't worry about the language difficulties. You are doing great! 🙂

It does sound like Celiac. Inflammation in the duodenum is what they look for to confirm the diagnosis. 

Often those of us with celiac disease have other food intolerances as well. Milk is a common one. The current thought is that the damage in our small intestines causes us to have a "leaky gut". That causes our bodies to react to those foods. 

[GodsGal]

I found this article helpful as I started my journey. https://www.celiac.com/celiac-disease/the-gluten-free-diet-101-a-beginners-guide-to-going-gluten-free-r1640/

[RMJ]

Perhaps your doctor used the term “allergy” because most people understand that better than “celiac disease”?  

Inflammation in the duodenum plus a positive tissue transglutaminase does sound like celiac disease.  Were you told to go gluten free?

[Lindquist]

Yes doctor going to write a paper so i get insurance money to buy gluten free food here they have that in sweden. In USA too?

[GodsGal]

  On 3/19/2023 at 7:32 PM, Lindquist said:

Yes doctor going to write a paper so i get insurance money to buy gluten free food here they have that in sweden. In USA too?

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We have gluten free food, but we don't get any financial assistance to help pay for it. We have to pay out of our own pocket. 

[Lindquist]

  On 3/19/2023 at 8:24 PM, GodsGal said:

We have gluten free food, but we don't get any financial assistance to help pay for it. We have to pay out of our own pocket. 

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Sad to hear it would be good to have financial assistance in US too. So people with Celiac can have money to buy glutenfree because its more expensive then normal food.

[Lindquist]

I am blood type 0 Rhd+ have milkprotein allergy and hiatus hernia. I can not drink milk. Then i get problem with stomach. Does milk products cause leaky gut too or is it only gluten?

[GodsGal]

  On 3/19/2023 at 8:41 PM, Lindquist said:

I am blood type 0 Rhd+ have milkprotein allergy and hiatus hernia. I can not drink milk. Then i get problem with stomach. Does milk products cause leaky gut too or is it only gluten?

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The celiac damage causes the leaky gut. But the leaky gut is what causes our bodies to react negatively/develop intolerances to other foods. I also can't tolerate milk and certain raw vegetables. 

[GodsGal]

  On 3/19/2023 at 8:35 PM, Lindquist said:

Sad to hear it would be good to have financial assistance in US too. So people with Celiac can have money to buy glutenfree because its more expensive then normal food.

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Especially gluten free bread items! That is a common theme for people like us.

I think that there are some creative ways to help cut down on the cost a bit. But it definitely involves cooking everything from scratch yourself. It also involves researching each ingredient to make sure that it is gluten free. 

Sometimes I can also find less expensive mixes online. Then I will ask some of my gluten free friends nearby if they want to order as well. Often times, if we order together, then we can make the order big enough that we can get free shipping. 

[Lindquist]

  On 3/19/2023 at 10:14 PM, GodsGal said:

Especially gluten free bread items! That is a common theme for people like us.

I think that there are some creative ways to help cut down on the cost a bit. But it definitely involves cooking everything from scratch yourself. It also involves researching each ingredient to make sure that it is gluten free. 

Sometimes I can also find less expensive mixes online. Then I will ask some of my gluten free friends nearby if they want to order as well. Often times, if we order together, then we can make the order big enough that we can get free shipping. 

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Hi again, do you eat 0 PPM or 20 ppm what working best for a celiac ??

[GodsGal]

  On 3/20/2023 at 7:19 PM, Lindquist said:

Hi again, do you eat 0 PPM or 20 ppm what working best for a celiac ??

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I aim for under 10ppm. For  those of us with celiac, the closer to zero we can get the better.🙂

[Lindquist]

  On 3/20/2023 at 9:20 PM, GodsGal said:

I aim for under 10ppm. For  those of us with celiac, the closer to zero we can get the better.🙂

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To make a pie, what gluten free flour is best? I have not find any good yet.

[GodsGal]

  On 3/21/2023 at 4:59 AM, Lindquist said:

To make a pie, what gluten free flour is best? I have not find any good yet.

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I am still working on that one myself. Sometimes it requires trial and error. I like using King Arthur gluten free measure for measure flour. But not all gluten free flours work for all recipes. My experience so far is that you probably will have more success with a flour mix that contains xanthan gum.

This is a link to a recipe that I have had the most success with so far.

https://www.mamaknowsglutenfree.com/gluten-free-pie-crust/#recipe

I also find it helpful to measure the gluten free flour by weight instead of measuring cups. I feel like I get a better outcome that way. 

I also see that some people on this site have posted recipes using almond flour for more of a graham cracker style crust or coconut flour. 

I hope this helps!

[Lindquist]

Thank you

[GodsGal]

  On 3/22/2023 at 6:47 AM, Lindquist said:

Thank you

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You're welcome! We're all on this journey together. 🙂

[Lindquist]

  On 3/22/2023 at 11:22 AM, GodsGal said:

You're welcome! We're all on this journey together. 🙂

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Hi can you handle Soya products?? I cant i have figure out that too. But im allergic to Citric Acid to that is from Black Mold, Aspergillus Niger. I get allergy reactions on my face. Its almost in soda and food. I read about the blood type 0 diet from Peter D adamo , its not fake there, most of that i read there on blood type 0 working, it says on blood type 0, people with 0 should avoid gluten, kasein (milkprotein) and its correct i am allergic to mp and gluten. And oranges i get to much high acid in stomach so i vomit.

[GodsGal]

  On 3/22/2023 at 1:52 PM, Lindquist said:

Hi can you handle Soya products?? I cant i have figure out that too. But im allergic to Citric Acid to that is from Black Mold, Aspergillus Niger. I get allergy reactions on my face. Its almost in soda and food. I read about the blood type 0 diet from Peter D adamo , its not fake there, most of that i read there on blood type 0 working, it says on blood type 0, people with 0 should avoid gluten, kasein (milkprotein) and its correct i am allergic to mp and gluten. And oranges i get to much high acid in stomach so i vomit.

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I can eat soybeans, but I don't handle soy milk very well. A small amount in another product is ok for me. But if the base of the product is soy milk (like soy yogurt), then I am better off if I avoid it. 

I have never investigated eating according to blood type.