Endoscopy

[Jane07]

I’m going for a endoscopy I hate test I’m scared to death I’m not doing the colonoscopy just the endoscopy.

 

what should I expect ? What should I eat this week . It’s next week 

[Jane07]

I started a gluten free diet I was reading you are suppose to be on gluten 

[Scott Adams]

Yes, if you are doing the endoscopy to detect possible celiac disease then you should be eating at least two slices of wheat bread daily for at least 2 weeks before the procedure, otherwise you may get false-negative results. 

I would not worry about the procedure itself, as most people have no issues with it, and don't even remember it.

[Jane07]

I haven’t been I stopped in early February what should I do . I don’t want to go back on gluten 

[Scott Adams]

If you're not willing to go back on gluten for this test, then you likely have your answer already anyway, right? You should let your doctor know that you've been gluten-free since early February to see if they still want to do the procedure (I'm not sure why they would still want to proceed with it, given that the results would be highly suspect). You could also cancel the procedure and just let them know that you can't go on a gluten based diet again.

[trents]

Ditto to what Scott said.

[Raquel2021]

I think if there is damage to the villi and she only went gluten free in Feb it would show on th3 endoscopy. But I am not a doctor.  I have done 2 endoscopies you can do it. It is not that bad they give you sedetation for it

[Scott Adams]

If @Jane07 would like to proceed with the endoscopy it would be best to delay it and do a gluten challenge. Why? Because what if she proceeds with it while being gluten-free and the doctor tells her that her results are negative, no celiac disease, and you can keep eating gluten? That is the normal outcome from a negative celiac disease biopsy. Such a result would not only be confusing to her, but also to her doctors. 

[Jane07]

Thanks for your input . Very scary situation 

It’s only been a few months . I still have gas and watery farts is that normal with celiac 

[Raquel2021]

  On 3/22/2023 at 12:27 AM, Jane07 said:

Thanks for your input . Very scary situation 

It’s only been a few months . I still have gas and watery farts is that normal with celiac 

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Yes celiac produces a lot of uncomfortable symptoms.  It can also take a long time to heal. You will.be ok. Sedation helps

[Jane07]

Is watery fart a symptom of celiac disease or is it my colon too 

[Raquel2021]

  On 3/22/2023 at 12:42 AM, Jane07 said:

Is watery fart a symptom of celiac disease or is it my colon 

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I am not sure. Best to ask the doctor 

[Jane07]

Thanks I was suppose to do 2 the endoscope and the colon I’m just going to do the one and hope for the best 

Hope I can get better thanks for your input about the endoscopy 

pleasee pray cause I’m scared 

[Raquel2021]

No problem.  Good luck. 

[Jane07]

  On 3/21/2023 at 11:34 PM, Scott Adams said:

 

If @Jane07 would like to proceed with the endoscopy it would be best to delay it and do a gluten challenge. Why? Because what if she proceeds with it while being gluten-free and the doctor tells her that her results are negative, no celiac disease, and you can keep eating gluten? That is the normal outcome from a negative celiac disease biopsy. Such a result would not only be confusing to her, but also to her doctors. 

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I understand what you are saying I just want to heal I thought doing the endoscopy maybe helpful but with the no gluten it sounds like it could cause a problem. I did tell the one doctor she said it should be ok because it haven’t been that long .

[Wheatwacked]

  On 3/22/2023 at 12:42 AM, Jane07 said:

Is watery fart a symptom of celiac disease or is it my colon too 

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Key Points about Celiac Disease "In both gluten intolerance and celiac disease, the body mounts an immune response against gluten, leading to symptoms such as diarrhea, headaches, fatigue, abdominal pain, weight loss, nausea and vomiting, bloating and gas, and constipation."

There are over 200 symptoms associated with Celiac Disease. I counted 19 in myself that improved. Since you can't eat gluten it is safe to assume it is the cause. You will start to feel better but like any injury it takes some time to heal. Obviously if it doesn't, further investigation is needed, but you'll have eliminated gluten so less chance for misdiagnosis. Either the autoimmune effects or the malabsorption syndrome it can cause or malnutrion because you are not getting enough vitamins and minerals because of food choices made to avoid discomfort. Few of the vitamins and mineral deficiencies will show up in blood tests because most of them are inside the cells and blood tests only check blood levels. For example potassium the US Daily Value is 4700 mg. Most only get less than 3000. 98% of the potassium is inside the cell.

Potassium Fact Sheet for Health Professionals "The DV for potassium is 4,700 mg for adults and children age 4 years and older...Dietary surveys consistently show that people in the United States consume less potassium than recommended, which is why the 2015–2020 Dietary Guidelines for Americans identifies potassium as a “nutrient of public health concern” [26]. According to data from the 2013–2014 National Health and Nutrition Examination Survey (NHANES), the average daily potassium intake from foods is 2,423 mg for males aged 2–19, and 1,888 mg for females aged 2–19 [27]. In adults aged 20 and over, the average daily potassium intake from foods is 3,016 mg for men and 2,320 mg for women."

[Jane07]

Thanks 😞

[Scott Adams]

  On 3/22/2023 at 1:34 AM, Jane07 said:

I understand what you are saying I just want to heal I thought doing the endoscopy maybe helpful but with the no gluten it sounds like it could cause a problem. I did tell the one doctor she said it should be ok because it haven’t been that long .

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Certainly you should listen to your doctor on this, but just keep in mind that any negative results can't be trusted. It is possible there could still be enough damage to diagnose celiac disease.

[Jane07]

The ttg test what is consider High to you

[trents]

  On 3/23/2023 at 12:10 PM, Jane07 said:

The ttg test what is consider High to you

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We cannot answer that question unless we knew what standard the lab used to differentiate negative from positive. Each lab uses their own scale. Their is no universal standard. So, what was the cutoff between negative and positive and what was your score?

[Jane07]

Mine ttg was 80 

i believe over 40 is the range 

I having an endoscopy next week praying 

 

[trents]

So, if your memory serves you correctly, your tTG-IGA score was 2x the threshold for positive. Probably not what I would call extremely high but solidly positive.

But again, don't be surprised if the biopsy is negative. You will have been off gluten for two months by the time you get scoped. The Mayo clinic guideline for resuming gluten after having been gluten free for substantial amounts of time is resumption of eating two slices of wheat bread (or the gluten equivalent) daily for two weeks leading up to the day of the procedure in order to ensure a legitimate result. You will have been off gluten for about 4x that amount of time. Which direction will you go if the result is negative?

[Jane07]

I don’t know the doctor also want a colonoscopy I have lost a lot of weight I have watery farts I have gallstones it’s hard . I guess we will see I looked the score should be 40 or under I’m 80 pretty high I’m not sure how high other people are. It may have gone down I stop gluten the beginning of February it’s almost April . I’m tired of all the test it’s makes me so sad 

[trents]

Have you considered the watery farts could be caused by food intolerances not related to gluten such as dairy?

[Jane07]

Could be the doctor was pretty sired with my ttg so high it properly celiac 

  On 3/23/2023 at 10:21 PM, Jane07 said:

Could be the doctor was pretty slsure with my ttg so high it properly celiac 

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