Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need to rant - restaurant gave me gluten cake


Grace782617274

Recommended Posts

Grace782617274 Newbie

Hey,

I really just need to rant about being glutenated recently as most people don’t understand how upsetting it is.

I was recently diagnosed with coeliac in January (had coeliac symptoms 4 years prior to this). By the time I was diagnosed I was extremely ill with fatigue, heart problems and malnutrition. In the past 6 months I have been extremely careful with my gluten free diet and cross contamination.

I went with family to a cafe today and asked if they had any gluten free cakes. They assured me they did, and checked the labels of the cakes and told me they had one specific one that was suitable. After confirming it was safe for me to eat another two times and enquiring about cross contamination I assumed it was fine. After having around two/three bites my boyfriend questioned why it had crumbled biscuit on top (something I had completely overlooked because I assumed it was fine with them confirming it was gluten free). 

After asking the waiter if she could confirm it was safe to eat, she told me it was definitely gluten free and showed me the label which clearly stated it had wheat in it. Instead of apologising she kept on just saying it didn’t mention gluten anywhere, and I understand it’s the restaurants fault for insufficient training, but I just felt so upset and uncomfortable. The restaurant did not apologise at all, did not ask if I was okay, and also claimed they could not give me a refund. 

I feel silly for feeling so upset and anxious that they gave me gluten as I’ve tried so hard with the gluten free diet and cross contamination since diagnosis and the restaurant staff did not care nor were apologetic at all. I’ve worried about it all day but I don’t want to complain to family anymore as they don’t quite understand how upsetting it can feel. It just feels like people do not understand that it is a serious medical condition and can make us really ill :( I already find it hard as I’m 21 and I’m unable to eat at most restaurants with my friends and now a supposedly safe restaurant has given me the wrong food.
 

Sorry for the long rant I just needed to talk to people who understand what it feels like.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RMJ Mentor

I would be furious if this happened to me.  Good for your boyfriend in noticing something that might contain gluten! It sounds like you have his support.

knitty kitty Grand Master

Hi, @Grace782617274,

I've had a similar experience where I was assured by the restaurant manager they could provide a gluten free meal, and promptly served me a salad with croutons.  Heavy sigh.  

Take it as a lesson learned.  The majority of people out there are probably clueless about what's in their food, never mind yours. 

Ask for wheat free and gluten free.  Explain gluten is in wheat.  Educate wherever you go. 

Two thumbs up for the alert boyfriend! 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,023
    • Most Online (within 30 mins)
      7,748

    Tubbybooboo
    Newest Member
    Tubbybooboo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.