Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

no diagnosis

Chillycat
 Share

Recommended Posts

Chillycat Newbie
Chillycat
Posted

i am trying to figure out whats wrong..........  i have had watery diarrhea for 8 weeks, bloating, stomach pain, urgency of bowel movement, difficulty controlling it .   Imodium didnt help at all.   i also have has unexplained rashes in the last few months leading up to this.  it seems like i have a lot of celiac or gluten sensitivity symptoms.  dr appointment coming up.  wondered if some people could share their symptoms with me.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


McNish Apprentice
McNish
Posted
1 hour ago, Chillycat said:

i am trying to figure out whats wrong..........  i have had watery diarrhea for 8 weeks, bloating, stomach pain, urgency of bowel movement, difficulty controlling it .   Imodium didnt help at all.   i also have has unexplained rashes in the last few months leading up to this.  it seems like i have a lot of celiac or gluten sensitivity symptoms.  dr appointment coming up.  wondered if some people could share their symptoms with me.

Hi Chillycat,

There are over 300 symptoms related to celiac so there's lots of variations & everyone is different.  When I'm glutened, I personally get a screaming headache, nausea, and horrible joint pain, generally lasting about 2 weeks (the joint pain).   I used to get a rash in between my fingers that itched like crazy.   Not sure when your dr's appt is.  Have you considered genetic testing to see if you carry either or both of the Celiac genes?   This won't confirm you have celiac disease but it can rule it out.   Hope you get some answers soon.  Good Luck! 

 

 

cristiana Veteran
cristiana
Posted

Hi Chillycat.  My symptoms were pretty similar to yours, except I also had terrible anxiety, and was very anaemic. 

Chillycat Newbie
Chillycat
Posted
  • Author
1 hour ago, McNish said:

Hi Chillycat,

There are over 300 symptoms related to celiac so there's lots of variations & everyone is different.  When I'm glutened, I personally get a screaming headache, nausea, and horrible joint pain, generally lasting about 2 weeks (the joint pain).   I used to get a rash in between my fingers that itched like crazy.   Not sure when your dr's appt is.  Have you considered genetic testing to see if you carry either or both of the Celiac genes?   This won't confirm you have celiac disease but it can rule it out.   Hope you get some answers soon.  Good Luck! 

 

 

dr appointment next week

Scott Adams Grand Master
Scott Adams
Posted

This article might help:

 

knitty kitty Grand Master
knitty kitty
Posted

@Chillycat

Are you still consuming gluten?  Doctors do blood tests to look for antibodies to gluten (these antibodies also attack our bodies).    You have to be eating gluten to produce these antibodies.  If you go gluten free prior to the blood tests, there won't be as high a level of antibodies, possibly giving an inconclusive test result (borderline or false negatives).  

Also get checked for vitamin and mineral deficiencies.  Deficiencies in Niacin B3, Thiamine B1, or Cobalamine B12 can cause constant diarrhea.  Niacin and Cobalamine deficiencies can cause rashes.  Dermatitis Herpetiformis is a rash common in Celiac Disease.  Ask about having the rash biopsied.  

Keep us posted on your progress!

Best wishes.

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,883
    • Most Online (within 30 mins)
      7,748
    Trevor smith 2
    Newest Member
    Trevor smith 2
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Virus, celiac disease or both?

      By trents · Posted

      @Shining My Light, what do you mean when you say "the blood test not being 100%"? Were you expecting all possible celiac blood antibody tests to be positive in the case of someone who actually does have celiac disease? That seldom, if ever, happens. You are gauging too much on how you feel when you consume gluten and not paying enough attention to test results. If the idea of eating 4-6 slices of wheat bread daily to get 10g of gluten is repulsive to you then go the health food store and buy powdered gluten, weigh it out on a food scale, and make shakes with it. Many report that Gliadin X helps them in a significant way to ward off unpleasant reactions to minor gluten exposure, such as you would get in a cross contamination situation. It will not work to prevent reactions when used with large exposures to gluten.
    • Shining My Light
      Virus, celiac disease or both?

      By Shining My Light · Posted

      Hi @RMJ,   Thank you for you input. I really appreciate all view points on this, more than you know.  Maybe I’ve done too much research. One thing I read would point to yes and then along comes all these variables that convinces me that my levels were high because of having a virus.  I don’t like bread or pasta that much but seriously love baked goods.  I’m scared to give those up “for no reason”  I’m also scared to be doing damage to my body.    I’m stuck in a situation where I’m scared and confused either way.    It’s hard for people with silent celiac because you don’t “feel” like you are doing the right thing.    I did see some advertisements on here about Giliad X? Is that a supplement for gluten and is insulin for diabetes? 
    • Shining My Light
      Virus, celiac disease or both?

      By Shining My Light · Posted

      Thank you @trents!    I have been going back and forth on some gluten free some days and some days not trying to see if there is any reaction to how I feel.    As much as I don’t want to I think given the blood test not being 100%. It’s fair to say an EGD is necessary.  I do think before I go through with that I would run another TTG IGA if my doctor would approve that. If levels are the same, I have no choice. 😔    In the mean time I’m going to enjoy gluten. The biggest problem I have is the thought of eating 4-6 slices of bread per day. That’s crazy! There has to be something comparable. Possibly an “average” of about that per day? Is there any lists of foods out there that are trade offs? (4 slices is = 1 donut) 
    • RMJ
      Virus, celiac disease or both?

      By RMJ · Posted

      Damage with silent celiac exists. I am a silent celiac.  I was tested because I have the gene predisposing to celiac disease and migraines.  All of my antibodies were high (TTG IgA, TTG IgG, DGP IgA, DGP IGG, EMA). I had a biopsy which showed damage. After going gluten free I felt better overall and have more energy. Unfortunately it didn’t help the migraines. Sorry to be blunt and write this, but it sounds like you’re really in denial about the possibility of having celiac disease. Understandable, and not uncommon on this forum.
    • trents
      Probably celiac but also confused

      By trents · Posted

      Welcome to the forum, @terrymouse! Your GI doc is correct. Going gluten free now will allow healing to occur in the villous lining of the small bowel such that the endoscopy/biopsy may not show the damage to the villous architecture that is characteristic of celiac disease. Since your celiac blood antibody tests results are on the low side and don't "scream" of celiac disease I think it is important to go forward with the endoscopy/biopsy while still consuming gluten to ensure it will not be a wasted effort. The last thing you want is to have two different test modalities that unnecessarily contradict one another. So, unless the continued consumption of gluten poses an immediate and significant threat to your health, my advice is to (excuse the pun) "gut it out" until the endoscopy/biopsy happens. There is also the option of temporarily going gluten free and then undertaking a "gluten challenge" in the weeks leading up to the appointment in September. Current guidelines for the gluten challenge are the daily consumption of at least 10g of gluten (the amount found in about 4-6 slices of wheat bread) for at least 2 weeks leading up to the day of the procedure. But I would certainly give it longer than two weeks to be sure. And in view of the fact that it could happen sooner if there is a cancellation, I would encourage you to not go gluten free until after the procedure if your health permits. By the way, what are your symptoms? What led you to investigate celiac disease as the cause of your medical issues?
×
×
  • Create New...