Persistent nausea 6 weeks gluten free

[Newtoceliac4990]

Nausea has been a main symptom for me since being diagnosed with celiac about 6 weeks ago. It comes and goes and still does. I believe I have been good with cross contamination. Is this normal part of recovery? My stomach feels a mix between being nauseous and hungry. I also have constant hiccups and severe abdominal pain in the mornings. Any Insight on timelines for feeling better. I did an antibody test and my results were in the 2000s and my doctor said they should be less than 5.

[Scott Adams]

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

 

[Always-Hungry-Kate]

Although I am a few months late, here (I only just joined the group over a week ago), I wanted to chime in on this what-I-think-is-strange “nausea” topic.  I was given a prescription for generic Zofran, which thankfully, I haven’t had to use yet.  But if it gets worse, I definitely will start taking it.

So far, with everything I’ve been reading, nausea seems to be pretty prevalent when you change your diet to a gluten-free one.  After having all of my vitamin/mineral levels checked in my blood (just last week), the only items that were out of range were my Vitamin D, which was too low (no surprise, there; my recently-diagnosed osteoporosis, prove that), my carotene level (was too high), and my B6 level (also too high). 

The only supplement I was taking as of October was a 1000 IU vitamin D. That was it.  When my D-level came back low, I was immediately put on a huge, prescription-strength dose of vitamin D.  No other suggestions were made about the other vitamins that were above the normal range. I’m guessing things will even-out as I heal? 

Still, I found it hard to understand how it is that I am often both hungry and nauseous at the same time.  The doctors assured me that it is just due to the change in my diet.  The recent endoscopy I had didn’t show anything “serious”; all of the various bloodwork I had also showed nothing significant except the celiac condition. 

[Newtoceliac4990]

23 minutes ago, Always-Hungry-Kate said:

Although I am a few months late, here (I only just joined the group over a week ago), I wanted to chime in on this what-I-think-is-strange “nausea” topic.  I was given a prescription for generic Zofran, which thankfully, I haven’t had to use yet.  But if it gets worse, I definitely will start taking it.

So far, with everything I’ve been reading, nausea seems to be pretty prevalent when you change your diet to a gluten-free one.  After having all of my vitamin/mineral levels checked in my blood (just last week), the only items that were out of range were my Vitamin D, which was too low (no surprise, there; my recently-diagnosed osteoporosis, prove that), my carotene level (was too high), and my B6 level (also too high). 

The only supplement I was taking as of October was a 1000 IU vitamin D. That was it.  When my D-level came back low, I was immediately put on a huge, prescription-strength dose of vitamin D.  No other suggestions were made about the other vitamins that were above the normal range. I’m guessing things will even-out as I heal? 

Still, I found it hard to understand how it is that I am often both hungry and nauseous at the same time.  The doctors assured me that it is just due to the change in my diet.  The recent endoscopy I had didn’t show anything “serious”; all of the various bloodwork I had also showed nothing significant except the celiac condition. 

I have had the exact same experience. Even went as far as a colonoscopy to check other things going on. Which came back clear. My endoscopy showed stage 3C celiac and I am currently 4.5 months gluten free. I have noticed improvements but still have off days and definitely also struggled with being nauseous and hungry at the same time. My guess and hope that it is just a long healing process 

[Always-Hungry-Kate]

36 minutes ago, Newtoceliac4990 said:

I have had the exact same experience. Even went as far as a colonoscopy to check other things going on. Which came back clear. My endoscopy showed stage 3C celiac and I am currently 4.5 months gluten free. I have noticed improvements but still have off days and definitely also struggled with being nauseous and hungry at the same time. My guess and hope that it is just a long healing process 

Thank you for the fast response.  I’m so sorry that you are experiencing the same thing, but of course, I am relieved to know that it seems to be a very common side effect of this new diet.
 

At least now — after two months being gluten-free — I seem to be having a few good hours during each day, but I’m still not having what I would call “strong, stable” days, yet.  It’s very sad for me, still.  Also, before I leave the house, I make sure I have a large bottle of water, a small cooler full of protein drinks and yogurt, a small bag of protein bars in my purse, along with my anti-nausea pills — just in case.  Ugh. 

I still cannot believe what the last two months of my life have been like.  Just last week, I spent four days either going to doctors for check-ups/prescriptions or labs for bloodwork.  I keep thinking I’m going to wake up tomorrow and this will all be a bad dream. 

[Scott Adams]

3 hours ago, Always-Hungry-Kate said:

Although I am a few months late, here (I only just joined the group over a week ago), I wanted to chime in on this what-I-think-is-strange “nausea” topic.  I was given a prescription for generic Zofran, which thankfully, I haven’t had to use yet.  But if it gets worse, I definitely will start taking it.

So far, with everything I’ve been reading, nausea seems to be pretty prevalent when you change your diet to a gluten-free one.  After having all of my vitamin/mineral levels checked in my blood (just last week), the only items that were out of range were my Vitamin D, which was too low (no surprise, there; my recently-diagnosed osteoporosis, prove that), my carotene level (was too high), and my B6 level (also too high). 

The only supplement I was taking as of October was a 1000 IU vitamin D. That was it.  When my D-level came back low, I was immediately put on a huge, prescription-strength dose of vitamin D.  No other suggestions were made about the other vitamins that were above the normal range. I’m guessing things will even-out as I heal? 

Still, I found it hard to understand how it is that I am often both hungry and nauseous at the same time.  The doctors assured me that it is just due to the change in my diet.  The recent endoscopy I had didn’t show anything “serious”; all of the various bloodwork I had also showed nothing significant except the celiac condition. 

Getting more direct sunlight daily may help.

Proper absorption of vitamin D is influenced by various nutrients, and ensuring an adequate intake of these nutrients is important for optimal utilization of vitamin D in the body. Here are some key nutrients that play a role in vitamin D absorption:

Calcium: Calcium and vitamin D work synergistically, and an adequate calcium level is essential for the proper functioning of vitamin D. Calcium is a mineral that is crucial for bone health, and vitamin D helps in its absorption in the intestines.

Magnesium: Magnesium is another mineral that plays a role in the activation of vitamin D. Magnesium-dependent enzymes convert vitamin D into its active form, which is necessary for various physiological functions.

Phosphorus: Phosphorus is a mineral that works in conjunction with calcium and vitamin D for bone health. It is involved in the formation and maintenance of bone tissue.

Vitamin K: Vitamin K is important for bone health and may work synergistically with vitamin D in bone metabolism. Both vitamins contribute to bone mineralization and density.

Zinc: Zinc is involved in the metabolism of vitamin D, and zinc deficiency may impair the activation of vitamin D in the body.

Boron: Boron has been suggested to play a role in vitamin D metabolism and bone health. It may enhance the effectiveness of vitamin D.

Vitamin A: Vitamin A and vitamin D interact, and both are involved in immune function. However, excessive vitamin A intake may interfere with vitamin D absorption, so maintaining a balance is important.

Fat: Vitamin D is a fat-soluble vitamin, and the absorption of fat-soluble vitamins is generally improved when consumed with dietary fats. Including healthy fats in meals can support the absorption of vitamin D.

[Maggieinsc]

On 12/15/2023 at 10:39 AM, Scott Adams said:

Getting more direct sunlight daily may help.

Proper absorption of vitamin D is influenced by various nutrients, and ensuring an adequate intake of these nutrients is important for optimal utilization of vitamin D in the body. Here are some key nutrients that play a role in vitamin D absorption:

Calcium: Calcium and vitamin D work synergistically, and an adequate calcium level is essential for the proper functioning of vitamin D. Calcium is a mineral that is crucial for bone health, and vitamin D helps in its absorption in the intestines.

Magnesium: Magnesium is another mineral that plays a role in the activation of vitamin D. Magnesium-dependent enzymes convert vitamin D into its active form, which is necessary for various physiological functions.

Phosphorus: Phosphorus is a mineral that works in conjunction with calcium and vitamin D for bone health. It is involved in the formation and maintenance of bone tissue.

Vitamin K: Vitamin K is important for bone health and may work synergistically with vitamin D in bone metabolism. Both vitamins contribute to bone mineralization and density.

Zinc: Zinc is involved in the metabolism of vitamin D, and zinc deficiency may impair the activation of vitamin D in the body.

Boron: Boron has been suggested to play a role in vitamin D metabolism and bone health. It may enhance the effectiveness of vitamin D.

Vitamin A: Vitamin A and vitamin D interact, and both are involved in immune function. However, excessive vitamin A intake may interfere with vitamin D absorption, so maintaining a balance is important.

Fat: Vitamin D is a fat-soluble vitamin, and the absorption of fat-soluble vitamins is generally improved when consumed with dietary fats. Including healthy fats in meals can support the absorption of vitamin D.

 

On 12/15/2023 at 7:35 AM, Always-Hungry-Kate said:

Although I am a few months late, here (I only just joined the group over a week ago), I wanted to chime in on this what-I-think-is-strange “nausea” topic.  I was given a prescription for generic Zofran, which thankfully, I haven’t had to use yet.  But if it gets worse, I definitely will start taking it.

So far, with everything I’ve been reading, nausea seems to be pretty prevalent when you change your diet to a gluten-free one.  After having all of my vitamin/mineral levels checked in my blood (just last week), the only items that were out of range were my Vitamin D, which was too low (no surprise, there; my recently-diagnosed osteoporosis, prove that), my carotene level (was too high), and my B6 level (also too high). 

The only supplement I was taking as of October was a 1000 IU vitamin D. That was it.  When my D-level came back low, I was immediately put on a huge, prescription-strength dose of vitamin D.  No other suggestions were made about the other vitamins that were above the normal range. I’m guessing things will even-out as I heal? 

Still, I found it hard to understand how it is that I am often both hungry and nauseous at the same time.  The doctors assured me that it is just due to the change in my diet.  The recent endoscopy I had didn’t show anything “serious”; all of the various bloodwork I had also showed nothing significant except the celiac condition. 

I would add Gingerale. Always calms my stomach down when i get nauseated. Thank goodness its not as bad now two months into gluten free for celiac. However still frequently exhausted so I got some B 12 at Sprouts. My mom swore by it for energy. If that doesn't work will head back to the doctor after Christmas. Tired of being tired. 

I did read a book by Jennifer Esposito(Jennifer’s Way) whose had undiagnosed severe celiac since childhood. Said it took her about two years to feel “normal”again. She also took alot of supplements in gel form because our digestive system is so damaged tablets don't work as well. Essentially we were starving and getting no nutrition from our food no matter what we ate. 

the doctor had already told me to take massive D3 and iron for anemia. I also take Trace  Minerals for magnesium sodium and potassium as well as other minerals. Seems to help with muscle cramps I get alot. 

[Always-Hungry-Kate]

17 hours ago, Maggieinsc said:

I would add Gingerale. Always calms my stomach down when i get nauseated. Thank goodness its not as bad now two months into gluten free for celiac. However still frequently exhausted so I got some B 12 at Sprouts. My mom swore by it for energy. If that doesn't work will head back to the doctor after Christmas. Tired of being tired. 

 

I did read a book by Jennifer Esposito(Jennifer’s Way) whose had undiagnosed severe celiac since childhood. Said it took her about two years to feel “normal”again. She also took alot of supplements in gel form because our digestive system is so damaged tablets don't work as well. Essentially we were starving and getting no nutrition from our food no matter what we ate. 
 

the doctor had already told me to take massive D3 and iron for anemia. I also take Trace  Minerals for magnesium sodium and potassium as well as other minerals. Seems to help with muscle cramps I get alot. 

Yes, normally, for people who can drink carbonated liquids, ginger ale would be a stomach-settling thing to have.  In my case, since 2007, when I was first diagnosed with osteopenia, I am not to drink any kind of soda. Apparently, it leaches calcium from your bones. 
 

Having said that, the only other thing I was given to handle the nausea is generic Zofran.  I may need to take my first one today due to the nausea that I woke up with, which — as usual — is not making any sense to me.  The doctors keep telling me that it is due to the new diet, but I would like to know more, if that is true.   
 

Now that it has been almost 2 months since I’ve been on the gluten-free diet, I am starting to lose hope that I will ever feel “good” again.  Since this all started, I find it very hard to be inspired to do very much. And, it’s not a mental thing, it’s definitely a physical thing. I just don’t feel healthy and it’s hard to be inspired when you feel as though you just want to lay down or wait until your stomach settles-down. 

As I have seen mentioned a few times in this forum, I am ALSO sick-and-tired of being sick-and-tired.  I rarely feel good now, and yet I know I have to be careful who I say that to because most of these so-called medical professionals are suggesting that I go on an antidepressant.  There’s no way I’m doing that while I’m on this new diet, AND on an anabolic osteoporosis drug and I even need something right now for the chronic congestion I keep getting in my right ear.  Yep, that’s the fun I’m having these days.  
 

It has to get better, right?  How are you all coping with this? 

[Maggieinsc]

On 9/20/2023 at 10:14 PM, Newtoceliac4990 said:

Nausea has been a main symptom for me since being diagnosed with celiac about 6 weeks ago. It comes and goes and still does. I believe I have been good with cross contamination. Is this normal part of recovery? My stomach feels a mix between being nauseous and hungry. I also have constant hiccups and severe abdominal pain in the mornings. Any Insight on timelines for feeling better. I did an antibody test and my results were in the 2000s and my doctor said they should be less than 5.

I forgot to add try some ginger tea. It is suppose to work for nausea too. 

[Yvonne Pettersen]

My doctor kept telling me there was nothing wrong with  me  I kept losing weight over a year   Dropped from 85 down to 55 kilos   couldn't eat much at all  at the end     Finally I collapsed  at home  Was told  my body was starving    Spent  a month in hospital     New diet  worked wonders   Has since  but quickly changed doctor after I got home    still  have problems  with food that I'm supposed to be able to eat    Bloat really badly   and painful gut    To scared to eat incase I get an attack      How do I over come the fear of eating  

[Scott Adams]

If you have a fear of eating you might start with preparing everything you eat yourself. By taking full control over your diet, including the shopping, it may help you deal with the anxiety you have that seems to be triggered when you eat. Seeing a therapist might also be helpful. 

[trents]

10 hours ago, Yvonne Pettersen said:

My doctor kept telling me there was nothing wrong with  me  I kept losing weight over a year   Dropped from 85 down to 55 kilos   couldn't eat much at all  at the end     Finally I collapsed  at home  Was told  my body was starving    Spent  a month in hospital     New diet  worked wonders   Has since  but quickly changed doctor after I got home    still  have problems  with food that I'm supposed to be able to eat    Bloat really badly   and painful gut    To scared to eat incase I get an attack      How do I over come the fear of eating  

@Yvonne Pettersen, welcome to the forum! Do you have either celiac disease or NCGS? you don't say.

[Yvonne Pettersen]

I'm a celiac    don't I know it  anything that my gut doesn't like  it let's me know painfully

[Always-Hungry-Kate]

Please forgive my posting yet another question, but this “nausea component” of being a celiac-disease patient still has me baffled. 

Of course, I keep looking-up this same question on the internet, but am not getting the answers I need.  When it comes to a newly-diagnosed celiac patient — or even if it’s someone who has been diagnosed months ago — what, exactly, is causing the nausea?  There must be something more to it, because all of the normal stomach-calming things I would eat and drink to get rid of this kind of sick feeling aren’t working. 

One daily Zofran pill is the only thing that’s really helping.  I can’t stay on that for life, right?

Yes, I know that this is probably all due to this new diet that I’m on.  I got that. The doctors keep telling me that.  What, exactly is causing it, when I’m still at least able to eat quite a few gluten-free things I always ate before?  Sure, I can’t have any more bread, muffins, rolls, that are made with wheat, rye or barley, but I’m still eating the grilled meat, the fresh fruit, fresh vegetables, the yogurt and the milk-protein drinks that I’ve been consuming for decades. 
 

Why is this stuff making me sick now?  I have had almost every kind of test that you can have to check on your entire endocrine system, digestive system, circulatory system , etc. . . . the doctors are all telling me it’s all fine.  And the chances of cross-contamination or my having accidentally consumed gluten would not make a difference in this case. Gluten never made me nauseous.  It quietly ruined my bones, but I was never this horribly nauseous for this long. 

The doctors themselves can’t even tell me what’s causing this.  Unbelievable.  Have any of you gotten some decent information about this?

 

[Scott Adams]

Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months.

Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal.

This article may be helpful:

 

 

[cristiana]

I have had bouts of nausea when I have accidentally ingested gluten, and when I was first diagnosed.  It was pretty miserable at first.  I've since concluded that gastritis-like symptoms related to gluten  is an issue for me.  Worth looking into the symptoms and if you think it could be an issue for, look up some of the gastritis threads in this forum.   Keep away from gluten first and foremost, but also at least in the short term avoid spicy, rich, fatty food, alcohol, caffeine and citrus.  Drink lots of water.  Chamomile tea is very soothing, as is ginger sliced into hot water, adding a splash of cold water before you drink it.  I find a very short course of omeprazole has helped in the past, or gaviscon.  Sleep with a raised pillow if you are getting acid reflux in your throat and make sure your stomach has time to rest well, so don't eat too late.  Small regular meals are best.  A good standby meal is chicken slow-cooked in water in a covered pot with herbs, potatoes and carrots.  When you eat it the ingredients should almost melt in the mouth.  Very easily digested, and can be blitzed to make a soup.

Cristiana

[Always-Hungry-Kate]

51 minutes ago, cristiana said:

I have had bouts of nausea when I have accidentally ingested gluten, and when I was first diagnosed.  It was pretty miserable at first.  I've since concluded that gastritis-like symptoms related to gluten  is an issue for me.  Worth looking into the symptoms and if you think it could be an issue for, look up some of the gastritis threads in this forum.   Keep away from gluten first and foremost, but also at least in the short term avoid spicy, rich, fatty food, alcohol, caffeine and citrus.  Drink lots of water.  Chamomile tea is very soothing, as is ginger sliced into hot water, adding a splash of cold water before you drink it.  I find a very short course of omeprazole has helped in the past, or gaviscon.  Sleep with a raised pillow if you are getting acid reflux in your throat and make sure your stomach has time to rest well, so don't eat too late.  Small regular meals are best.  A good standby meal is chicken slow-cooked in water in a covered pot with herbs, potatoes and carrots.  When you eat it the ingredients should almost melt in the mouth.  Very easily digested, and can be blitzed to make a soup.

Cristiana

Thank you for the insight.  The thing is, I never had reactions to gluten in the past, so even if I ingested it (somehow), I don’t have a visible reactions to it.  At least, I never did.  I’ve been eating bone-killing gluten for decades and was never this nauseous for this long.

After speaking to an assistant at the gastroenterologist’s office today (I don’t get to speak to the doctor unless I have an appointment; she relayed his message to me), I was advised to take 20 mg of famotidine per day to help with this.  That’s in addition to a once daily Zofran tablet.  
 

This definitely feels like it could be gastritis, but I don’t understand what could’ve caused it.  I never eat anything spicy, or especially sugary, nor do I eat a lot of citrus fruit.  That’s why I’m so frustrated.  Probiotic yogurt drinks seem to help a lot.  Also, plain yogurt.  But, you can’t exist on that every single day. 

I had one 10-ounce cup of coffee with milk and honey today and that was it for the caffeine I ingested.  The other thing that could possibly be causing this is maybe the carotene level in my blood?  My skin isn’t orange or anything, but the vitamin/mineral blood test I had done over a week ago showed a really high carotene level which didn’t make any sense to me.  It’s not like I am eating loads of carrots, sweet potatoes, or other foods that contain that substance.  But, I read somewhere that a very high-level of it can make you nauseous. 
 

About eating late: I find that I have to have something fairly “solid” before I go to bed, or I wake up during the night with terrible hunger pangs — i.e., something else I never experienced before this whole celiac nightmare started. 

[trents]

2 hours ago, cristiana said:

I have had bouts of nausea when I have accidentally ingested gluten, and when I was first diagnosed.  It was pretty miserable at first.  I've since concluded that gastritis-like symptoms related to gluten  is an issue for me.  Worth looking into the symptoms and if you think it could be an issue for, look up some of the gastritis threads in this forum.   Keep away from gluten first and foremost, but also at least in the short term avoid spicy, rich, fatty food, alcohol, caffeine and citrus.  Drink lots of water.  Chamomile tea is very soothing, as is ginger sliced into hot water, adding a splash of cold water before you drink it.  I find a very short course of omeprazole has helped in the past, or gaviscon.  Sleep with a raised pillow if you are getting acid reflux in your throat and make sure your stomach has time to rest well, so don't eat too late.  Small regular meals are best.  A good standby meal is chicken slow-cooked in water in a covered pot with herbs, potatoes and carrots.  When you eat it the ingredients should almost melt in the mouth.  Very easily digested, and can be blitzed to make a soup.

Cristiana

"blitzed"?

[cristiana]

Sorry - we say this in the UK, put food into a blender, or put a hand held blender into food, to make a puree.  Probably an new application of a word we used a lot in WWII, although I wasn't there at the time!😄

I am sorry as I am short of time so I can't read this thread properly, @Always-Hungry-Kate.  But certain foods affected me around the time I went gluten free (such dairy, oats, soy and corn) which prior to the time of my diagnosis had no affect.  Only when I went gluten-free.  It took a while for this to calm down, I can eat them all now.    

Have you been tested for Heliobacteria Pylori, a possible cause of gastritis?  

[Always-Hungry-Kate]

1 hour ago, cristiana said:

Sorry - we say this in the UK, put food into a blender, or put a hand held blender into food, to make a puree.  Probably an new application of a word we used a lot in WWII, although I wasn't there at the time!😄

I am sorry as I am short of time so I can't read this thread properly, @Always-Hungry-Kate.  But certain foods affected me around the time I went gluten free (such dairy, oats, soy and corn) which prior to the time of my diagnosis had no affect.  Only when I went gluten-free.  It took a while for this to calm down, I can eat them all now.    

Have you been tested for Heliobacteria Pylori, a possible cause of gastritis?  

Yes, the H. Pylori test was a part of the endoscopy I had (with biopsies taken) at the end of November.  When I got the results, the only things that were found other than the celiac was a slight hiatal hernia and inactive, chronic gastritis.

Immediately after the endoscopy, the gastroenterologist who performed it, met with me while I was in recovery.  He said that, except for those things, he had no idea why I had the (previous) horrific “hunger pangs” or the nausea that I still have now. 
 

Reasons why this is so frustrating; I just want to know what’s happening!  None of these doctors can tell me?!?  That’s why I keep asking that question in this forum.  Maybe there’s another person who was given a better explanation.  I know no one can tell me how long it will be before the nausea stops, but at least tell me why I have it now — almost all day, every single day. 
 

At least the crazy anxiety and horrific hunger pangs seem to be in the past, now (I hope).  If anyone has any insight about the nausea, I hope they add their comments here. 

[Maggieinsc]

16 hours ago, Always-Hungry-Kate said:

Please forgive my posting yet another question, but this “nausea component” of being a celiac-disease patient still has me baffled. 

Of course, I keep looking-up this same question on the internet, but am not getting the answers I need.  When it comes to a newly-diagnosed celiac patient — or even if it’s someone who has been diagnosed months ago — what, exactly, is causing the nausea?  There must be something more to it, because all of the normal stomach-calming things I would eat and drink to get rid of this kind of sick feeling aren’t working. 

One daily Zofran pill is the only thing that’s really helping.  I can’t stay on that for life, right?

Yes, I know that this is probably all due to this new diet that I’m on.  I got that. The doctors keep telling me that.  What, exactly is causing it, when I’m still at least able to eat quite a few gluten-free things I always ate before?  Sure, I can’t have any more bread, muffins, rolls, that are made with wheat, rye or barley, but I’m still eating the grilled meat, the fresh fruit, fresh vegetables, the yogurt and the milk-protein drinks that I’ve been consuming for decades. 
 

Why is this stuff making me sick now?  I have had almost every kind of test that you can have to check on your entire endocrine system, digestive system, circulatory system , etc. . . . the doctors are all telling me it’s all fine.  And the chances of cross-contamination or my having accidentally consumed gluten would not make a difference in this case. Gluten never made me nauseous.  It quietly ruined my bones, but I was never this horribly nauseous for this long. 

The doctors themselves can’t even tell me what’s causing this.  Unbelievable.  Have any of you gotten some decent information about this?

 

I would quit the dairy for now. Alot my symptoms cleared up when i did that well continuing to eat gluten while waiting for my endoscope. You never know.
 

 I reacted to a can of split pea soup which had dairy in it almost immediately w stomach bloating. I never put dairy or gluten in my pea soup but there it was when I pulled the can out of the trash in fine print NOT w the ingredients. 

[Always-Hungry-Kate]

1 minute ago, Maggieinsc said:

I would quit the dairy for now. Alot my symptoms cleared up when i did that well continuing to eat gluten while waiting for my endoscope. You never know.
 

 I reacted to a can of split pea soup which had dairy in it almost immediately w stomach bloating. I never put dairy or gluten in my pea soup but there it was when I pulled the can out of the trash in fine print NOT w the ingredients. 

Was thinking about trying that, but — as of this minute — plain yogurt and (especially) probiotic (dairy) drinks give me relief (at least for a little while during the day).  Also, because the celiac caused my recently-diagnosed osteoporosis, consuming a number of different dairy products is the quickest/easiest way for me to get the calcium and D that my bones really need right now.  

[Scott Adams]

16 hours ago, Always-Hungry-Kate said:

After speaking to an assistant at the gastroenterologist’s office today (I don’t get to speak to the doctor unless I have an appointment; she relayed his message to me), I was advised to take 20 mg of famotidine per day to help with this.  That’s in addition to a once daily Zofran tablet.  

Be sure your meds are gluten-free. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication:

To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area.

• https://dailymed.nlm.nih.gov/dailymed/ 

 

[Yvonne Pettersen]

On 12/19/2023 at 6:46 AM, Scott Adams said:

If you have a fear of eating you might start with preparing everything you eat yourself. By taking full control over your diet, including the shopping, it may help you deal with the anxiety you have that seems to be triggered when you eat. Seeing a therapist might also be helpful. 

Hi    Scott   I do all my own food   live by myself so that's not a problem    some things I can eat  once a week  but no more than that      My system needs a week  to get over that particular food     even though it's gluten free     but  I bloat something terribly  after    and painful as well      The reasoning behind  the fear    Got to a stage my fear is built in     Never eat out    even if visiting others        You mention some yogurt    that might help    I'm in New Zealand   so  what  type would you suggest  to have    Find myself  a bit short tempered  sometimes with myself   to    Been celiac  for 7 years    Crept up on me    

[Maggieinsc]

2 hours ago, Always-Hungry-Kate said:

Was thinking about trying that, but — as of this minute — plain yogurt and (especially) probiotic (dairy) drinks give me relief (at least for a little while during the day).  Also, because the celiac caused my recently-diagnosed osteoporosis, consuming a number of different dairy products is the quickest/easiest way for me to get the calcium and D that my bones really need right now.  

You won’t know if that is what’s causing it as long as you eat it. It’s very common for celiacs to be diary intolerant.