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Biopsy question

Di Wallace
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Di Wallace Rookie
Di Wallace
Posted

I have had a blood test for coeliac which came back 26U/ml positive range is >10. Have seen consultant who has arranged a biopsy. 26 does not seem that higher number, as my Grandson's was 124. Am worried the biopsy will show nothing, and I will be left In limbo. Anyone else had this experience 

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RMJ Mentor
RMJ
Posted

Blood test numbers don’t necessarily correlate with the degree of damage.

Also, was your blood test run by the same lab as that of your grandson?  The units used to report celiac blood tests aren’t standardized but are developed by each test manufacturer. Numbers between labs with different normal ranges can’t be compared. 

Scott Adams Grand Master
Scott Adams
Posted

I would recommend that you get the endoscopy to confirm your diagnosis. Your other choice would be to just go gluten-free if you can stay on the diet with out a diagnosis. Since it runs in your family you have higher odds of also having it.

Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.

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