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Fatigue

natalieadams
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natalieadams Newbie
natalieadams
Posted

I was diagnosed with celiac disease two months ago and I’ve gotten gluten-free immediately. I’ve been researching and studying trying not to do cross contamination about a week ago. I got very sick and went to bed and slept for six days terrible fatigue, and stomachache. I have no idea if that is withdrawal from gluten or if I accidentally got gluten and had a terrible reaction. Has anybody else had anything like this, I am still weak and tired but getting stronger every day thanks for all your help 

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trents Grand Master
trents
Posted

Welcome to the forum community, @natalieadams! Are you sure it isn't the flu or COVID?

natalieadams Newbie
natalieadams
Posted
  • Author

I was in the er they said no it was not

thank you 

Scott Adams Grand Master
Scott Adams
Posted

It's hard to say what could have caused you to feel bad after going gluten-free, but the most likely culprit would be getting some gluten contamination (do you eat out in restaurants--this is a common source of contamination), or gluten withdrawals, which most celiacs get to some degree after giving up gluten.

This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):

 

 

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    • trents
      Newly diagnosed

      By trents · Posted

      As Plumbago mentioned, bleeding in the upper end of the GI track tends not to show up as bright red in color because it gets acted upon by the digestion process and more thoroughly mixed in with food residues that are passing through the intestines.
    • plumbago
      Newly diagnosed

      By plumbago · Posted

      @Bronwyn W Working with your medical provider, you could do a complete blood count test. If you were bleeding say from an ulcer in the stomach (and let's hope not), your red blood cells could be low and your hemoglobin low as well. Your stools may show up as the proverbial "dark and tarry," indicative of a bleeding site further away from the anus. Basically, you may be anemic. Your heart may be beating extra fast as a way to compensate for the decreased number of blood cells, your oxygen saturation may be lower than normal on a pulse oximeter, and so on. But talk to your doctor.
    • Bronwyn W
      Newly diagnosed

      By Bronwyn W · Posted

      Thank you for this insight. I have had rectal bleeding after glutening and subsequent constipation (+ IBS-C) and always attributed it to internal hemorrhoids (diagnosed). What I wasn't aware of is the possibility of bleeding further up the digestive tract. Please can you elaborate on the causes and symptoms to watch for?
    • Scott Adams
      Still unsure.....

      By Scott Adams · Posted

      Be sure to be eating gluten daily until all of your celiac disease tests are completed (at least 2 slices worth of wheat bread per day for at least 6-8 weeks before any blood tests, and 2 weeks before an endoscopy).
    • knitty kitty
      4 Years and very little progress

      By knitty kitty · Posted

      @maylynn, No, I took over the counter thiamine supplements, thiamine hydrochloride, Benfotiamine, and TTFD (tetrahydrofurfuryl disulfide).  My doctors were not very knowledgeable about nutrition and vitamins, and they missed my symptoms being connected to vitamin deficiencies.  I studied nutrition before earning a degree in Microbiology because I wanted to know what vitamins were doing inside the body.  My doctors just prescribed pharmaceuticals to cover the symptoms of poor health due to malabsorption of nutrients. We need more thiamine when we're physically ill, physically active, emotionally stressed and work outside in hot weather.  Thiamine works in concert with the other B vitamins, so all should be supplemented together.  Vitamin D needs to be activated by thiamine.  Vitamin D helps regulate the immune system.   Don't take Thiamine Mononitrate because it is not bioavailable.  The body has difficulty absorbing and utilizing it.   Do keep us posted on your progress!
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