Hi jmartes, In 1994, when you were in your 30s you were diagnosed with Celiac Disease at Kaiser. You went on a gluten free diet and still avoid eating wheat, barley and Rye. It seems that you recovered and you no longer have active Celiac Disease at age 54. If you started eating the gluten grains again you might again get back the symptoms and problems you had when you were in your 30s. The only cure for Celiac Disease is being strictly gluten free.  Your medical providers are correct in telling  you that you do not have active Celiac Disease. Do you understand that? You may have some other developing health problems and I can write  more if you  answer the question.                         the only cure for celiac disease is being  gluten gree.

Celiac is too common to be "rare" under the standard definition. Does this group do anything with Celiac?

😂

Your new mayor is going to fix all that and make groceries free to boot I hear!

Forgot to forward this...just incase you're interested in joining this group... March RDLA Webinar Thursday, March 26 | 2:00pm - 3:00pm ET Click Here to Register Join us for a RDLA Webinar this month. Attendees will hear updates from recent rare disease advocacy activities during and following Rare Disease Week and an overview of appropriations priorities and recently introduced rare disease related bills. Agenda Recent Rare Disease Advocacy Activities Jamie Sullivan, EveryLife Foundation for Rare Diseases FY 2027 Appropriations Process Review Dylan Simon, EveryLife Foundation for Rare Diseases Genomic Answers for Children’s Health Act, H.R. 7118 Victoria Gemme, Leavitt Partners  Medical Foods and Formulas Access Act, H.R. 5684/S.3304 Sarah Chamberlin, Flok Health