Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can Celiac disease be related to Interstitial Cystitis.

mswhis
 Share
Go to solution Solved by trents,

Recommended Posts

mswhis Newbie
mswhis
Posted

I have recently been diagnosed with Celiac disease. I also have RA & Interstitial Cystitis.  I have tried many meds & treatments for the cystitis without relief & now wondering if the inflammation in my bladder could be related to my Celiac. I have started a gluten free diet hoping that this may relieve my symptoms.  I’m just getting started in this disease & would appreciate any comments & advice. Q

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Solution
trents Grand Master
trents
Posted
  • Solution
(edited)

Welcome to the forum, @mswhis!

They may be related in the sense of both are autoimmune disorders and autoimmune disorders tend to cluster. If you have an autoimmune disorder, you are likely to develop others. But I would hesitate to say there is a cause and effect relationship between the two or that gluten could be contributing to your IC. It is certainly possible, however, as we keep adding to the list of known symptoms/medical conditions related to celiac disease which is a list of over 200 symptoms and conditions now.

Edited by trents
mswhis Newbie
mswhis
Posted
  • Author

Thank you for your information. I am just beginning my journey & looking for answers. 

trents Grand Master
trents
Posted

This article might be helpful to you as you begin your gluten free journey.

 

cristiana Veteran
cristiana
Posted

Hi @mswhis and welcome to the forum!
 

I don't have IC but have suffered with standard cystitis on and off for years.  I have found D Mannose helpful - have you tried it?   I know that some IC sufferers have said that it has been beneficial to them.

mswhis Newbie
mswhis
Posted
  • Author

Yes, I have. Unfortunately it did not help me. Thank you for your input. 

cristiana Veteran
cristiana
Posted

That's a shame, but on another tack - if you are coeliac with digestive issues, such as constipation, you may find that as they settle that might help somewhat. 

I've just had a quick read online and I see, for example, that constipation can exacerbate IC pain.

https://www.healthline.com/health/constipation/interstitial-cystitis-and-constipation

I suffer from pelvic pain and any digestive issues can greatly affect that.   It is like the extra pressure aggravates the nerves.  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mswhis Newbie
mswhis
Posted
  • Author

Thank you. Constipation is not a big problem, but have irritable bowel issues, more diarrhea. The burning chronic pain in my bladder is unbearable.  I also have increased pressure in my pelvis. 

cristiana Veteran
cristiana
Posted

Well, @mswhis I too have IBS, and I think bloating has a similar effect to constipation.  Any changes that can lessen that internal pressure should help.  Do you have pain in your sacroiliac region, or along the pudendal nerve?  I have that.  But it does seem to be a lot better now than it was several years ago when I first started the gluten-free diet.

mswhis Newbie
mswhis
Posted
  • Author

I do have chronic pain in my back & sciatic nerve. The IC causes great pressure & pain In my pelvis. I am hoping that gluten free diet will reduce the inflammation & therefore, reduce my pain. 

Scott Adams Grand Master
Scott Adams
Posted

Here are two older articles we've done on this topic which might be helpful:

 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,959
    • Most Online (within 30 mins)
      7,748
    Theresa Bush
    Newest Member
    Theresa Bush
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Waterdance
      Diagnosed gluten allergy but not Celiac

      By Waterdance · Posted

      Thanks. I believe I can trace my gluten and milk allergies to specific traumas in my life. I've had some quite severe traumas over my lifetime. Mostly in my history I was so out of sorts surviving that diagnosing gluten sensitivity/allergy/celiac was just not on the table for such a survival mode existence. Vitamin D makes sense too. Now I take very good care of myself, I have a rock solid stability and I do take 1,500 IU of D daily. It's more obvious to me now what's causing problems and so most of the time I only eat protein and vegetables. I cheat sometimes. I end up paying for it though. 
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Thanks everyone for replying. Actually made a mistake when stating the lab range for results, should have been 0.0-7.0 not 0.7 u/ml. She was 19 u/ml. I’m afraid science bamboozles me especially trying to understand all the IgA’s and other bits!!!!Regular blood results like full blood count etc not so much!!!!
    • John767
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By John767 · Posted

      DiGiornos gluten free pizza at one point was  made from a dough derived of wheat starch...yet they were able to call it gluten free probably because it came in at under 20ppm for gluten.  Apparently the recipe was changed and the pizza not longer contains a wheat starch derived crust.  As for the Heinz dressing, it could be an issue with cross contamination with wheat barley and or rye somewhere during the production process.  If you read how Frito-Lays (on their website) designates items gluten free, you will understand the variances in the lengths companies go through in deciding when to put on a gluten free label and when not--Frito-Lays is pretty solid.  Also being in Canada, they may follow a common international rule of less than 20ppm of gluten is all that is required to be labeled gluten free regardless of the grains used to manufacture the product (common in Europe, Central, and South America)...it took a couple of really rough mornings after consuming some Dura Damm (labeled as gluten free outside the USA) for me to realize that it was a gluten reduced beer. Same with Mahou Beer which actually says in Spanish "suitable for celiacs", unfortunately it is not suitable for this celiac and of course the following day was really rough as well...really take the time to read the ingredients because had I read the ingredients of  Mahou's "suitable for celiacs" "sin gluten" beer I would have noticed that it was made from cabada (Spanish for barley)...hope this helps...        
    • Wheatwacked
      Blood results

      By Wheatwacked · Posted

      Here is an article that explains test results and what they mean.  Testing for Celiac Disease is so elusive, any positive, unless a lab error false positive, is evident of Celiac.  It is easier to be in denial, tnan committing to gluten free.  Like not believing a pregnancy test.  Denial will lead to more suffering. Are You Confused About Your Celiac Disease Lab Results?
    • Wheatwacked
      Diagnosed gluten allergy but not Celiac

      By Wheatwacked · Posted

      I believe that what triggers acute Celiac Disease is vitamin D deficiency.  When we have stress it depletes our already low vitamin D, (40% to 60% of us in the industrial world are deficient) allowing the Celiac genes and the immune system to run amuck.  At 93 ng/ml 25(OH)D blood level, the last time I accidentally glutened myself, all that I got was a runny nose and burning eyes three days later.  It took 8 years, taking 10,000 IU a day to get to this blood level. Vitamin D Is Not as Toxic as Was Once Thought Possible Role of Vitamin D in Celiac Disease Onset So true.  If I am working on something I'm enjoying, I put off eating because after I eat I mostly feel worse.  Not so much anymore, but it's been a life long struggle with the anorexia.  M&M Peanuts is a good go-to snack.  For the dairy Kosher Dill pickles, brine fermented, not vinegar quick pickles (vinegar kills the bacteria), will repopulate your gut with Lactobacillus that exretes lactase, the reason adults are not lactose intolerant.  Also, grassfed milk has less omega 6 fatty acids than commercial grain fed dairy. Grassfed omega 6:3 ratio is 1:1; Organic milk 3:1; Commercial Dairy 5:1.  Omega 6 causes inflammation.  The typical western diet is 14:1.  Wheat flour is 22:1.  A good reason not to eat gluten.  Here is a list: High omega-3/low omega-6 I find it interesting that the new diagnosis of Non Celiac Gluten Sensitivity was created 10 years after Norman Borlaug, "the father of the Green Revolution" and our modern grain crops, received the Nobel Peace Prize in 1970.  
×
×
  • Create New...