Can food allergies like milk and soy flatten villi?

[knitty kitty]

Some people react to the Casein in dairy the same as to gluten, like me.  I avoid dairy avidly because I get ataxia so bad.

Some Celiac people produce tTg 6 antibodies in response to gluten or casein.  tTg 2 antibodies are what blood tests for Celiac measure.  tTg 6 antibodies are also found in Alzheimer's and Parkinson's diseases, contributing to ataxia.  Have you been checked for tTg 6 antibodies?  

P. S.  Can you share your B vitamin test results?

Edited January 14, 2025 by knitty kitty
Added Post Script

[Lotte18]

I have never been tested for tTg 6 antibodies but I will certainly do that next time I'm at the doc's.  Maybe there's a home test kit for that?  I drink lactose free milk and seem to be ok so I'm probably not a casein case but...who knows?!

[knitty kitty]

Pancreatic elastase is a digestive enzyme that requires Thiamine Vitamin B 1 to be produced.  Thiamine is needed to make insulin, too.  Thiamine, Niacin B 3, and Pyridoxine B6 are needed to make digestive enzymes and turn carbohydrates, fats and proteins into energy for the body, and for repair and healing of the body.  The Gluten free diet can be low in the eight essential B vitamins.  Gluten free processed foods are not enriched with vitamins and minerals like their gluten containing counterparts.  Supplementing with the water soluble B vitamins can ensure you're absorbing sufficient amounts of B vitamins to keep the body healthy.  Benfotiamine is a form of thiamin that helps heal the digestive tract.  Benfotiamine and Vitamin D help to reduce inflammation and calm immune responses, so if you are accidentally exposed, your autoimmune response might not be so bad.

Supplementing with the B Complex vitamins is beneficial while healing.  Have you talked to a nutritionist?

[Deanne jones]

Hi Kitty, thank you for your e mail,  I have seen a nutritionist who seemed to be happy with the food diary I had been keeping and nothing was mentioned about extra vitamins, and I’m still using milk etc .

The steroids seem to be working and everything is functioning as it should
however,  the course of tablets finish at the end of February and I have an appointment with the consultant early April probably followed by another endoscopy, as far as I’m aware I have not been tested for vitamin B and will definitely discuss it with the doctor on my next visit.

 

 

 

[Matt13]

Hi knitty kitty, Scott and all,

Thanks for kind words and asking!I will def. talk about histamine intolerance  on my next visit to gastro doc.
My doc.gastro says that lactose or casein is very unlikely to create marsh 3b histology like gluten in adults in intestines. (that was previous question for Scott)
Regarding my last EGD the villy was OK so refractory is out of the question based on my talk with dr.
If Scott is right and there are so many intolerance in food for celiac what is left to eat?? And now histamine?
I mean what should i eat?

Maybe gastritis is doing all this trouble?

Thanks

Kind regard
 

 

[Scott Adams]

I agree with your gastro, the most likely culprit is gluten causing your Marsh 3b damage. 

Keeping a detailed food diary and eliminating foods like oats, milk/casein, soy, corn, etc., one at a time, then adding them back after a few weeks might help you pin down additional food intolerance issues. Again, depending on how long you've been gluten-free some additional food intolerance issues may go away after your gut heals, but not always.

[knitty kitty]

@Matt13 

I understand where you're coming from.  Seemed I was reacting to all sorts of foods there for a while, but a low histamine Paleo diet really helps.  

We make histamine in our bodies as a useful  neurotransmitter (causing alertness), and also as a response in the immune system.  Histamine is made and released by Mast Cells.  Mast Cells can become hypersensitive to stimulus and release histamine easily, like having an itchy trigger finger.  Mast Cells need Thiamine Vitamin B 1 Benfotiamine in order to NOT release histamine.  Mast Cells that do not have sufficient Thiamine release histamine easily and at the slightest provocation.  

Plants and other animals make histamine, too.  By removing high histamine foods from the diet, more histamine can be removed from the body.  We need Pyridoxine, Vitamin B 6, Vitamin C, Cobalamine, B12, and Thiamine B1 to make Diamine Oxidase, an enzyme that breaks down histamine.  If we don't make sufficient DAO ourselves, DAO supplements are available over-the-counter.  

Removing Nightshades (tomatoes, potatoes, eggplant and peppers) was very helpful.  Nightshades contain alkaloids that cause Leaky Gut Syndrome wherein large molecules of food can pass through the walls of the intestines into the bloodstream, traveling to other organs and structures where they promote inflammation.  

After a few days on the low histamine Paleo diet, the Autoimmune Protocol diet, I started feeling better.  My diet was really restricted, but I felt so much better, I stuck with it.  Eating foods that were easy to digest and low in histamine allowed time for healing.  After a few weeks, I was ready to add one food at a time (two week period) back into my diet.  I had setbacks when I ran into a food my body didn't like, and had to go back to the start, but it was worth doing.  Celiac is a marathon, not a sprint.  

Blood tests are not accurate measurements for various B vitamin deficiencies.  Vitamin levels in the bloodstream are different from the amount stored inside cells inside organs where they are utilized.  You can have symptoms of a deficiency yet have "normal" blood levels.  The best way to test for a B vitamin deficiency is to take it and look for health improvement.  B vitamins are easily excreted because they are water soluble.  Malabsorption in Celiac can affect all the vitamins and minerals our bodies need, not just one.  Do talk to your doctor and nutritionist about supplementing while healing.