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Falling Apart :(


RoseNNJ

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RoseNNJ Apprentice

Hi Everyone,

Today I get the Biopsy reults. I have been to my regular Doctor twice in the last week and a half. I had blood in my urine. Turns out, I have a Urniary Tract Infection. Well, being on the antibiotic almost a week, I was still having pains. They were so bad yesterday I called out of work. After seeing him again yesterday he is sending me for an ultra sound and catscan for Kidney Stones. A co-worker told me to drink a 6 pack of beer. I said ummm I can't drink beer. People don't get it! I have never been to see a doctor this many times in my entire life! I am still having malabsorbtion issues, so I am now on 2 perscription vitamins. Pleaseeee tell me I will be back to myself soon. Thanks for Listening


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Guhlia Rising Star

You are not a hypochondriac. You are not weak. You are not weird. You are not a nuisance. You are not being difficult. You are not a freak. You are not alone. Stay strong. It will all be over soon. And the best part is, guess what??? WE get it!!! WE understand!!! WE are here for you!!!

plantime Contributor

Your coworker recommended the beer because it flushes the kidneys. What I recommend is cranberry juice and tea. Not mixed, just drink some each day. The cranberry juice creates a hostile environment in the bladder for bacteria, and the tea is a diuretic, it flushes out the kidneys. However, wait until after you know about kidney stones, as flushing the kidneys with stones can be bad. You will be back to yourself soon, just breathe deep, and persevere!

jerseyangel Proficient

Hi Rose--It will all work out! You just have so much to deal with right now all at once. Sending good thoughts and a hug your way :)

Ursa Major Collaborator

I agree with the cranberry juice (and take cranberry pills as well). Also, take pro-biotics (acidophilus), my homeopath says that they are very helpful to get rid of bladder infections. I'd never have thought of that myself!

Carolita Rookie

Hello Rose. I'm new to the forum and feeling a little bit confused myself but I hope you feel better soon.

Becareful with the antibiotics, they kill the good bacteria in our intestines and when the good bacteria dies it leaves room for yeast to grow. Acidophilus is a good recommendation to avoid that.

Carol :)

RoseNNJ Apprentice

Well as I suspected, the GI said everything was good on the Biopsy. He said there was no way it was Celiac. So he said it was okay to eat Gluten. Like I am going to listen to that! My other dr said I have the antibody. Go figure! Well now I have H Pylori, which was found with the endoscope. Antibiotics for 2 weeks. I am going to wait till Monday, I need a few drinks this weekend!

Thanks for all your support, Hugssss


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key Contributor

Rose,

See how the diet makes you feel and maybe once you have the H. Pylori gone you will feel better. It will get better and sorry you aren't feeling well.

Monica

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    • rei.b
      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
    • knitty kitty
      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
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      @Colleen H, I have had similar reactions and symptoms like yours.  I started following the low histamine Autoimmune Protocol diet developed by a doctor with Celiac Disease herself, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, is very helpful in understanding what's going on in the body.   Not only do you have antibodies attacking the body, there are mast cells spreading histamine which causes inflammation.  Foods also contain histamine or act as histamine releasers.  Our bodies have difficulty clearing histamine if there's too much.  Following the low histamine AIP diet allows your body time to clear the excess histamine we're making as part of the autoimmune response, without adding in extra histamine from foods.  High histamine foods include eggs, processed foods and some citrus fruits.  The AIP diet allows meat and vegetables.  No processed meats like sausage, luncheon meats, ham, chicken nuggets, etc. No night shades (potatoes, tomatoes, peppers, eggplant).  No dairy.  No grains.  No rice.  No eggs.  No gluten-free processed foods like gluten free breads and cookies.  No nuts.  No expensive processed gluten-free foods.  Meat and vegetables.  Some fruit. Some fruit, like applesauce, contains high levels of fructose which can cause digestive upsets.  Fructose gets fermented by yeasts in the gastrointestinal tract.  This fermentation can cause gas, bloating and abdominal pain.   The AIP diet changes your microbiome.  Change what you eat and that changes which bacteria live in your gut.  By cutting out carbohydrates from grains and starchy veggies like potatoes, SIBO bacteria get starved out.  Fermenting yeasts get starved out, too.  Healthy bacteria repopulate the gut.   Thiamine Vitamin B 1 helps regulate gut bacteria.  Low thiamine can lead to SIBO and yeast infestation.  Mast cells release histamine more easily when they are low in Thiamine.  Anxiety, depression, and irritability are early symptoms of thiamine insufficiency.  A form of thiamine called Benfotiamine has been shown to promote intestinal healing.   Thiamine works with the seven other B vitamins.  They all need each other to function properly.   Other vitamins and minerals are needed, too.  Vitamin D helps calm and regulate the immune system. Thiamine is needed to turn Vitamin D into an active form.  Thiamine needs magnesium to make life sustaining enzymes.  Taking a B Complex and additional Benfotiamine is beneficial.  The B vitamins are water soluble, easily lost if we're not absorbing nutrients properly as with Celiac Disease.  Since blood tests for B vitamins are notoriously inaccurate, taking a B Complex, Benfotiamine, and magnesium Threonate, and looking for health improvements is a better way to see if you're insufficient.   I do hope you will give the low histamine AIP diet a try.  It really works.
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