Reportable Disease

[Jmartes71]

I am actively dealing with a ray of issues, my skin, eyes and digestive even though not eating wheat.Menopuase has activated so much right now, considering its getting worse with my health. I have learned so much thanks to this website.I wasn't properly told of my celiac disease which was confirmed by colonoscopy and endoscopy in 1994 the same year I gave birth to my first son, my tolerance level was horrible. After being diagnosed and staying away from wheat continued problems. My chiropractor at the time in 2007 had my blood work sent off and turns out I have more food allergies. I told my primary of my celiac disease in 2000 and continued to see that doctor up until May if this year 2025 considering my celiac disease was ignored, disregarded and what Im currently going through and been through. I assumed my celiac disease was " registered " at the time in 1994 just as pregnancy and other ailments are reported. I was shocked to learn that its not a mandated reportable disease not documented by the state from hospitals which I for one think it should be considering all the medical gaslighting im dealing with which is causing depression. Im told not worry about other, well I am and its NOT right.It needs to be documented so others don't suffer and go through this nightmare. Im seriously ready to go down to the mayors office and make some noise. Thoughts?

[Scott Adams]

Your frustration is completely valid and speaks to a massive, systemic failure in how chronic autoimmune conditions like celiac disease are managed and tracked. You are absolutely right—it is not right. While reportable diseases typically refer to acute infectious outbreaks that require immediate public health intervention (like measles or foodborne illness), the spirit of your point is crucial: the lack of a centralized registry or formal tracking for celiac means patients are often left to navigate a maze of medical gaslighting and ignorance on their own, exactly as you've experienced for decades. This dismissal has real and devastating consequences on mental and physical health. Channeling your anger into advocacy is a powerful and necessary response. Starting with local representatives, your state's health department, or patient advocacy groups (like Beyond Celiac or the Celiac Disease Foundation) to lobby for better physician education and systemic recognition could be a impactful way to turn your painful experience into a force for change, so others don't have to suffer the same nightmare. You are not alone in this fight.