Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rosacea--now I've Got It

jenvan

By jenvan
in Related Issues & Disorders

Recommended Posts

jenvan Collaborator
jenvan
Posted

Anyone else have rosacea? If so--have you identified any triggers, causes, good treatments etc? Just got diagnosed with it yesterday...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 81
  • Created
  • Last Reply
jerseyangel Proficient
jerseyangel
Posted

Hi Jen--I was diagnosed with it in 2000. I tried metrogel, but honestly didn't see much of a difference. I eased up on my skin care--stopped using Proactiv because of the little cleansing grains. I now use a facial cleanser by MyChelle that I get at Whole Foods. They use very good, soothing natural ingregients--and I called them and they do not use gluten in anything. Heat is a trigger for me--

jenvan Collaborator
jenvan
Posted
  • Author

Heat like in a hot shower or heat like in summer? My doc gave me a prescip for metrogel...I think I used it once years ago. We'll see I guess. Has yours ever gotten significantly worse or does it stay about the same? I'm worried its going to get bad...stupid to worry I know...but I'm like, at least if I'm not feeling great I can look great!! Thanks Patti :)

jerseyangel Proficient
jerseyangel
Posted
Heat like in a hot shower or heat like in summer? My doc gave me a prescip for metrogel...I think I used it once years ago. We'll see I guess. Has yours ever gotten significantly worse or does it stay about the same? I'm worried its going to get bad...stupid to worry I know...but I'm like, at least if I'm not feeling great I can look great!! Thanks Patti :)

Frankly, mine was worse before I improved my diet--I believe that in my case, cutting dairy foods made a difference. It was worse before--the diet and the mild cleansing (avoid sodium laurel sulfate and other harsh things) have definately made a difference. It's not bad at all now--greatly improved. Since you already practice these things, perhaps the metrogel will make a difference for you. (and thinking about it, maybe would now for me, too) I remember that it said it will not cause immediate results, so give that some time. I meant heat as in summer--a hot shower dosen't have any effect on mine. I have to be very careful of the sun. I would suggest always using sunscreen on your face. California Baby has a nice, light one for sensitive skin--they sent me a sample in my last order! Don't worry--I'm sure you will be able to get it under control :)

jenvan Collaborator
jenvan
Posted
  • Author

well i already had cut out the sodium laurel sulfates and such, so that's good. thanks Patti!!

lonewolf Collaborator
lonewolf
Posted

I was diagnosed with Rosacea about 4 years ago (also have psoriasis), had it off and on for 2 years and now it has gone away. I got REALLY strict with my diet (eggs seem to be a trigger for me) and stopped using sunscreen with zinc oxide (also seems to have triggered it) and I haven't had it reappear. Heat - hot showers and too much sun triggered it too. Oh, and the only thing I use on my face is organic coconut oil - sounds greasy, but it's not if you don't use too much. Coppertone sunscreen didn't seem to bother my skin, but I do a layer of coconut oil first.

jenvan Collaborator
jenvan
Posted
  • Author

lonewolf--

thanks... i also have psoriasis...ever notice any overlap? eggs and hot showers... my dh says my showers are too hot...will have to explore and see :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lonewolf Collaborator
lonewolf
Posted
lonewolf--

thanks... i also have psoriasis...ever notice any overlap? eggs and hot showers... my dh says my showers are too hot...will have to explore and see :)

I'll be curious to see if you discover a connection with eggs and rosacea. I've been cheating a little bit lately with them and my psoriasis has flared up big time. It was almost gone - with the help of Dovonex and now my arms are covered again and inside my ears. Until you reminded me of the rosacea I had forgotten about it - I hope it doesn't flare up too. It seems like when I had the rosacea my psoriasis was really bad. I have it everywhere you can imagine and a few places you probably can't :huh: . If I had the willpower, I'd go back to fish, rice, fruit and vegies - the only diet that cleared my skin up 100%.

mamaw Community Regular
mamaw
Posted

I've had rosacea for about 42 years now!!!!!!I have it on my upper torso not just the face.I had acne as a teenager and also as an adult.I have the spider veins and alot of scarring of the cheeks, large pores on nose. I would get so red that people asked if they could call an ambulance for me as they thought I was having a heart attack--- then some thought I was an alcoholic because I stayed red all the time......I would actually get burned from the redness. There are some good things out there that helps but everyone responses differently to the products. I know one thing that alot of us wash our face with is or was since it is discontinued by mfg now . It is aveeno creamy baby cleanser. I have about twelve bottles of it if you want to buy some from me .....one thing is do not use soap and scrub your face... I have tried several prescribed meds but none worked for me....I started to use the reg. strength Cutanix with great results. Some wash the face with the dove wash cloths. There is a real good support group for rosacea. I haven't been on it for several years as I finally got mine under control most of the time. Once I started taking thyroid med, and went gluten-free I've been the best I've ever been.Once in awhile I get one pimple and a bit red but nothing like I used to..I can't remember the name of the stuff that also helped me alot (brain fog now) but it was expensive and it came in two round circles one beige and the other tan in color and it got me on a recovery mode. Man I wish I could think og the name of it. I still have them but the name isn't on them.

Other things are staying out of the sun and wear sunscreen all the time.Also wear sunglasses because rosacea also effected my eyes.

My dad had psorasis and rosacea(not formally dx'd) and I now believe he had celiac's when I think back on his medical history.Parkinson's too, bowel problems!!!!! It seems like we all are in a pattern of sorts...

I know you watch what you eat but stay away from fried foods.At first it seems everything you put in your mouth triggers rosacea. Probiotics are good .......

I also flared up when I get excited or when I'm talking face to face to a person I turn beet red after a short time so try to stay calm, alot of rest.

My daughter has a beautiful complexion but has just the rosy cheeks of rosacea for about 20 years now she is getting the spider veins on her cheeks. She used to be a model in N>Y> in her younger days before the real world of a husband and kids!!!!!

Rosacea gets alot of people depressed including me as I hated my face. I only have one picture where my face is not beet red.When I look back on the pics I can see that people ask if I was having a heart attack ....

I know when my Dad passed away I got so upset and my face was so hot and red for months after.

Sorry I was a bearer of bad news on this issue. celiac's can make me sick but rosacea took away my self-asteem.........I detest them both...

mamaw

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I have mild rosacea--had rosy cheeks all my life, and have just started to notice tiny veins in my cheeks. Hot showers also give me a temporary rash on my chest.

I've never tried anything for it, and never thought of the dietary connection. Probiotics sound like a good idea--I'll try that. I hate to hear that eggs might be a trigger-I eat one every day for breakfast. :huh:

Mamaw. does the Aveeno have oatmeal in the ingredients list? Would that trigger reaction in a celiac with DH history?

Judyin Philly Enthusiast
Judyin Philly
Posted

Jen, how did I miss this..so sorry..

how are your sinuses?? are you feeling any better with that?

Judy in Philly

jenvan Collaborator
jenvan
Posted
  • Author

Liz-

You know what made me curious?? My doc mentioned and I read also, that steriods (as in treatment for psoriasis) can cause rosacea. Interesting...I wonder if my meds may have helped trigger this rosacea...

Mamaw-

I understand.... I told my mom, well if I feel crappy on the outside at least I can not look crappy too! :) These 'mysterious' types of illnesses/syndromes drive me crazy--no one knows exactly what causes them, how to treat or get rid of them really...I get tired of "trial and error!" Maybe I will try one of the online rosacea groups. Spider veins--I have one on my face...no one really notices with makeup, but ah...get them bad on my legs. I'm like, uh, can I at least be out of my 20s before I start getting these?? I hope you can find some things to help relieve your rosacea signs, and help lift your esteem--I know that can be hard to do...

Judy--

Feeling better, but still stuffy etc. Not on antibiotics... Did I tell you I have an appt with a new allergist to get tested and start all over again on April 17th? I am really eager to see what we find.

jerseyangel Proficient
jerseyangel
Posted

Jen--I had never heard that steroids had anything to do with rosacea. I took steriods many times--oral as well as injected. Interesting....

Judyin Philly Enthusiast
Judyin Philly
Posted

I'm so glad your feeling better but still stuff??? :blink: shucks..well maybe your imume system is starting to kick in so you don't need the antibiotics..wouldn't that be nice...

glad your seeing a new allergist on the 17th..i'll be keeping my fingers and toes crossed for ya.

maybe you'll get a new one with answers who sees you as a 'whole person' like my last one did. :)

Judy--

Feeling better, but still stuffy etc. Not on antibiotics... Did I tell you I have an appt with a new allergist to get tested and start all over again on April 17th? I am really eager to see what we find.

lonewolf Collaborator
lonewolf
Posted
Liz-

You know what made me curious?? My doc mentioned and I read also, that steriods (as in treatment for psoriasis) can cause rosacea. Interesting...I wonder if my meds may have helped trigger this rosacea...

Interesting. I knew that there was a reason I avoid ALL medication now. I haven't used any steroids for quite a while for my psoriasis - maybe that's why the rosacea went away. And I've used a LOT of probiotics. My psoriasis is still worse though - I'm sticking to fruits, vegies and lean meat today until I clear my body of any trace of eggs or anything else. I wish I had the willpower to do a 3 day fast - that usually helps too. (Although it's hard to fast while you're on jury duty).

cgilsing Enthusiast
cgilsing
Posted

Hi Jen!

I've never been diagnosed with Rosacea, but I'm pretty sure that's what it is......my grandma had it too....For me it's wine that triggers it the most, but hot showers can do it too. And once I was eating a fruit salad when it flared up.... I only get about half way through a glass of wine when I start looking splotchy :rolleyes: For me avoiding the trigger takes care of it....too bad too because I like wine!! :P

jerseyangel Proficient
jerseyangel
Posted

You know? I haven't had a drink in so long now, that I forgot. Wine also is a trigger for me. I get very red and hot from one cheek straight across to the other.

mamaw Community Regular
mamaw
Posted

Steroids definately cause great problems when you have rosacea. Also make-up also clogs the pores and can cause flare-ups. I too when I was young used to hid or mask the problem with make-up but it only made it worse so now I use hardly nothing. I wanted to have the scarring reduced but I was told it wouldn't help that much ----- boy was I disappointed and depressed after that verdict.....

Fiddle- Faddle

I don't see oatmeal in the ingredients but it does have oat flour in it. When it was discontinued I bought all I could find but after going wf/gluten-free my rosacea cleared up 75%. I do get a bit red at times but nothing like i used to... I also got onto using the MiracleII and I love it, so I have a bunch of the baby cleasner.............

With rosacea one thing to always remember is LESS IS Better......

mamaw

jenvan Collaborator
jenvan
Posted
  • Author

Interesting on the makeup too. I am using Bare Escentuals now...can't track it for sure...but I don't think I had this problem pre-BE makeup. I don't think it is causing it per se, but feel like something must have changed in my lifestyle to prompt the rosacea coming out.

For you with wine--is it all alcohol? Anyone notice chocolate? B/c of all the hot shower talk...I'm trying to take "cooler" showers ;)

Mamaw-- Do you know of a good online Rosacea group?

Judyin Philly Enthusiast
Judyin Philly
Posted

HI JEN

TALKED TO 'LYNNE' YESTERDAY AND SHE HAS IT TOO AND SAID SHE AGREED WAS TOLD HER STEROID USE.(PEDIZONE) COULD HAVE CAUSED IT..JUST SOME MORE INFO TO PUT INTO THE 'Q' FOR THE DR FOLDER.

HUGS

JUDY

cgilsing Enthusiast
cgilsing
Posted
For you with wine--is it all alcohol?

Strangely enough for me it's not all alcohol. It's not even all wines! Wine seems to be the most common alcohol that causes it, but I know I hav drank a mixed drink and had it happen too.....I can't remember now what it was though....it's been so long since I've had a drink!! I can't figure out what the link the between the things that bother me are either. There doesn't seem to be a common element. I do know I can drink a rum and coke and be sure I will not have a problem though ;)

jenvan Collaborator
jenvan
Posted
  • Author
There doesn't seem to be a common element.

Ah! That's the really annoying part of it all!

Judy--Lynne too huh? Hey, are you chatting with on the phone? If so--ask her what kind of music she likes (and hates!) and let me know :)

Judyin Philly Enthusiast
Judyin Philly
Posted

Judy--Lynne too huh? Hey, are you chatting with on the phone? If so--ask her what kind of music she likes (and hates!) and let me know :)

jenvan Collaborator
jenvan
Posted
  • Author

Judy--Lynne pmed with music, so I'm good to go on that now. But, send me her #. I told her I'll have to visit her somtime--only 2 hrs away. Too bad we can't all lunch together! Lunching Ladies :D

? for ya'll---

When you eat something that is a trigger how long does it take to flare-up? And, is your rosacea more like flushing or pimply? Have you noticed an increase in both? Thnx--good weekend to all!

cgilsing Enthusiast
cgilsing
Posted
? for ya'll---

When you eat something that is a trigger how long does it take to flare-up? And, is your rosacea more like flushing or pimply? Have you noticed an increase in both? Thnx--good weekend to all!

It happens almost instantaniouly for me. I'll be 1/2 way through a glass of wine and someone will mention that I'm looking strange! I don't get pimply, but it is different from a normal flushed look too. My cheeks, nose, and somtimes spots around my eyebrows get bright red. The affected areas are really defined too. The areas not affected are my usual luminous white. So it sortof looks like someone came up and drew on my face with a hot pink marker or something.....very attractive! :rolleyes:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Espresso Sea-Salt Brownies (Gluten-Free)

    2. Rejoicephd
      - Rejoicephd posted a topic in Related Issues & Disorders
      0

      Basic metabolic panel results - more flags

      Hey all Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium - nearly too low potassium - nearly too low chloride - high CO2 - low anion gap This is now after being nearly gluten-free for over a year (although I admit I make...
    3. xxnonamexx
      - xxnonamexx posted a topic in Related Issues & Disorders
      0

      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      I know I haven't been tested but self diagnosed that by avoiding gluten the past 7 months I feel so much better. I have followed how to eat and avoid gluten and have been good about hidden gluten in products, how to prep gluten-free and flours to use to bake gluten-free and have been very successful. It has been a learning curve but once you get the hang...
    4. knitty kitty
      - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold. Our bodies have difficulty absorbing and utilizing it. Only 30% is absorbed and less can be utilized. There's some question as to how well multivitamins...
    5. Scatterbrain
      - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

      I am taking a multivitamin which is pretty bolstered with B’s. Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol. Started Creapure creatine monohydrate in June for athletic recovery and brain fog. I have been working with a Nutritionist along side my Dr. since February. My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t ...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,318
    • Most Online (within 30 mins)
      7,748
    acurn18
    Newest Member
    acurn18
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Basic metabolic panel results - more flags

      By Rejoicephd · Posted

      Hey all  Has anyone on here experienced any of the following on their basic metabolic panel results ? This is what mine is currently flagging : - low sodium  - nearly too low potassium - nearly too low chloride - high CO2  - low anion gap  This is now after being nearly gluten-free for over a year (although I admit I make mistakes sometimes and pay dearly for it). My TtG went down to undetectable. I was so sensitive to so many foods I am now avoiding meat dairy and don’t eat a lot of cooked food in general (raw veggies, white rice, avocados and boiled eggs are my usual go-to meal that doesn’t make me sick). But my abdomen still hurts, i have a range of other symptoms too (headaches that last for days before letting up, fatigue, joint pain, bladder pain). Anyway im hoping my urologist (that’s now the latest specialist I’ve seen on account of the bladder pain and cloudy urine after eating certain foods) will help me with this since he ordered this metabolic panel. But I’m bouncing around a lot between specialists and still not sure what’s wrong. Also went back to the GI doctor and she thought maybe the celiac is just not healed or I have something else going on in the colon and I should have that looked at too. I’m still anemic too BTW. And I’m taking sooo may vitamins daily. 
    • xxnonamexx
      Self Diagnosed avoiding gluten 7 months later (Not tested due to eating gluten to test) update and question on soy

      By xxnonamexx · Posted

      I know I haven't been tested but self diagnosed that by avoiding gluten the past 7 months I feel so much better. I have followed how to eat and avoid gluten and have been good about hidden gluten in products, how to prep gluten-free and flours to use to bake gluten-free and have been very successful. It has been a learning curve but once you get the hang of it and more aware you realize how many places are gluten-free and contamination free practices etc. One thing I have read is how soy is like gluten. How would one know if soy affects you? I have eaten gluten free hershey reeses that say gluten free etc some other snacks say gluten free but contain soy and I dont get sick or soy yogurt no issues. Is there adifference in soys?
    • knitty kitty
      Feel like I’m starting over

      By knitty kitty · Posted

      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      Feel like I’m starting over

      By Scatterbrain · Posted

      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      Feel like I’m starting over

      By knitty kitty · Posted

      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.