Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Question?


Lollie

Recommended Posts

Lollie Enthusiast

Does any one get a small itchy rash all over after eating gluten? I was glutened on Tuesday and have been itchy ever since....

Also, I've been gluten free for about four months and I have been very careful, and lucky, and haven't been glutened since the very first few weeks, until now. The question is, do the side effects of the gluten get more severe the longer you are without the gluten? It seemed like I was much sicker and had more joint pain then I had before. And it continued for a solid 2 days, which before, it would have only lasted a few hours.

Thanks for any input!

Lollie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I can get a rash and I can also get hives when I eat gluten. I seemed to get new symptoms after going gluten free that can be quite intense, such as heart problems and stomach pain.

jerseyangel Proficient

Hi Lollie--During a gluten reaction, I get a small rash on my face and itching with no rash all over--especially my neck, arms, sides and back. The itching takes a long time to go away.

plantime Contributor

Each time I have a glutening, I am sicker longer than I was the time before. It makes me that much more careful!

jenvan Collaborator

Have you investigated the rash to be DH yet?

Rusla Enthusiast

My last accidental glutening a few days ago at NYF not only did I get very sick, and itch all over but my DH came out on my skin over a period of two days. This has been the worst with a few minute crumbs of glutening. I find each time gets worse and worse. I am so very careful about being in contact with gluten.

Jnkmnky Collaborator

I've been told the longer you're gluten-free, the higher the chance of actually having a bad reaction such as anaphalayxes shock. After years of being gluten-free, it's a good thing to carry an epi pen.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lollie Enthusiast

That's what I was afraid of! I figured it must get worse with time.....

Jenvan- I haven't looked into the DH, because I rarely have any kind of a rash. And this doesn't seem to be the same thing as what I've seen pictured and discribed. But, if it persists......

JerseyAngel- That is what my rash is like. It is mostly on my torso (especially my stomach), and it itches like crazy. Do you take anything like Benedryl?

Believe me, I will be even more careful then I was before!

Lollie

mart Contributor
I've been told the longer you're gluten-free, the higher the chance of actually having a bad reaction such as anaphalayxes shock. After years of being gluten-free, it's a good thing to carry an epi pen.

I just heard that from a man who has celiac and has been gluten free for many years now. His reaction to gluten is anaphylaxis. Yikes!

My little boy has been gluten-free for 8 months now, and although I don't think he has DH, I've noticed that for the longest time he has tiny bumps on the skin of his face (which you can only see if you get really close to him). I don't know what that is, but I'm assuming it's related to celiac and maybe even permanent.

jerseyangel Proficient

Lollie--On my torso and inner forearms, I only get red spots here and there. The rash tends to happen on my face. The itching is widespread, though. I used to use Claritan--just recently, my new allergist put me on Zyrtek, which I like. I know, it's scary when these things happen and it does make me super vigilant ;) I also use a hypoallergenic laundry detergent--usually Purex Free and Clear. I also found a mild bath soap without harsh cleansers to be helpful. California Baby Sensitive line is nice--and I can now get it at Wegmans!

penguin Community Regular
Do you take anything like Benedryl?

Believe me, I will be even more careful then I was before!

Lollie

Whatever you do, don't use topical benadryl! My allergist said it actually makes skin allergies/reactions worse! :o

He told me to just lay on the cortisone...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Helen1984
    Newest Member
    Helen1984
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      so do you have celiac or not? 🤔 why are your vision issues undiagnosed? 😢 what does your ophthalmologist say?  do you have a serious vit A deficiency? what do you take for it? how long have you had celiac disease and how long did  it take to get a diagnosis?   if you are legally blind there are adaptive devices that will help you. I have vision difficulties as well but did not qualify (at least not yet)   do you have a vit A deficiency? why are you undiagnosed? what does your ophthalmologist say? I have a retinal specialist and he tells me my eye condition can not be fixed- until/unless it gets to the point of where surgery is safer since the surgery can leave me actually blind... so you want to wait til it gets really bad 🤪     I hope you find what works for you.    PS   the medication I started at the same time as the gluten challenge is obvious from the condition it's trying to treat. you can google it 😉 it is not an for any auto immune condition.   
    • knitty kitty
      @catnapt,  I apologize.  Obviously I've confused you with someone else.  I have vision problems due to undiagnosed Celiac complications.  Being legally blind, y'all look the same from here.   You still have not said which new medication you started taking.  Parathyroid disorders can affect antibody production.  Bone Loss Correlated with Parathyroid Hormone Levels in Adult Celiac Patients https://pubmed.ncbi.nlm.nih.gov/36619734/ Effect of vitamin B1 supplementation on bone turnover markers in adults: an exploratory single-arm pilot study https://pmc.ncbi.nlm.nih.gov/articles/PMC12075007/
    • catnapt
      during the gluten challenge I did not consume any wheat germ   the wheat germ is TOASTED - it's the only way it is sold now afiak doesn't matter I consume vast amounts of lectin containing foods PROPERLY prepared and have for well over a decade. They do not bother me in the least.    no anemia however the endo who ordered the celiac panel is the one who suggested the 2 week gluten challenge of eating at least 2 slices of bread per day or a serving of pasta- ALSO put me on a new drug at the same time (not a good idea)  I ate 4 slices because they were thin, or 2 English muffins, and just once some lasagna that someone else made since I stopped eating wheat pasta years ago. The English muffins caused some of the worst symptoms but that pc of lasagna almost killed me ( not literally but the pain was extreme) during those 12 days there were at least 3 times I considered going to Urgent Care.   This entire process was a waste of time TBH due to being on that new drug at the exact same time. it is impossible to tell if the drug I am taking for the possible renal calcium leak is working or not- given the dramatic response to the gluten challenge and resulting nausea (no vomiting) and eventually a loss of appetite and lower intake of foods so now I have a dangerously low potassium level   I don't have a simple case of celiac or no- I have an extremely complicated case with multiple variables I am seeing an endocrinologist for a problem with the calcium sensing glands - that system is very complicated and she has been unable to give me a firm diagnosis after many tests with confusing and often alarming results. She also appears to be inexperienced and unsure of herself. but I don't have the luxury of finding a new endo due to multiple issues of insurance, lack of drs in my area, money and transportation. so I'm stuck with her At least she hasn't given up    in any case I can assure you that lectins are not and never were the problem. I know they are a favorite villain in some circles to point to, but I have ZERO symptoms from my NORMAL diet which DOES NOT contain gluten. The longer I went without bread or foods with wheat like raisin bran cereal, the better I have felt. my body had been telling me for several years that wheat was the problem- or maybe specifically gluten, that remains to be seen- and stopping eating it was the best thing I could have done   I almost had unnecessary MAJOR SURGERY due to joint pain that I ONLY have if I am eating bread or related products I assumed it was the refined grains - never really suspected gluten but it does not matter I won't put that poison in my body ever again not that it is literally poison but it is def toxic to me        
    • knitty kitty
      @catnapt,  I'm sorry you're having such a rough time.   How much wheat germ and how much gluten were you eating? Lectins in beans can be broken down by pressure cooking them.  Do you pressure cook your beans?  Were you pressure cooking your wheat germ? What drugs are you taking?  Some immunosuppressive drugs affect IgA production.  Do you have anemia?
    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.