Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Question?


Lollie

Recommended Posts

Lollie Enthusiast

Does any one get a small itchy rash all over after eating gluten? I was glutened on Tuesday and have been itchy ever since....

Also, I've been gluten free for about four months and I have been very careful, and lucky, and haven't been glutened since the very first few weeks, until now. The question is, do the side effects of the gluten get more severe the longer you are without the gluten? It seemed like I was much sicker and had more joint pain then I had before. And it continued for a solid 2 days, which before, it would have only lasted a few hours.

Thanks for any input!

Lollie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I can get a rash and I can also get hives when I eat gluten. I seemed to get new symptoms after going gluten free that can be quite intense, such as heart problems and stomach pain.

jerseyangel Proficient

Hi Lollie--During a gluten reaction, I get a small rash on my face and itching with no rash all over--especially my neck, arms, sides and back. The itching takes a long time to go away.

plantime Contributor

Each time I have a glutening, I am sicker longer than I was the time before. It makes me that much more careful!

jenvan Collaborator

Have you investigated the rash to be DH yet?

Rusla Enthusiast

My last accidental glutening a few days ago at NYF not only did I get very sick, and itch all over but my DH came out on my skin over a period of two days. This has been the worst with a few minute crumbs of glutening. I find each time gets worse and worse. I am so very careful about being in contact with gluten.

Jnkmnky Collaborator

I've been told the longer you're gluten-free, the higher the chance of actually having a bad reaction such as anaphalayxes shock. After years of being gluten-free, it's a good thing to carry an epi pen.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lollie Enthusiast

That's what I was afraid of! I figured it must get worse with time.....

Jenvan- I haven't looked into the DH, because I rarely have any kind of a rash. And this doesn't seem to be the same thing as what I've seen pictured and discribed. But, if it persists......

JerseyAngel- That is what my rash is like. It is mostly on my torso (especially my stomach), and it itches like crazy. Do you take anything like Benedryl?

Believe me, I will be even more careful then I was before!

Lollie

mart Contributor
I've been told the longer you're gluten-free, the higher the chance of actually having a bad reaction such as anaphalayxes shock. After years of being gluten-free, it's a good thing to carry an epi pen.

I just heard that from a man who has celiac and has been gluten free for many years now. His reaction to gluten is anaphylaxis. Yikes!

My little boy has been gluten-free for 8 months now, and although I don't think he has DH, I've noticed that for the longest time he has tiny bumps on the skin of his face (which you can only see if you get really close to him). I don't know what that is, but I'm assuming it's related to celiac and maybe even permanent.

jerseyangel Proficient

Lollie--On my torso and inner forearms, I only get red spots here and there. The rash tends to happen on my face. The itching is widespread, though. I used to use Claritan--just recently, my new allergist put me on Zyrtek, which I like. I know, it's scary when these things happen and it does make me super vigilant ;) I also use a hypoallergenic laundry detergent--usually Purex Free and Clear. I also found a mild bath soap without harsh cleansers to be helpful. California Baby Sensitive line is nice--and I can now get it at Wegmans!

penguin Community Regular
Do you take anything like Benedryl?

Believe me, I will be even more careful then I was before!

Lollie

Whatever you do, don't use topical benadryl! My allergist said it actually makes skin allergies/reactions worse! :o

He told me to just lay on the cortisone...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      12

      Blood Test for Celiac wheat type matters?

    2. - trents replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    3. - JudyLou posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Seeking advice on potential gluten challenge

    4. - marzian commented on Scott Adams's article in Diagnosis, Testing & Treatment
      5

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    5. - Jmartes71 posted a topic in Related Issues & Disorders
      0

      Medications

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,144
    • Most Online (within 30 mins)
      7,748

    Marsu
    Newest Member
    Marsu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      no argument. Never take the pills sold for Nuclear events, except in a nuclear event when instructed to by authorities.  Some of these go up to 130 milligrams per pill. 5000 times the strength of the dietary supplement.  130 times the safe upper limit.  130 mg = 130,000 mcg. Dietary supplements like Lugol's Solution and Liquid Iodine are 50 micrograms per drop.  It takes 20 drops to reach the safe upper limit. In the US the Safe upper limit is 1100 mcg.  In Europe 600 mcg and in Japan 3000 mcg ( 3 mg).
    • trents
      Welcome to the celiac.com community, @JudyLou! There are a couple of things you might consider to help you in your decision that would not require you to do a gluten challenge. The first, that is if you have not had this test run already, is to request a "total IGA" test to be run. One of the reasons that celiac blood antibody tests can be negative, apart from not having celiac disease, that is, is because of IGA deficiency. If a person is IGA deficient, they will not respond accurately to the celiac disease blood antibody tests (such as the commonly run TTG-IGA). The total IGA test is designed to check for IGA deficiency. The total IGA test is not a celiac antibody test so I wouldn't think that a gluten challenge is necessary. The second is to have genetic testing done to determine if you have the genetic potential to develop celiac disease. About 30-40% of  the general population have the genetic potential but only about 1% actually develop celiac disease. So, genetic testing cannot be used to diagnose celiac disease but it can be used to rule it out. Those who don't have the genetic potential but still have reaction to gluten would not be diagnosed with celiac disease but with NCGS (Non Celiac Gluten Sensitivity).  Another possibility is that you do have celiac disease but are in remission. We do see this but often it doesn't last.
    • JudyLou
      Hi there, I’m debating whether to consider a gluten challenge and I’m hoping someone here can help with that decision (so far, none of the doctors have been helpful). I have a history of breaking out in a horrible, burning/itchy somewhat blistering rash about every 8 years. This started when I was in my early 30’s and at that point it started at the ankles and went about to my knees. Every time I had the rash it would cover more of my body, so my arms and part of my torso were impacted as well, and it was always symmetrical. First I was told it was an allergic reaction to a bug bite. Next I was told it was eczema (after a biopsy of the lesion - not the skin near the lesion) and given a steroid injection (didn’t help). I took myself off of gluten about 3 weeks before seeing an allergist, just to see if it would help (it didn’t in that time period). He thought the rash looked like dermatitis herpetiformis and told me to eat some bread the night before my blood tests, which I did, and the tests came back negative. I’ve since learned from this forum that I needed to be eating gluten daily for at least a month in order to get an accurate test result. I’m grateful to the allergist as he found that 5 mg of doxepin daily will eliminate the rash within about 10 days (previously it lasted for months whether I was eating gluten or not). I have been gluten free for about 25 years as a precaution and recommendation from my doctor, and the pattern of breaking out every 8 years or so remains the same except once I broke out after just one year (was not glutened as far as I know), and now it’s been over 9 years. What’s confusing to me, is that there have been 3 times in the past 2 years when I’ve accidentally eaten gluten, and I haven’t had any reaction at all. Once someone made pancakes (they said they were gluten-free, they were not) and I ate several. I need to decide whether to do a gluten challenge and get another blood test. If I do, are these tests really accurate? I’m also concerned that I could damage my gut in that process if I do have celiac disease. My brother and cousin both had lymphoma so that’s a concern regarding a challenge as well, though there is a lot of cancer in various forms in my family so there may be no gluten connection there. Sorry for the ramble, I’m just doubting the need to remain gluten free if I don’t have any reaction to eating it and haven’t had a positive test (other than testing positive for one of the genes, though it sounds like that’s pretty common). I’d appreciate any thoughts or advice! 
    • Jmartes71
      Hello, just popped in my head to ask this question about medications and celiac? I have always had refurse reaction to meds since I can remember  of what little meds my body is able to tolerate. I was taking gabapentin 300mg for a week,  in past I believe 150? Any ways it amps me up not able to sleep, though very tired.However I did notice it helped with my bloating sibo belly.I hate that my body is that sensitive and medical doesn't seem to take seriously. Im STILL healing with my skin, eye, and now ms or meningioma ( will know in April  which)and dealing with this limbo nightmare. I did write my name, address ect on the reclamation but im not tech savvy and not sure if went through properly. I called my city representative in Stanislaus County and asked if theres a physical paper i can sign for proclamation for celiac and she had no clue about what I was saying, so I just said I'll go back on website. 
    • Scott Adams
      I'm not saying that some celiacs won't need it, but it should be done under a doctor's supervision because it can cause lots of problems in some people.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.