Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Question?


Lollie

Recommended Posts

Lollie Enthusiast

Does any one get a small itchy rash all over after eating gluten? I was glutened on Tuesday and have been itchy ever since....

Also, I've been gluten free for about four months and I have been very careful, and lucky, and haven't been glutened since the very first few weeks, until now. The question is, do the side effects of the gluten get more severe the longer you are without the gluten? It seemed like I was much sicker and had more joint pain then I had before. And it continued for a solid 2 days, which before, it would have only lasted a few hours.

Thanks for any input!

Lollie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

I can get a rash and I can also get hives when I eat gluten. I seemed to get new symptoms after going gluten free that can be quite intense, such as heart problems and stomach pain.

jerseyangel Proficient

Hi Lollie--During a gluten reaction, I get a small rash on my face and itching with no rash all over--especially my neck, arms, sides and back. The itching takes a long time to go away.

plantime Contributor

Each time I have a glutening, I am sicker longer than I was the time before. It makes me that much more careful!

jenvan Collaborator

Have you investigated the rash to be DH yet?

Rusla Enthusiast

My last accidental glutening a few days ago at NYF not only did I get very sick, and itch all over but my DH came out on my skin over a period of two days. This has been the worst with a few minute crumbs of glutening. I find each time gets worse and worse. I am so very careful about being in contact with gluten.

Jnkmnky Collaborator

I've been told the longer you're gluten-free, the higher the chance of actually having a bad reaction such as anaphalayxes shock. After years of being gluten-free, it's a good thing to carry an epi pen.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lollie Enthusiast

That's what I was afraid of! I figured it must get worse with time.....

Jenvan- I haven't looked into the DH, because I rarely have any kind of a rash. And this doesn't seem to be the same thing as what I've seen pictured and discribed. But, if it persists......

JerseyAngel- That is what my rash is like. It is mostly on my torso (especially my stomach), and it itches like crazy. Do you take anything like Benedryl?

Believe me, I will be even more careful then I was before!

Lollie

mart Contributor
I've been told the longer you're gluten-free, the higher the chance of actually having a bad reaction such as anaphalayxes shock. After years of being gluten-free, it's a good thing to carry an epi pen.

I just heard that from a man who has celiac and has been gluten free for many years now. His reaction to gluten is anaphylaxis. Yikes!

My little boy has been gluten-free for 8 months now, and although I don't think he has DH, I've noticed that for the longest time he has tiny bumps on the skin of his face (which you can only see if you get really close to him). I don't know what that is, but I'm assuming it's related to celiac and maybe even permanent.

jerseyangel Proficient

Lollie--On my torso and inner forearms, I only get red spots here and there. The rash tends to happen on my face. The itching is widespread, though. I used to use Claritan--just recently, my new allergist put me on Zyrtek, which I like. I know, it's scary when these things happen and it does make me super vigilant ;) I also use a hypoallergenic laundry detergent--usually Purex Free and Clear. I also found a mild bath soap without harsh cleansers to be helpful. California Baby Sensitive line is nice--and I can now get it at Wegmans!

penguin Community Regular
Do you take anything like Benedryl?

Believe me, I will be even more careful then I was before!

Lollie

Whatever you do, don't use topical benadryl! My allergist said it actually makes skin allergies/reactions worse! :o

He told me to just lay on the cortisone...

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    2. - Roses8721 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      gluten-free Oatmeal

    3. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      GI DX celiac despite neg serology and no biopsy

    4. - Scott Adams replied to Ginger38's topic in Related Issues & Disorders
      5

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Challenges eating gluten before biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,474
    • Most Online (within 30 mins)
      7,748

    Silk tha Shocker
    Newest Member
    Silk tha Shocker
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Certainly, it would b wise to have a gene test done if your physician is open to it as it would provide some more data to understand what's going on. But keep in mind that the genetic test for celiac disease cannot be used as to diagnose celiac disease, only to establish the potential to develop active celiac disease. About 40% of the general population possess one or both of the primary genes known to be associated with the development of active celiac disease but only about 1% of the population actually develop active celiac disease. So, the gene test is an effective "rule out" tool but not an effective diagnostic tool.
    • Roses8721
      Had Quaker gluten-free oatmeal last night and my stomach is a mess today. NO flu but def stomach stuff. Anyone else?
    • Roses8721
      So you would be good with the diagnosis and not worry to check genetics etc etc? Appreciate your words!
    • Scott Adams
      As recommended by @Flash1970, you may want to get this: https://www.amazon.com/Curist-Lidocaine-Maximum-Strength-Topical/dp/B09DN7GR14/
    • Scott Adams
      For those who will likely remain gluten-free for life anyway due to well-known symptoms they have when eating gluten, my general advice is to ignore any doctors who push to go through a gluten challenge to get a formal diagnosis--and this is especially true for those who have severe symptoms when they eat gluten. It can take months, or even years to recover from such a challenge, so why do this if you already know that gluten is the culprit and you won't be eating it anyway?  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS--but those in this group will usually have negative tests, or at best, elevated antibodies that don't reach the level of official positive. Unfortunately test results for celiac disease are not always definitive, and many errors can be made when doing an endoscopy for celiac disease, and they can happen in many ways, for example not collecting the samples in the right areas, not collecting enough samples, or not interpreting the results properly and giving a Marsh score.  Many biopsy results can also be borderline, where there may be certain damage that could be associated with celiac disease, but it just doesn't quite reach the level necessary to make a formal diagnosis. The same is true for blood test results. Over the last 10 years or so a new "Weak Positive" range has been created by many labs for antibody results, which can simply lead to confusion (some doctors apparently believe that this means the patient can decide if they want more testing or to go gluten-free). There is no "Weak Negative" category, for example. Many patients are not told to eat gluten daily, lots of it, for the 6-8 week period leading up to their blood test, nor asked whether or not they've been eating gluten. Some patients even report to their doctors that they've been gluten-free for weeks or months before their blood tests, yet their doctors incorrectly say nothing to them about how this can affect their test, and create false negative results. Many people are not routinely given a total IGA blood test when doing a blood screening, which can lead to false negative interpretations if the patient has low IGA. We've seen on this forum many times that some doctors who are not fully up on how interpret the blood test results can tell patients that the don't need to follow a gluten-free diet or get more testing because only 1 of the 2 or 3 tests done in their panel is positive (wrong!), and the other 1 or 2 tests are negative.  Dermatologists often don't know how to do a proper skin biopsy for dermatitis herpetiformis, and when they do it wrongly their patient will continue to suffer with terrible DH itching, and all the risks associated with celiac disease. For many, the DH rash is the only presentation of celiac disease. These patients may end up on strong prescriptions for life to control their itching which also may have many negative side effects, for example Dapsone. Unfortunately many people will continue to suffer needlessly and eat gluten due to these errors in performing or interpreting celiac disease tests, but luckily some will find out about non-celiac gluten sensitivity on their own and go gluten-free and recover from their symptoms. Consider yourself lucky if you've figured out that gluten is the source of your health issues, and you've gone gluten-free, because many people will never figure this out.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.