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Hi I Am New

kessea

By kessea
in Coping with Celiac Disease

Recommended Posts

kessea Newbie
kessea
Posted
:D Hi I am new here and just getting started. I am so happy there is a support group!
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carriecraig Enthusiast
carriecraig
Posted

Hi, and welcome! Look forward to speaking with you through this board.

jerseyangel Proficient
jerseyangel
Posted

Hi Kessea--Welcome! So glad you found us. Hopefully, you've had a chance to read through some posts, and come away with some useful information. This board is an absolute wealth of info. on everything from the gluten-free diet to dealing with friends and family about the disease. Feel free to jump in with questions or suggestions--there's a great group of people here and there's not much we don't discuss! :)

Rusla Enthusiast
Rusla
Posted

Hi Keesea,

Welcome to the board. This is a great place to learn and not feel alone. Great support here we are like an extended family who know what you are going through.

RoseNNJ Apprentice
RoseNNJ
Posted

Welcome Keesea! And Welcome to anyone else I missed :):)

mouse Enthusiast
mouse
Posted

Welcome Kessea. You will gain a lot of useful information to help you along this gluten-free path. We also consider that there are no dumb questions. Sometimes we have a kind of sick humor and that is how so many of us cope with this so hopefully you will not be offended. Again, WELCOME.

KaitiUSA Enthusiast
KaitiUSA
Posted

Welcome to the board...I am sure you will find everyone very kind and helpful. Feel free to email me with any questions...nothing is too dumb to ask. It gets so much easier when you learn the ropes.

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TCA Contributor
TCA
Posted

Welcome! This board is a LIFESAVER, as you will soon find out. Let us know what you need!

whitball Explorer
whitball
Posted
:D Hi I am new here and just getting started. I am so happy there is a support group!

Welcome kessea! I am new also and I have found alot of valuable info on this site. The support has been awesome!

Tara

Stardust Valerie Newbie
Stardust Valerie
Posted

Hi I am a new member too. I have been reading this board for a while. There is wonderful information and support here.

My husband and children were diagnosed with celiac disease and mine is an intolerance. We were diagnosed March of this year.

tiredofdoctors Enthusiast
tiredofdoctors
Posted

Welcome Kessea and Stardust Valerie! I know you will be so happy that you found this forum. I have not had my computer for awhile, and I didn't realize how much I relied on this group for support, information, lots of laughs, you name it! This is a group of truly amazing people. Just wait, you'll see . . . . . ! Lynne

flagbabyds Collaborator
flagbabyds
Posted

Welcome, we might seem a little weird in some posts, but this is a very good resource.

Sis Rookie
Sis
Posted

Welcome. I am new to all of this as well. look forward to talking with you on th board.

Sis

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    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      Welcome, @JudyLou, Your rash sounds very similar to the one I experienced.  Mine was due to a deficiency in Niacin B3, although I had deficiencies in other nutrients as well.  Celiac disease causes malabsorption of all the essential nutrients, but eating a poor diet, taking certain medications, or drinking alcohol can result in deficiency diseases outside of Celiac, too.  Symptoms can wax and wane depending on dietary intake.  I knew an alcoholic who had the "boots" of Pellagra, which would get worse when he was drinking more heavily, and improve when he was drinking less.   Niacin deficiency is called Pellagra.  Symptoms consist of dermatitis, diarrhea, dementia, and death (the four D's).  A scaly rash on the feet and hands and arms are called the "boots" and "gloves" of Pellagra.  Darkened skin around the neck exposed to the sun is Casal's necklace.  Poor farmers with niacin deficient diets were called "red necks" because of this.    Does your rash get worse if you're in the sun?  Mine did.  Any skin exposed to the sun got blistered and scaly.  Arms, legs, neck, head.  Do you have dry, ashy skin on your feet?  The itchiness was not only from the rash, but neuropathy.   My doctors were clueless.  They didn't put all my symptoms together into the three D's.  But I did.  I'd learned about Pellagra at university.  But there weren't supposed to be deficiency diseases anymore in the developed world.  Doubtful it could be that simple, I started supplementing with Niacin and other essential nutrients.  I got better.   One of Niacinamide functions is to help stop mast cells from releasing histamine.  Your allergist gave you doxepin, an antihistamine which stops mast cells from releasing histamine.   Since you do have a Celiac gene, staying on the gluten free diet can prevent Celiac disease from being triggered again.   Interesting Reading: These case studies have pictures... Pellgra revisited.  https://pmc.ncbi.nlm.nih.gov/articles/PMC4228662/ Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Cutaneous signs of nutritional disorders https://pmc.ncbi.nlm.nih.gov/articles/PMC8721081/#:~:text=Additional causes of yellow skin,the clinical features of Kwashiorkor.   Hello, @Staticgypsy, I would not recommend cutting so many nutritious foods out of ones diet.  Oxalates can cause problems like kidney stones, but our bodies can process oxalates out of our systems with certain vitamins like Vitamins A and D and Pyridoxine B 6.   People with Celiac disease are often low in fat soluble vitamins A and D, as well as the water soluble B vitamins like Pyridoxine B 6.  Focus on serving your granddaughter nutrient dense meals to ensure she gets essential vitamins and minerals that will help her grow. Micronutrient inadequacy and urinary stone disease: an analysis of the National Health and Nutrition Examination Survey 2007-2018 https://pubmed.ncbi.nlm.nih.gov/36976348/ Multivitamins co-intake can reduce the prevalence of kidney stones: a large-scale cross-sectional study https://pubmed.ncbi.nlm.nih.gov/38564076/
    • Wheatwacked
      Have I got coeliac disease

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    • Jmartes71
      Gluten tester

      By Jmartes71 · Posted

      I saw the thing for testing for gluten when at public places.I absolutely love but I wonder if they would come up with a bracelet or necklace that can detect gluten in the air.I would LOVE that, i know i get debilitating migraine from smelling gluten wheat what have you, all I know is when I go into places like Chevron- gluten Subway, migraine, Costco that food smell of nasty gluten- migraine and same with Walmart subway.I absolutely HATE im that sensitive, my body reacts.Sadly medical hasn't taken core issue of celiac being an issue considering glutenfree ever since 1994 and in their eyes not because they didn't diagnose me. I am and wish I wasn't. If there was a detector of gluten in the air it would make a world of difference. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Oops! @Staticgypsy, I’ll get the book! Thank you! 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for your help, @trents and @Staticgypsy! I so appreciate your thoughts. My diet is high in foods with oxalates and I don’t notice any issues there. If eliminating gluten from my diet had changed anything I’d be happy to just keep on the gluten-free diet, but with eating gluten several times with no rash, and having a rash when I was many years into gluten-free eating (and was much more careful at that point), I’m just baffled. Many, many thanks to you both. 
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