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    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



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Newbie

steveindenver

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steveindenver Contributor
steveindenver
Posted

Just want to officially say hi to everyone and let them know this message board has been a huge help for me. I received my blood work results almost a week ago, and am awaiting my biopsy results, but the doc said for the most part, "You've got Celiac". So, I will trying to bring awareness to this disease among family and friends. I know my mom will not understand, and will be worried. Typical Jewish mom! :-) I am just looking forward to my first day of not having the trots and having a solid BM again.

I've found a support group but the next meeting is on June 1 (so over a month from now!). So until then, this board is my support.

Thanks everyone

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lonewolf Collaborator
lonewolf
Posted

Welcome! Hope we can be of help to you!

Rusla Enthusiast
Rusla
Posted

Welcome to the group. I have been unable to make it to any of my support meetings because of when they are held. I am sure glad I have this place for support.

jerseyangel Proficient
jerseyangel
Posted

Hi Steve--I just wanted to welcome you in! :) You have come to the right place! Feel free to ask any questions that might come up along the way--and that goes for your mom, too :D If you need any help going gluten-free, just let us know.

tarnalberry Community Regular
tarnalberry
Posted

Welcome to the group. It's a tough transition at first, but like all new skills, once you get the hang of it, it'll be easier. You've found a wonderful, supportive, informative, helpful bunch of people who'll have lots of information and support for you - and will welcome any information and support you have as well! :-)

TinkerbellSwt Collaborator
TinkerbellSwt
Posted

Hi and welcome! I am still kind of new at this myself. I just wanted to let you know from my own experiences that this is a place full of wonderful people with some great advice. Any questions you might have you can ask here and someone somewhere will have somesort of answer. Its amazing! The support you receive here is golden. Again, welcome to our group!

DingoGirl Enthusiast
DingoGirl
Posted

Hi Steve - - this is a great place for questions and answers, really nice people. I am new also and pleased to report that my bowels "shaped up" nicely and pretty quickly on the gluten-free diet. Welcome!

Susan

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TCA Contributor
TCA
Posted

Welcome! Let us know what we can do to help!

steveindenver Contributor
steveindenver
Posted
  • Author

Thanks, everyone. It's nice to have this kind of support. I can't imagine doing this without the Internet. I got a little scared today, since I am moving into the "unknown zone" but then I calmed down and realized, there is no reason to be scared. This is a healthy change, one I am in control of with my diet, so no reason to be scared.

Guest nini
Guest nini
Posted

welcome to this board! you will find all kinds of useful information here and lots of joking around and tons of emotional support! ask any questions you may have and we will do our best to answer!

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    • trents
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By trents · Posted

      As I suspected, xanthan gum is one of the ingredients. It is a polysaccharide used as a texturing agent in many gluten-free products. It's hard to digest and causes distress for many celiacs. I can't say for sure if that was the problem but you might be on the lookout for it in the future. Muscle spasms can be caused by magnesium deficiency. Are you taking any vitamin and mineral supplements? I mean some things more potent than a multivitamin?
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      Gluten-Free Newbie

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    • annamarie6655
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By annamarie6655 · Posted

      @trents thank you so much for your response!  When i was diagnosed, I was exhibiting mainly joint pain, hair loss, bloating, and allodynia (painful feeling from non painful stimuli). The muscle spasms only started after diagnosis, and it seems to only happen when I am severely glutened. It’s only happened twice, but it definitely makes me nervous when it happens.    In regard to the pizza, thats what i saw after i got sick from it. I’m still trying to figure out how to switch to ALL certified gluten-free goods.    for the dressing, here is the ingredient list:  WATER, VEGETABLE OIL, VINEGAR, SUGAR, GARLIC, SALT, RED BELL PEPPER, ONION, CONCENTRATED LEMON JUICE, XANTHAN GUM, POTASSIUM SORBATE, HERBS, CALCIUM DISODIUM EDTA, MONOACETIN, SPICES. and the link: https://www.kraftheinz.com/en-CA/kraft/products/00068100903577-zesty-italian-salad-dressing  
    • trents
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By trents · Posted

      Welcome to the forum, @annamarie6655! Are the muscle spasms and joint aches a new pattern of reaction to gluten or have you experienced these in the past? Concerning DeGiorno's "gluten-free" pizza, we have had many reports from celiac.com members of gluten reactions from consuming this product. I believe it is one of those "gluten-free" products that is made from wheat (speaking of the crust component) that has been processed in such a way as to remove most of the gluten. The FDA regs allow food companies to use the claim "gluten-free" as long as the product contains no more than 20ppm of gluten. This works for most celiacs but not for those on the more sensitive end of the spectrum. There is another industry standard known as "Certified Gluten-Free" that is stricter, requiring no more than 10ppm of gluten. Certified Gluten-Free products use the "GFCO" logo. Concerning the salad dressing, could you list the ingredients in another post or link it? There are certain other ingredients besides gluten commonly used in gluten-free manufactured food items to give them acceptable textures that give a lot of celiacs problems. 
    • annamarie6655
      Diagnosed w Celiacs, but reacting to gluten-free Digiorno Pizza AND Kraft Zesty Italian Dressing

      By annamarie6655 · Posted

      Hello, so I was diagnosed with Celiacs about 8 months ago. After being diagnosed, I have been trying very hard to maintain a completely gluten-free (and celiac safe) diet.  Two of the main times I had a huge reaction, it was from: - gluten-free Digiorno Pizza w Pepperoni - Kraft Zesty Italian Dressing (this was in canada if that changes anything) Both are marked as gluten-free. Following eating these items, I had a severe bout of diarrhea, uncontrollable and heavy muscle spasms throughout my whole body, and aching throughout every joint.   If these are both gluten-free, why would I be reacting to them? Should I be worried about a separate allergy?  In regards to the muscle spasms, should I follow up with someone about that?
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