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Omg...i Might Be On To Something

Rachel--24

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jerseyangel Proficient
jerseyangel
Posted

All I know is that I eat potatoes just about every day--they are the one food that I know won't cause me problems. My comfort food. We're all different, though, so I would think any food could cause a person problems. The only other thing I believe that potatoes can cause (along with the other nightshades) is joint pain.

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Rachel--24 Collaborator
Rachel--24
Posted
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Okay... I will take your word on it.... I trust you... you are like the chemist of this group.. :D

:lol::lol: Thats funny. I think I flunked chemistry.

What symptoms are you getting from the potatoes? I used to peel them cuz I think the skins bothered me...right now I'm avoiding them altogether because the MSG diet says to avoid potatoes due to most of them being sprayed with the Auxigro. I've tried them more than once though...all different kinds and I still get symptoms....mainly bloating and fluid retention.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Okay, I exaggerated just a bit...I actually only bought 8. :rolleyes: I've been sort of good though...I've had those in the house and only ate the 1st one last night. I should take them back, but I can't bring myself to do it, lol. It's truly intervention material here. Change a couple of letters of my name and it spells DENIAL! :lol:

LOL!

Yesterday I happened to be looking in the cabinets...I have no idea why since I cant have anything in there! I always do this though....as if I was a normal person just casually looking for something to eat....YEAH RIGHT.

Well....I found 2 ziplock baggies of those crackers I was eating! I forgot I had put some in baggies and now that I know they are there....its very tempting. For some reason I cant bring myself to throw stuff away cuz you never know...a miracle could happen. Tomorrow I could wake up totally able to eat ANYTHING I want. :lol:

Oh yeah...and like if that really happened would I really be running to the cabinet to get those plain rice crackers anyway....NOT! I'd be on my way to the store for some chicken n a biskit crackers with some cheese spread!

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Okay.... at the risk of sounding really stupid... what the heck are night shades? I thought those were the things we close at night on our windows.. :D

:lol::lol:

Ummm...yeah I guess those would be called nightshades too. :D

I found this thread on nightshades for you

Open Original Shared Link

I know Lisa Baker just recently posted a thread asking what nightshades were. I was trying to find it but couldnt right now. I'll check again later. :)

AndreaB Contributor
AndreaB
Posted

Floridian,

Ursula has something about nightshades in her sig I think. I know it Potatoes, tomatoes, eggplant I think and maybe green peppers. Don't quote me on that though. Check out Ursula's sig. :)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

The only thinkg I can think of re potatoes is that they might be like oats--our immune systems might mistake them for gluten, and attack our bodies just as though we'd eqaten gluten.

potatoes, tomatoes, peppers (or any color) are all members of the nightshade family.

Green12 Enthusiast
Green12
Posted

I actually did hear that about potatoes and gluten you guys. It was something I came across when I researched going gluten free, before I even came to this board. I can't remember where I found the info or what exactly the connection was.

LOL!

Yesterday I happened to be looking in the cabinets...I have no idea why since I cant have anything in there! I always do this though....as if I was a normal person just casually looking for something to eat....YEAH RIGHT.

Well....I found 2 ziplock baggies of those crackers I was eating! I forgot I had put some in baggies and now that I know they are there....its very tempting. For some reason I cant bring myself to throw stuff away cuz you never know...a miracle could happen. Tomorrow I could wake up totally able to eat ANYTHING I want. :lol:

Oh yeah...and like if that really happened would I really be running to the cabinet to get those plain rice crackers anyway....NOT! I'd be on my way to the store for some chicken n a biskit crackers with some cheese spread!

:lol::lol: so true Rachel, the last thing you would want to eat if you could eat anything in the world would be those darn rice crackers :lol::lol:

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AndreaB Contributor
AndreaB
Posted

Ok guys. If this thing with potatoes is real, does that mean we should avoid those? I don't have any obvious symptoms or anything like that. I could always buy the small red or white potatoes.

I have noticed that I have a problem with cereals lately. My stomach just can't take much of it. Of course the last time I had them I was using Rice Dream, maybe I'm just becoming more sensitive. I'll have to try cereal with a different milk and see what happens.

jerseyangel Proficient
jerseyangel
Posted

This is serious! I eat potoatoes all the time--but since cutting out the intolerances, I feel good. Now I'm worried :o

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
I actually did hear that about potatoes and gluten you guys. It was something I came across when I researched going gluten free, before I even came to this board. I can't remember where I found the info or what exactly the connection was.

Ok...now I wanna know what this is all about. :huh:

Maybe someone who knows will come along and enlighten us cuz I still dont see how it makes sense...but thats just me....always looking for a logical explanation. :rolleyes:

Maybe there just isnt one. But gluten free diets are largely based on potato products and I've never heard of anyone having damage from potatoes. :unsure:

jerseyangel Proficient
jerseyangel
Posted

I was just thinking, it could be the starch that is disagreeing with you. I can not tolerate rice, tapioca, or any other grain that I have tried. Tapioca is a starch, and gives me the same reaction as gluten--not good at all. So, possibly, if you react to potatoes, it's the starch. That would make sense, I think?

jerseyangel Proficient
jerseyangel
Posted

YES! A crystal ball would be very nice, and save us all a lot of time :D

penguin Community Regular
penguin
Posted

Trust me, there is nothing gluteny about potatoes. Seriously. They're not even a grain, they are a starch, but not a grain like WBRO or corn or rice. Potatoes are made up of starch, water, and cell walls.

You may have issues with starches in general, or nightshades, or large quantities of tapioca, but it's not a gluten thing unless you've cc'ed.

Haha, I'm watching the Crucible. Sometimes I think this board gets like that :blink:

AndreaB Contributor
AndreaB
Posted
What kind of cerial have you been eating?

Erewhon rice with berries (gluten free), perky o's. I'd had granola (I know oat before those, not doing oats anymore unless I buy the gluten free ones), a few weeks ago.

I also think the starch thing makes sense.

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

The Perky O's are made on the same lines with barley, soy and corn. I dont know how well they clean the machinery. It seems like they've just started testing for gluten. Suppossedly they test under 50 ppm's. This must be new because a couple months ago I reacted to them and at that time they still had wheat on the same line and were not testing for gluten.

Good for them for making it a dedicated wheat free facility...but really...what good does it do if they still run barley on the same lines?? <_<

jerseyangel Proficient
jerseyangel
Posted

Thanks Floridian--that's what I thought. Cutting them out can be useful for people with joint problems. I do think the starch could cause a GI problem, though. Luckily, they don't affect me that way because they're the only starch I have left! :D

AndreaB Contributor
AndreaB
Posted

Ok. I'm back. Hubby decided to do a pedicure for me. :D He's so sweet.

Now, I've never had a reaction to gluten before, but I am allergic and intolerant to soy. Of course I got the cinnamon ones and I'm not used to cinnamon. :blink:

Floridian,

How about avocadoes, coconut oil, any nuts you can eat.

AndreaB Contributor
AndreaB
Posted

Well now, that does add quite a bit to your list of can not's doesn;t it. :P

I also have a low allergic response to bananas and haven't been eating them for 2 months. Going to make sorbet tonight and add enjoy life chocolate chips. Hopefully I'll be ok and Seth too. :unsure:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Ok...I have a question. Hopefully someone knows this. Are all dates dried? What are dates exactly? You know like raisins are dried grapes....are dates just a dried version of something else? :unsure:

The reson I'm asking is because I was eating dates. They seem fresh and have pits....I never really knew if they were fresh or dried. I had no problems with them so I figured...."Great...I can eat any dried fruits". Wrong. :ph34r:

I bought bags of dried fruit all organic and unsulphered but they are making me so bloated and gassy and constipated. :(

It doesnt matter which ones I try...they all do it.

So maybe those dates I was eating werent a dried fruit? Could they have been fresh? I didnt get bloated at all with those and right now my tummy hurts and its super hard. Its definately a different pain than the ovary stuff. So I think I can tell the difference from intestinal pain and ovary pain now.

miamia Rookie
miamia
Posted
Okay, this got my attention! How do you make crackers? :huh:

Floridian-

This is my problem I am good at baking but not at keeping track of measurments and so on. The crackers Imake are millet crackers. How do you do with millet? It is one of the only grains I can tolerate.

Miamia

Green12 Enthusiast
Green12
Posted
Ok...I have a question. Hopefully someone knows this. Are all dates dried? What are dates exactly? You know like raisins are dried grapes....are dates just a dried version of something else? :unsure:

The reson I'm asking is because I was eating dates. They seem fresh and have pits....I never really knew if they were fresh or dried. I had no problems with them so I figured...."Great...I can eat any dried fruits". Wrong. :ph34r:

I bought bags of dried fruit all organic and unsulphered but they are making me so bloated and gassy and constipated. :(

It doesnt matter which ones I try...they all do it.

So maybe those dates I was eating werent a dried fruit? Could they have been fresh? I didnt get bloated at all with those and right now my tummy hurts and its super hard. Its definately a different pain than the ovary stuff. So I think I can tell the difference from intestinal pain and ovary pain now.

I believe dates are fresh, however there is such a thing as dried dates, they roll them in oat flour. Also you can get fresh figs. (I think there are also dried figs, so make sure you get the fresh if you do try them out).

But someone can correct me if I am wrong....

miamia Rookie
miamia
Posted
Casava crackers? I dont think I've ever seen them at my Whole Foods. Are they with all the other crackers or somewhere else? I love anything with one or two ingredients too...that why I went for the rice snaps. Only 2 ingredients...unless you count the gluten...then theres actually 3. :lol:

Rachel-

I don't know if this was supposed to be funny- but it got me laughing. I live in New York and they carry them at the whole foods here but no where else. I think the brand is gluten fortitude(s) and I think they have a web site I will try to find it out for you.

I tried the lamn again tonight- definitly much better for me than chicken and it has enough taste that I don't really need to add anything to it- a definite plus.

Miamia

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Ok...I have a question. Hopefully someone knows this. Are all dates dried? What are dates exactly? You know like raisins are dried grapes....are dates just a dried version of something else? :unsure:

The reson I'm asking is because I was eating dates. They seem fresh and have pits....I never really knew if they were fresh or dried. I had no problems with them so I figured...."Great...I can eat any dried fruits". Wrong. :ph34r:

I bought bags of dried fruit all organic and unsulphered but they are making me so bloated and gassy and constipated. :(

It doesnt matter which ones I try...they all do it.

So maybe those dates I was eating werent a dried fruit? Could they have been fresh? I didnt get bloated at all with those and right now my tummy hurts and its super hard. Its definately a different pain than the ovary stuff. So I think I can tell the difference from intestinal pain and ovary pain now.

Ooooh...I'm answering my own question.

I found this:

Only one variety grown commercially in the United States - Barhi - can be eaten fresh

Those just happen to be the ones I was eating and am ok with. I guess I cant do dried fruit cuz none of the other dates I've tried or the other dried fruits have agreed with me.

No wonder...I found it strange that I could eat those Barhi ones and not the other dates that are from the same company and in the same containers. I tried the Medjool ones and reacted.

I love it when things make sense. :D

Heres a link all about dates...in case anyone is interested.

Open Original Shared Link

Rachel-

I don't know if this was supposed to be funny- but it got me laughing. I live in New York and they carry them at the whole foods here but no where else. I think the brand is gluten fortitude(s) and I think they have a web site I will try to find it out for you.

I tried the lamn again tonight- definitly much better for me than chicken and it has enough taste that I don't really need to add anything to it- a definite plus.

Miamia

Bummer they dont have them here....I wonder why?

I like lamb...I dont put anything on it either. I only buy one kind though. You know how when you cook beef or lamb or any meat really...you get that yummy grease and juice?? Well I loved that stuff...I like the grease and flavors...I would pour it all over my meat. Well that was a big problem as far as causing reactions so now I buy these lamb sirloin tips and steam them so no juice. They are yummy but expensive.

I believe dates are fresh, however there is such a thing as dried dates, they roll them in oat flour. Also you can get fresh figs. (I think there are also dried figs, so make sure you get the fresh if you do try them out).

But someone can correct me if I am wrong....

Ooooh...next I'll have to try and find fresh figs. I discovered I love figs but I've been eating the dried ones. They're like candy to me but of course with each one I pop into my mouth my stomach grows harder and harder. I'm like Donna in that I cant stop myself. :ph34r:

Haha, I'm watching the Crucible. Sometimes I think this board gets like that :blink:

What is the Crucible? :huh:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

Tonight I was crying because I got frusterated with my symptoms after eating all the dried fruit. Same thing happened last night but I didnt cry over it. I was just feeling really frusterated not knowing why this stuff was bothering me when I'd been eating the dates just fine.

My friend called while I was crying and listened to me vent my frusterations. Then I felt bad for crying and being such a downer. I apologized because I know if I'm crying people worry about me and I didnt want her to worry. She told me not to be sorry....that she calls me because she just wants to talk to me whether I'm crying or not. She said she's just happy to be able to talk to me. That made me feel alot better.

I'm thankful I have such wonderful caring people in my life. :)

AndreaB Contributor
AndreaB
Posted
Tonight I was crying because I got frusterated with my symptoms after eating all the dried fruit. Same thing happened last night but I didnt cry over it. I was just feeling really frusterated not knowing why this stuff was bothering me when I'd been eating the dates just fine.

My friend called while I was crying and listened to me vent my frusterations. Then I felt bad for crying and being such a downer. I apologized because I know if I'm crying people worry about me and I didnt want her to worry. She told me not to be sorry....that she calls me because she just wants to talk to me whether I'm crying or not. She said she's just happy to be able to talk to me. That made me feel alot better.

I'm thankful I have such wonderful caring people in my life. :)

Rachel,

Hugs and glad your friend was able to be there for you. :)

Plus all your cyber friends. It's a little harder to cry on our shoulders though. :P

Sometimes I get down and it is always nice to come talk to you guys. :rolleyes:

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

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    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Welcome, @catnapt! The most recent guidelines are the daily consumption of a minimum of 10g of gluten (about the amount found in 4-6 slices of wheat bread) for a minimum of two weeks. But if possible stretching that out even more would enhance the chances of getting valid test results. These guidelines are for those who have been eating gluten free for a significant amount of time. It's called the "gluten challenge".  Yes, you can develop celiac disease at any stage of life. There is a genetic component but also a stress trigger that is needed to activate the celiac genes. About 30-40% of the general population possesses the genetic potential to develop celiac disease but only about 1% of the general population actually develop celiac disease. For most with the potential, the triggering stress event doesn't happen. It can be many things but often it is a viral infection. Having said that, it is also the case that many, many people who eventually are diagnosed with celiac disease probably experienced the actual onset years before. Many celiacs are of the "silent" type, meaning that symptoms are largely missing or very minor and get overlooked until damage to the small bowel lining becomes advanced or they develop iron deficiency anemia or some other medical problem associated with celiac disease. Many, many are never diagnosed or are diagnosed later in life because they did not experience classic symptoms. And many physicians are only looking for classic symptoms. We now know that there are over 200 symptoms/medical problems associated with celiac disease but many docs are only looking for things like boating, gas, diarrhea. I certainly understand your concerns about not wanting to damage your body by taking on a gluten challenge. Your other option is to totally commit to gluten free eating and see if your symptoms improve. It can take two years or more for complete healing of the small bowel lining once going gluten free but usually people experience significant improvement well before then. If their is significant improvement in your symptoms when going seriously gluten free, then you likely have your answer. You would either have celiac disease or NCGS (Non Celiac Gluten Sensitivity).
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      after several years of issues with a para-gland issue, my endo has decided it's a good idea for me to be tested for celiac disease. I am 70 yrs old and stunned to learn that you can get celiac this late in life. I have just gradually stopped eating most foods that contain gluten over the past several years- they just make me feel ill- although I attributed it to other things like bread spiking blood sugar- or to the things I ate *with* the bread or crackers etc   I went to a party in Nov and ate a LOT of a vegan roast made with vital wheat gluten- as well as stuffing, rolls and pie crust... and OMG I was so sick! the pain, the bloating, the gas, the nausea... I didn't think it would ever end (but it did) and I was ready to go the ER but it finally subsided.   I mentioned this to my endo and now she wants me to be tested for celiac after 2 weeks of being on gluten foods. She has kind of flip flopped on how much gluten I should eat, telling me that if the symptoms are severe I can stop. I am eating 2-3 thin slices of bread per day (or english muffins) and wow- it does make me feel awful. But not as bad as when I ate that massive amnt of vital wheat gluten. so I will continue on if I have to... but what bothers me is - if it IS celiac, it seems stupid for lack of a better word, to intentionally cause more damage to my body... but I am also worried, on the other hand, that this is not a long enough challenge to make the blood work results valid.   can you give me any insight into this please?   thank you
    • trents
      Accuracy of testing concerns

      By trents · Posted

      The biopsy looks for damage to the mucosal lining of the small bowel from the inflammation caused by celiac disease when gluten is ingested. Once you remove gluten from the diet, inflammation subsides and the mucosal lining begins to heal. 
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