Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something

Rachel--24

Recommended Posts

dlp252 Apprentice
dlp252
Posted

It's earlier than I usually make appointments but they didn't have an hour slot until really late in the day, so I took the earlier one.

Dinner will definitely be fun...these girls are a hoot! :lol: It's IMPOSSIBLE to NOT have a good time. :P

I remember My Big Fat Geek Wedding...very funny, lol.

I was hairy too...still am a bit I guess...not quite a unibrow, but was moreso when I was younger. Chin pluck. :lol: I seem to have a bit less now too.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • Replies 33.4k
  • Created
  • Last Reply
AndreaB Contributor
AndreaB
Posted
Kurt came home last night after 10 days and I just burst into tears. :wub:

I'm sooooooo glad he's home. :)

Chin pluck.....I thought I was the only one who had to do that. I figured mine started 20 years ago when I was on the pill. :ph34r: Who knows.

I have upper lip hair that's a little darker. I shaved my upper lip (like daddy) when I was 12 or so. :ph34r: I still have crazy hairs on the edges that are darker.

My daughter was born with lots of facial and body hair. Could that have been from the mercury? She has a darker upper lip as well.

jerseyangel Proficient
jerseyangel
Posted
Yep, I figure I won't get home until around 1:30 at the earliest tomorrow. My appt. is at 12:00 and it's an hour appointment. Depending on what he says and if I need additional testing etc. But I'll definitely post as soon as I get home. I'm going out to dinner with my friends to celebrate one of their birthday's--I definitely will post before I leave for that, so you all aren't hanging. :P

I'll be anxious to hear! Glad you have a dinner engagement to get your mind off it for a little while :) I can't figure out--will I have to wait till 4:30 to hear (my time)? :blink::unsure: I am seriously confused! :o

Kurt came home last night after 10 days and I just burst into tears. :wub:

Yea for Kurt getting home! It's been quite the 10 days for you. :(

Chin pluck.....I thought I was the only one who had to do that. I figured mine started 20 years ago when I was on the pill. :ph34r: Who knows.

Nope--I've been plucking the chin hairs for about 10 years now. Have never taken hormones, either. I don't know what causes it--maybe I just make too much estrogen or something.

I now use a magnified mirror so I don't miss any :ph34r: Actually comes in handy for plucking my eyebrows. Now there's a lovely image :lol:

Andrea--how was your french toast?

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Is it B-O or Bo? :lol: Cute picture of you and BO or Bo. :P

LOL.....ummm...its Bo. :P

I dont know why I made it look like he was called BO. :unsure:

Bo had a sister named Casper. We got them at the same time....I picked Casper and my ex picked Bo. They had to be kept in seperate cages...cuz... you know how rabbits are. :rolleyes:

Casper died when she was about 4....before we even moved to Manteca. Bo died less than a year after I gave him to my friend. Rabbits have short life spans. :(

I called the Dr.'s office about my CD57. The guy who answered the phone said the Dr. goes over results at the follow-up appt. I'm like....ummm...I'm not a new patient and my next appt. is like 6 weeks away. :huh:

He transfered me to the nurses and the nurse said shes gonna leave him a note...cuz my appt. is far away...and its just the one CD57....pretty explanatory. I just want the numbers and we can go over it when I see him. I dont think hes gonna want me to come in sooner....and I dont think he'll want me to wait that long for the results either.

Plus I might DIE if I have to wait that long!! :ph34r:

jerseyangel Proficient
jerseyangel
Posted
Plus I might DIE if I have to wait that long!! :ph34r:

I don't blame you! Hope he gets in contact with you soon :)

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
Rachel--I LOVE what you did with your yard! You have a definate knack for it. It looks like something out of HGTV. :D

Thanks Patti....next week I'll put up a pic of my HEINOUS bourganvillia. :D

Yeah...I was really sick at the time I was doing all that stuff but the yardwork, being outside, keeping my body temp raised seemed to help me alot. I felt alot worse when I was just sitting inside.

Eventually it got to where I couldnt do much of anything and I stopped doing stuff in the yard for like 2 years. It was when I went on the candida diet that I got my strength back and started doing projects again. :)

I can do stuff on my own...I built the pond...I built the scrapbook area with no help from anyone. My ex didnt understand how sick I was...noone did back then. I looked normal and I could still do things as long as it was hot outside and as long as I wasnt eating too much. I was all excited about the pond and how much I'd accomplished in one day....since when I woke up that day I had no idea I'd be building a pond. :huh:

My ex thought someone helped me...that I had been cheating since I was at home everyday and not going to work....but at night I was always very worn out and not feeling good. :(

Sometimes I hate this whole sickness and what it did to my life. :angry:

Rachel--24 Collaborator
Rachel--24
Posted
  • Author

I cant believe it!!!

I do NOT have floaters!! :o

I know we've discussed this before but yeah....maybe I dont have Lyme after all!!! :huh:

:lol::lol:

Just kidding Carla. :P

I've never had any floaters...it must be the only symptom I dont get...and I'm pretty excited that there is at least ONE symtpom that I definately DONT have. :D

Part of me thinks my CD57 might not be low. We'll see...but I just think it might not be that low. <_<

If it is....well then yeah...I guess I'm wrong. :lol:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted
I'll be anxious to hear! Glad you have a dinner engagement to get your mind off it for a little while :) I can't figure out--will I have to wait till 4:30 to hear (my time)? :blink::unsure: I am seriously confused! :o

Yep. :)

Andrea--how was your french toast?

Really good. :D

Plus I might DIE if I have to wait that long!! :ph34r:

I don't think you would die but it would probably be close to that. :P

Somehow I don't think he'll make you wait that long.

dlp252 Apprentice
dlp252
Posted
I can't figure out--will I have to wait till 4:30 to hear (my time)? I am seriously confused!

Well, it's the confused leading the confused then. I think, yes, at least 4:30 your time, lol, but don't hold me to that, lol.

Plus I might DIE if I have to wait that long!!

It's not only YOUR life that might end...tell them there are about 10 other people who might die if you don't find out. :lol:

I can do stuff on my own...I built the pond...I built the scrapbook area with no help from anyone. My ex didnt understand how sick I was...noone did back then. I looked normal and I could still do things as long as it was hot outside and as long as I wasnt eating too much. I was all excited about the pond and how much I'd accomplished in one day....since when I woke up that day I had no idea I'd be building a pond. :huh:

I brought a picture of my dad's yard to scan and put up...but I've had to actually WORK today at work. :P

Rachel--24 Collaborator
Rachel--24
Posted
  • Author
but I've had to actually WORK today at work. :P

WORK :blink:

heinous that they make you do that while you're there!!!! :P

AndreaB Contributor
AndreaB
Posted
Sometimes I hate this whole sickness and what it did to my life. :angry:

I'm sorry you had to go through all of that. :(

Things will only continue to get better though. You're health will improve and as you feel better everthing else will continue to improve.

Part of me thinks my CD57 might not be low. We'll see...but I just think it might not be that low. <_<

If it is....well then yeah...I guess I'm wrong. :lol:

I'm really hoping you get a phone call the next couple days. I want to know now too. :)

AndreaB Contributor
AndreaB
Posted
I brought a picture of my dad's yard to scan and put up...but I've had to actually WORK today at work. :P

Employers are funny that way. :P

I've not done much with school today. Talitha has one class done and we've got two more to do. :)

jerseyangel Proficient
jerseyangel
Posted
I can do stuff on my own...I built the pond...I built the scrapbook area with no help from anyone. My ex didnt understand how sick I was...noone did back then. I looked normal and I could still do things as long as it was hot outside and as long as I wasnt eating too much. I was all excited about the pond and how much I'd accomplished in one day....since when I woke up that day I had no idea I'd be building a pond. :huh:

My ex thought someone helped me...that I had been cheating since I was at home everyday and not going to work....but at night I was always very worn out and not feeling good. :(

Sometimes I hate this whole sickness and what it did to my life. :angry:

I so understand about this. I was the same way--I looked normal, and I always tried to act as if everything was fine. (which, looking back was pretty darn stupid) If I had to be somewhere, I would (not) eat accordingly. My whole life seemed to revolve around my symptoms.

Any energy I had went to my kids. Thank God I have a very understanding husband--but honestly, if the situation were reversed, I don't know if I'd have been so understanding.

I figured that if doctors couldn't find anything wrong, it must be just me.I went years like that. Finally, I came to realize that this wasn't normal--other people didn't have to think up excuses all the time as to why they can't go places and do things. of course by then, a lot of time had gone by....

Little by little, I just stopped doing anything that would take me too far out of the house. I'll never have that 20 years back. I try not to think about it--nothing I can do now about it anyway.

So I truly feel you when you talk about hating all of this and what it did to your life. It's not fair :angry:

jerseyangel Proficient
jerseyangel
Posted
I brought a picture of my dad's yard to scan and put up...but I've had to actually WORK today at work. :P

Well the nerve of them! :lol:

CarlaB Enthusiast
CarlaB
Posted
maybe I dont have Lyme after all!!! :huh:

:lol::lol:

Just kidding Carla. :P

:lol::lol::lol: When I read the first part, I was thinking, "Oh, no, not again!" The second part made me laugh! :lol::lol:

Okay, I was going to say more but I forgot everything I've just read ...

CarlaB Enthusiast
CarlaB
Posted

Oh, yeah, how can I completely forget like that? It's so strange ...

My Big Fat Greek Wedding -- LOVE it! I laughed shamelessly at the theater when I saw it and we own the DVD. Hysterical.

I never had the body hair problem. Adam teases me about my lack of it, calls me the hairless wonder... white fuzz on my arms and legs ... I only have to shave the bottom part of my legs, not the top ... no facial hair at all. In fact, I get my eyebrows dyed darker because they're so light. I have to get them waxed because you can't see them ... what's the point, I know ...

dlp252 Apprentice
dlp252
Posted
WORK

heinous that they make you do that while you're there!!!!

:lol: Yeah, the nerve!

I so understand about this. I was the same way--I looked normal, and I always tried to act as if everything was fine. (which, looking back was pretty darn stupid) If I had to be somewhere, I would (not) eat accordingly. My whole life seemed to revolve around my symptoms.

Any energy I had went to my kids. Thank God I have a very understanding husband--but honestly, if the situation were reversed, I don't know if I'd have been so understanding.

I figured that if doctors couldn't find anything wrong, it must be just me.I went years like that. Finally, I came to realize that this wasn't normal--other people didn't have to think up excuses all the time as to why they can't go places and do things. of course by then, a lot of time had gone by....

Little by little, I just stopped doing anything that would take me too far out of the house. I'll never have that 20 years back. I try not to think about it--nothing I can do now about it anyway.

So I truly feel you when you talk about hating all of this and what it did to your life. It's not fair :angry:

I understand this too...living it now. People invite me places and I'm always saying no (unless it's one of my good friends--they know all about my woes, lol).

All my energy right now is going into making sure I can continue working. I need the medical insurance (such as it is--just found out I have a $500 annual maximum on preventative medicine--isn't that just the stupidest thing in the world...let's pay thousands of dollars for treatments, but let's not spend much to make sure you DON'T get sick) and I need the money to pay the bills, lol.

I'm way more withdrawn than I used to be...don't talk as much (well except to strangers in doctor's waiting rooms :lol: ).

Yep, I understand it.

Mtndog Collaborator
Mtndog
Posted

i would die if I had to wait 6 weeks for ANY test result! In fact, six minutes is too long for me! I HATE waiting.

Carla- you sound just like my sis. She's just peach fuzz (she's blonde) but the payback is that my hair is WAY thicker than hers. We're adopted so not blood related but she used to threaten to cut all my hair off in the middle of the night which is probably why i still sleep with a pillow over my head :ph34r: My hubby and friends call it the head sandwich! :lol:

rachel- I'm sorry about the bunnies. Our neighbors downstairs had one named Moose and we were so sad when he went to Bunny Heaven :( He lived indoors with a litter box like a cat. :D

I have a celiac disease 57 question- I understand that it's a measurement of the "killer cells" that are specific to Lyme but let's say it comes back "normal" (above 60 right? with optimal being 200?) That may just mean that the Lyme is currently not active in your system even though you may have been exposed? Would it mean that the symptoms I'm experiencing are NOT due to Lyme even though I may have Lyme anyway? :ph34r:

I too am feeling very irritable and sad these days about all the illness I've experienced in the last 4 years. My hubby is so good but sometimes I feel bad for him. :(

jerseyangel Proficient
jerseyangel
Posted
I understand this too...living it now. People invite me places and I'm always saying no (unless it's one of my good friends--they know all about my woes, lol).

All my energy right now is going into making sure I can continue working. I need the medical insurance (such as it is--just found out I have a $500 annual maximum on preventative medicine--isn't that just the stupidest thing in the world...let's pay thousands of dollars for treatments, but let's not spend much to make sure you DON'T get sick) and I need the money to pay the bills, lol.

I'm way more withdrawn than I used to be...don't talk as much (well except to strangers in doctor's waiting rooms :lol: ).

Yep, I understand it.

You sure do :( At least I didn't have to worry about going into work--I don't know what I would have done. Makes me anxious just to think about it.

Stupid annual maximum on preventative medicine :angry: It's like they are doing things backward <_<

dlp252 Apprentice
dlp252
Posted

Okay, I put up a picture of my dad's yard...that was several years ago...I haven't seen the house in over 11 years so I don't know what it looks like now...I still own the house (along with my sisters and brother) but I can't go near it...long story. :lol:

And, on my personal page...my first dog Coco...OMG I LOVED those ears, lol. EDIT: OH, and note the lime green shoelaces! :lol:

I have a celiac disease 57 question- I understand that it's a measurement of the "killer cells" that are specific to Lyme but let's say it comes back "normal" (above 60 right? with optimal being 200?) That may just mean that the Lyme is currently not active in your system even though you may have been exposed? Would it mean that the symptoms I'm experiencing are NOT due to Lyme even though I may have Lyme anyway?

I'm not sure. My lymphocytes were low on my regular blood panel from my regular doctor, but for some reason I'm expecting the CD57 test to be normal. If it is normal, I'll ask the doctor your question.

CarlaB Enthusiast
CarlaB
Posted

Bev, I have thick hair, too ... even now after some of it's fallen out from the illness ... my stylist said that it's growing back.

Donna, beautiful yard. I know all about those long stories ...

I feel bad for my hubby, too, but he doesn't feel the same way at all. He likes taking care of me. :P ... it's a good thing, it's his vocation!

jerseyangel Proficient
jerseyangel
Posted

Donna--that yard is beautiful! :) Long stories :(

rinne Apprentice
rinne
Posted
Yep, I figure I won't get home until around 1:30 at the earliest tomorrow. My appt. is at 12:00 and it's an hour appointment. Depending on what he says and if I need additional testing etc. But I'll definitely post as soon as I get home. I'm going out to dinner with my friends to celebrate one of their birthday's--I definitely will post before I leave for that, so you all aren't hanging. :P

Good. :)

Thanks for all the support, who knows it could mean that you really will get to eat them someday. The next part, as in next year, <_< of my business plan is trade shows. I think I like taifuning. :lol:

jerseyangel Proficient
jerseyangel
Posted
Good. :)

Thanks for all the support, who knows it could mean that you really will get to eat them someday. The next part, as in next year, <_< of my business plan is trade shows. I think I like taifuning. :lol:

Well, I, for one, can not wait! I hope someday soon to be one of the first to order :)

What is taifuning? :unsure:

rinne Apprentice
rinne
Posted
Kurt came home last night after 10 days and I just burst into tears. :wub:

:wub:

He transfered me to the nurses and the nurse said shes gonna leave him a note...cuz my appt. is far away...and its just the one CD57....pretty explanatory. I just want the numbers and we can go over it when I see him. I dont think hes gonna want me to come in sooner....and I dont think he'll want me to wait that long for the results either.

Plus I might DIE if I have to wait that long!! :ph34r:

Please don't. :o:lol:

:lol::lol::lol: When I read the first part, I was thinking, "Oh, no, not again!" The second part made me laugh! :lol::lol:

Okay, I was going to say more but I forgot everything I've just read ...

I'm with you on that one. :lol:

Well, I, for one, can not wait! I hope someday soon to be one of the first to order :)

What is taifuning? :unsure:

I told my sweetie that I was going to become a tycoon and he said, "don't you mean taifun?" :lol:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,152
    • Most Online (within 30 mins)
      7,748
    denise.milillo
    Newest Member
    denise.milillo
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.