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No Energy/tired Please Help

Jogi

By Jogi
in Coping with Celiac Disease

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Jogi Newbie
Jogi
Posted

Hello I am new to these forums.

I have been diagnosed with celiac since I was a child. But only recently in the last year or so I have had times where I felt really tired. I could barely keep my eyes open.

I find myself trying to study for school and I have no energy and I can not concentrate. I have no idea what the cause of this is. I tried drinking coffee and still no luck. I take a multi vitamin everyday and drink lots of tea and eat healthy and I do not eat any food containing the substances which we are not allowed to eat.

Does anyone know how I can keep my energy levels up?

I went to the doctor and told him that at least once a month I am so tired I could sleep for days and he sais this is normal. He simply sent me home with nothing.

I have also been experiancing excess hair loss. I am a female with brown shoulder length hair. Does anyone know why this happens?? I wake up in the morning and I see hair everywhere. Please help me.

Thank you in advance for anyone who takes the time to answer my questions. Now I must go sleep as always feeling extremely tired.

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tarnalberry Community Regular
tarnalberry
Posted

You might ask about getting a blood test to find out what your levels of testosterone and estrogen are. Don't let your doctor say no because of age, I'm 25 and have levels too low to be detected by the tests! Taking testosterone has keep me from needing a three hour nap every day! (Not to mention helping a bunch of other symptoms...) But particularly with the tiredness and hairloss, a hormone test could help.

lisabarella Apprentice
lisabarella
Posted

Are you anemic?

Guest jhmom
Guest jhmom
Posted

Hi Jogi:

If your doctor is not taking your fatigue and hair loss serious I would find another doctor. There are a number of things that could be causing your problems, and it needs to be checked into by blood work.

Have you had your thyroid levels checked? That could cause hair loss and fatigue. Do you have unexplained joint or muscle pain? There are a lot things that it could be, that is why it's so important to find a good doctor that will listen to you.

Several months after going gluten free I began to have unexplained EXTREME fatigue and could not do in a day what I once could (cleaning house, running errands, etc.). I went to my doctor and he ran some test after I explained to him what was going on. The test came back positive and I am currently being checked for Lupus, I am already being treated for Hypothyroidism so I knew it wasn't that.

Feel free to send me an email if you have any further questions..... Take care and I hope you find some energy soon!

Chaz Newbie
Chaz
Posted

Anemia is a real possibility as celiac can interfere with iron absorption.This can really cause problems with low energy and sleepiness too.Is your doctor really familiar with celiac disease.Many are not and they tend to downplay symptoms like these.Bloodtests are probably a good idea.My doctors also checked for thyroid problems as mentioned above.I do construction work and I can vouch for the fact that anemia can really take a toll on your energy.

good luck

flagbabyds Collaborator
flagbabyds
Posted

It could very welll be thyroid problems, you could also try and see a sleep doctor. in the fall i started to be so tired and i went to a sleep doctor and it turns out i have sleep apnea, you nver know, you could be ripping your hair out in you sleep.

OleSoftie Newbie
OleSoftie
Posted

Hi Jogi,

You should be checked for iron deficiency anemia. I was extremely tired, and my doctor found that my iron levels were so low that I had to have a tranfusion of iron (not a blood tranfusion- just iron in solution). It really helped to boost my energy, and taking a daily iron supplement keeps me feeling good.

Good luck to you!

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kalo Rookie
kalo
Posted

Check out the thyroid info at about.com. There are many undiagnosed/undertreated thryoid people in the world. Most doctors don't have a clue. Also, do a search for the Broda Barnes Foundation. They have some good info. thyroid@yahoogroups.com is a good support group and place to ask questions. Get the right tests done (TSH, FT3 and FT4) and post to the group including lab ranges. F=free. Never hurts to get it checked out. Hugs, Carol B

Jogi Newbie
Jogi
Posted
  • Author

Thank you for the help :) I really apreciate it.

I have had blood tested before but this was for vitamins and he said everything was fine. I will go see the same doctor next week and get these tests done this is really getting worse.

Thank you for all your help.

Also I was wondering if any of you take daily pills or supplements to help with vitamin intake? I am curious if I should be taking something outside of eating healthy.

Thank you to all :)

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    • trents
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By trents · Posted

      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By HAUS · Posted

      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
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