Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wow Disney Is Great!

lisaemu

By lisaemu
in Traveling with Celiac Disease

Recommended Posts

lisaemu Contributor
lisaemu
Posted

I've gone to Disneyworld dozens of times (my brother works for them), and am going in 3 weeks. Im nervous because this is my first time going since having to be gluten free. I've heard great reviews of how accomodating they are, and I called them today and wow! The lady was really helpful and knowledable (she even mentioned cross contaimination issues) and she sent me an email with a lot of helpful stuff. If anyone needs the number or is interested in their response, let me know. Ill report back on how the vacation goes in a few weeks! :)

  • 4 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Katie O'Rourke Rookie
Katie O'Rourke
Posted
I've gone to Disneyworld dozens of times (my brother works for them), and am going in 3 weeks. Im nervous because this is my first time going since having to be gluten free. I've heard great reviews of how accomodating they are, and I called them today and wow! The lady was really helpful and knowledable (she even mentioned cross contaimination issues) and she sent me an email with a lot of helpful stuff. If anyone needs the number or is interested in their response, let me know. Ill report back on how the vacation goes in a few weeks! :)

Hi. I am in England and am plannign to visit the one in Florida nxt year and am having a biit of a panic sorting it out. Would be really great and really helpful if you could send me any info you have. Ive only been diagnosed 2 years and am now 21, so still getting used to it. Am really hoping to go though, but am worried I'll have to book all the restaurants in advance before I leave, which can be expensive if youre calling internationally. Ive heard that the hotels and kiosks are not much good, but that some of the restaurants are great, as long as you book in advance.

Could you possibly forward me the email? Would be ever so grateful, thanks :)

mbg98 Contributor
mbg98
Posted

We went to disney about a month a go, I ate so well! The resteraunts were FANTASTIC! the chefs came out and sat with me and went over my menu options and if I didn't want anything from that menu they would fix me something. I even had great desserts! The chef at our hotel made me a delicious breakfast every morning, he makes the best gluten-free panckaces. I got a list of all the quick service places in the parks that served gluten-free foods and what I could and couldnt have, let me know if you would have any intrest in those lists. Anyway, you will not have a single problem in Disney the food and ways they accomodate you are amazing! not to mention you can have all the Mcdonalds fries you want bieng they have carts through out the parks that only serve the fries and these are gluten-free! There is even a place in Magic Kingdom that has gluten-free pizza!!

Good luck and let me know if you want those lists.

dionnek Enthusiast
dionnek
Posted

How was the vacation? Where did you stay and eat? I'm interested in learning all I can before we go in October (have heard a lot of good things about the restaurants and parks being gluten-free, but not so much about the hotels - now wondering if we should stay at a non-dinsey hotel for cheaper?).

nothungry Contributor
nothungry
Posted

I'm planning my disney trip right now...I would love to hear more about your dining! We are staying on site.

astyanax Rookie
astyanax
Posted

i was just there a few weeks ago, my mom and i go every year. when you make reservations at a restaurant include that you are gluten free. we were also able to get gluten free food when we went to a restaurant (the brown derby in MGM) without a reservation (they even had gluten-free rolls!).

i stayed at the grand floridian and their room service was really great about cooking gluten-free. you can also contact disney (i did it through the main website) and get gluten-free lists for each of the parks. things like hot dogs and burgers are gluten-free. at the quick service counters, ask for a manager. i found at the quick service counters it took awhile to get the gluten-free food but they do try and a manager will understand the cross contamination issues. the popcorn carts in all the parks are gluten free and i never had it, but apparently there's a gluten free brownie sold in epcot. a few places will do gluten-free pizza as well (i never did that though cos of the time it takes).

disney will also let you bring in food.

hope this helps! it's a great place for dietary needs. it's one of the reasons my mom and i keep going back.

2kids4me Contributor
2kids4me
Posted

We went to Disneyland (California) last year. It was GREAT! There is a fellow by the name of "Chef Chris", he manages all the chefs on the Disney land site - he can tell you where to eat, what to ask for etc. You can get his number from Disneyland Hotel or a travel agent should be able to find it, if oyuleave message - he gets back to you quickly, have pen ready to write stuff down.

I was advised to call him before we arrived in Disneyland to get current information about the restaurants and to let him know when we would arrive. My first impression of Chef Chris was that this guy was intelligent, funny, and he or any of the Disneyland chefs would be more than capable of handling our dietary needs.

We ate at many restaurants in Disneyland and had no problems at all. At the sit down locations, the chef would come to the table, visit with the children, take their order and then deliver it personally. It was a bit scary at some self serve outlets where you place an order and then pick it up at a window, but my fears were unfounded as the message about "gluten free" was easily conveyed to the kitchen and the request was handled with a knowledgable smile. I am used to a puzzled look and "You don't want a bun??" response I get back home in Calgary! In Tomorrowland, Red Rocket's Pizza Port was very busy with pizza and pasta on the menu ...all I had to say was: "Chef Chris told me you could make rice pasta..." and the chef nodded with a smile and then apologized that it may take 8 to 10 minutes for it to cook. I watched as he used a new spoon and added sauce from a new tub (no contamination possible) and added some carrots on the side. This place was a zoo while he did all this!! Chef Chris says that what looks busy to us is normal for them.

Kathryn is my "canary in the coal mine" when it comes to gluten and I know within hours if she has received hidden gluten; both children remained healthy and happy during our trip. The chefs at Disneyland gave us what we had dreamed about - for 5 days we were just like everybody else. We could walk into any restaurant, simply ask for gluten free; no confused waiters, harried chefs, or added expense for "special food". I have insulin dependent diabetes just like Matthew and we found that diabetes posed no problem; we were provided with a list of carbohydrate values for the various items so that we could follow our diet requirements. The kids LOVED the food and asked for autographs from each chef.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. dixonpete
      0

      Hookworm load planner

    2. AlwaysLearning
      - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Get tested for vitamin deficiencies. Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    3. Colleen H
      - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

      Thank you so much for your response Yes it seems as though things get very painful as time goes on. I'm not eating gluten as far as I know. However, I'm not sure of cross contamination. My system seems to weaken to hidden spices and other possibilities. ??? if cross contamination is possible...I am in a super sensitive mode of celiac disease...
    4. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not...
    5. AlwaysLearning
      - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does m...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,090
    • Most Online (within 30 mins)
      7,748
    Jamie B
    Newest Member
    Jamie B
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.