Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Joint Pain

jaimi alderson

Recommended Posts

jaimi alderson Enthusiast
jaimi alderson
Posted

Hi! I am just trying to figure out my joint pain. I had NO JOINT PAIN whatsoever until two weeks AFTER I was diagnosed (which means the pain started two weeks AFTER going gluten-free.) I had my osteoporosis test today & get results tomorrow. Does anyone have any insight as to why I developed joint pain after starting gluten-free diet? My biopsy showed chronic inflammation which means the damage had been going on for awhile. So if I had active celiac disease for awhile (years?) why did I have NO joint pain until now? Especially now that I am gluten-free? I understand that I really just have to wait & see how I am 3-6 months after being gluten-free but this just seems so strange. It is my back & my hips. Does anyone have osteoporosis due to celiac disease?

thank you!

  • 2 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DEE BAERTSCH Newbie
DEE BAERTSCH
Posted
Hi! I am just trying to figure out my joint pain. I had NO JOINT PAIN whatsoever until two weeks AFTER I was diagnosed (which means the pain started two weeks AFTER going gluten-free.) I had my osteoporosis test today & get results tomorrow. Does anyone have any insight as to why I developed joint pain after starting gluten-free diet? My biopsy showed chronic inflammation which means the damage had been going on for awhile. So if I had active celiac disease for awhile (years?) why did I have NO joint pain until now? Especially now that I am gluten-free? I understand that I really just have to wait & see how I am 3-6 months after being gluten-free but this just seems so strange. It is my back & my hips. Does anyone have osteoporosis due to celiac disease?

thank you!

Hi Jaimi; I have osteoporosis from celiac. I was also vitamin D deficient, which most celiacs and people with osteoporosis are. The vitamin D deficiency was what caused my joint pain. After supplementing with vitamin D, my joint pain is now gone. My Dr. said you need to have the hydroxy 25 vitamin D test to determine if you're deficient; a simple vitamin D blood test will not tell you what you need to know. One other thing that caused inflammation in my joints was taking an iron supplement since I was anemic; once you have celiac you are more susceptible to hemochromotosis (iron overload); that will cause joint inflammation. Rather tricky; you need iron, but not too much.

The thing is that once you develop celiac your body needs some fine tuning. You're likely to be malnourished; your body wasn't able to absorb the vitamins & minerals it needed from your food so you are going to need a liquid multi vitamin that's gluten free.

It's hard to know about the timing of your back pain. My iron overload problem came after I had been gluten free for a year & a half, but it was because I started a new multivitamin that had iron. It is so easy to get gluttened unintentionally; plus there are so many other things that factor in once your body gets screwed up. The damage to your intestines is rather significant, so other things being out of balance just make sense. This web site and the advice from other people who have gone thru what you are is invaluable; it has helped me immeasurably! Good Luck!

Dee

judy05 Apprentice
judy05
Posted
Hi Jaimi; I have osteoporosis from celiac. I was also vitamin D deficient, which most celiacs and people with osteoporosis are. The vitamin D deficiency was what caused my joint pain. After supplementing with vitamin D, my joint pain is now gone. My Dr. said you need to have the hydroxy 25 vitamin D test to determine if you're deficient; a simple vitamin D blood test will not tell you what you need to know. One other thing that caused inflammation in my joints was taking an iron supplement since I was anemic; once you have celiac you are more susceptible to hemochromotosis (iron overload); that will cause joint inflammation. Rather tricky; you need iron, but not too much.

The thing is that once you develop celiac your body needs some fine tuning. You're likely to be malnourished; your body wasn't able to absorb the vitamins & minerals it needed from your food so you are going to need a liquid multi vitamin that's gluten free.

It's hard to know about the timing of your back pain. My iron overload problem came after I had been gluten free for a year & a half, but it was because I started a new multivitamin that had iron. It is so easy to get gluttened unintentionally; plus there are so many other things that factor in once your body gets screwed up. The damage to your intestines is rather significant, so other things being out of balance just make sense. This web site and the advice from other people who have gone thru what you are is invaluable; it has helped me immeasurably! Good Luck!

Dee

Hi,

I have been gluten free for 3 years. 2 weeks ago I developed hip and leg pains, went to Dr who had no idea, said maybe I was developing arthritis. I can't take any NSAIDs so I posted a message on here and got what I think is the answer to my problem. We are remodeling a house using drywall and paint. To help move things along I was sweeping up the dust every night. Another board member pointed out that there is gluten in the drywall mud and I was covering myself with it everyday. i don't know why it settled in my legs and hips instead of the digestive tract, but I was glutening myself. I don't have true Celiac (I don't carry the gene) but i have serious food intolerances and have had a long list of problems and 2 serious autoimmune probems. My answer to you is look over anything new you are being exposed to, I have even been glutened in the dentist chair. Perhaps you need to eliminate Dairy, I had to to get better. the only dairy I can tolerate is Cheddar Cheese. I also drink rice milk. Please let us know what you find out, we have all been through it, that's why this board is so helpful. Good luck

jaimi alderson Enthusiast
jaimi alderson
Posted
  • Author

My problem with all of this is that my hip/back/leg pain did not start until 2 weeks after being gluten-free. I had no pain while having undiagnosed celiac disease. Also though I had no celiac symptoms at all though EXCEPT that my whole family got rhotavirus & mine would not go away after 2 weeks. This pain feels sooooo hormonal-exactly like it did when I was pregnant both times (I have had a negative pregnancy blood test in the last month so that is not it.) Anyway my body is not liking something. I do not have osteoporosis or vit d deficiency although I should have the more comprehensive test for the Vit d. I just don't feel I am being glutened as when I was not gluten-free I did not have this pain! I just don't understand why it didn't appear until AFTER I went gluten-free!! Thanks for all your input!!!!!!! My kids do not give me much to reply!!!!!!!!!!

lonewolf Collaborator
lonewolf
Posted

Just a thought - Did you add anything to your diet when you went gluten-free? Like using more corn, soy, eggs or dairy? Maybe you have been eating more of something you're sensitive to that has intensified.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,982
    • Most Online (within 30 mins)
      7,748
    Jean MacDonald
    Newest Member
    Jean MacDonald
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.