Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating


MsHeart&Soul

Recommended Posts

MsHeart&Soul Newbie

I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I find that I get bloated by a lot of things other than gluten. You may need to do an elimination diet to find out if you have other intolerances besides celiac disease. It's not too likely they will be as numerous as mine, but most people with celiac disease have other intolerances as well. The most common ones seem to be dairy and nightshades (potatoes, tomatoes, peppers, eggplant), soy, corn, but it could be anything.

I would start out testing the foods high in lectins (for more info, follow the link in my signature). Start by eliminating them all for at least two weeks, and see how you feel. Then test one group at a time.

I would try that first, before doing any more invasive tests.

Hope this helps.

lisaemu Contributor
I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo

I agree with paying attention to possible other intollerances, especially to dairy since a lot of people with celiacs seem to have that problem. Do you use a lot of gluten free subsitututes, like bread and muffins and such? A lot of them seem to be pretty high in calories and low in fiber, which can lead to eating more. I struggle with bloating too, and am trying to figure out what its from as well. Good luck!

  • 2 weeks later...
deena647 Apprentice
I agree with paying attention to possible other intollerances, especially to dairy since a lot of people with celiacs seem to have that problem. Do you use a lot of gluten free subsitututes, like bread and muffins and such? A lot of them seem to be pretty high in calories and low in fiber, which can lead to eating more. I struggle with bloating too, and am trying to figure out what its from as well. Good luck!

Hello, I get bloated in my lower abs. When I first started eating gluten free, about 4 months now my tummy and body felt lighter, now I have been feeling heavy. I do not eat alot of the sweets and I drink lactaid milk and use lactaid cheese, I also do not eat the gluten free flours, so I am so confused on my bloated feeling.

I love JESUS and I know He is with me......Deena

  • 8 months later...
Guest CarBear
I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo

I think I gained 20 pounds while I was first sick and unaware of my Celiac Disease. Slowly I have lost the weight, but now I am dealing with gallbladder/kidney issues and the HORRIBLE and DISGUSTING bloating feeling has reared its ugly head, although I am still religious about following my diet.

debb Newbie

Look for gluten in unexpected products. I found that I felt great at first, then after about 6 months I began feeling bloated again. A celiac friend told me about hidden sources of gluten that she had found, malt, caramel color and flavors sometimes, msg and more. Look on the celiac.org website. Another big one that I never thought about is beauty products. Sure enough many of my hair products contained wheat protein. Out they went! I still have occasional bouts of bloating and I am pretty sure it is related to eating hidden gluten in some form, it seems to be everywhere. I also found that my reaction time is slower than many, it may often take a day or even two for me to feel the effects of eating a food with gluten in it....I have a very sluggish system!

hathor Contributor

Have you been using any sugar-free products containing sorbitol? That makes some people bloat.

I agree that an elimination diet might be called for if you can't identify the problem. You can either take things out one at a time or start out with a diet without the usual irritants and then add things in one and a time and see how you do. I can find a link for the latter approach if you are interested. Or you can google and see what you find.

Have you noticed the tenderness after particular foods? How well are you digesting things in your stomach? Do you sometimes have the food just sit there and not move out, particularly a high fat meal? If you are having digestive issues higher up (you mention under the breast area), particularly in response to fat, it may be a gall bladder problem. This is something I dealt with before I changed my diet.

Yes, it was akin to the old joke, "Doctor, doctor, it hurts when I do this" ... "Then don't do that." I told him the foods that made my stomach hurt and he told me not to eat them. Yes, that's why he gets the big bucks :rolleyes:

I suggest keeping a food diary and seeing if you can find some pattern to your symptoms. Other than eliminating gluten, did your diet change in any other way? Any changes close to when you started bloating or has that been there a long time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Just another broken record saying "see if you can identify other foods causing this problem". Milk (lactose intolerance) is a *very common* culprit, but *MANY* other things can cause it as well.

Mayflowers Contributor

Being 25 pounds overweight would make one feel pretty bloated. I'm 40 pounds overweight. :blink:

flowergirl Rookie

After going gluten free there were still many things that made me bloated and caused green diarhea. :ph34r: You'll see in my signature that I avoid gluten free processed foods (like flours etc), soy, sugar and dairy. Things are much better now. When I'm not glutened, my tummy is flat more than 50% of the time. Last month we celebrated because for the first time in 7 yrs I can wear a size 12 jean. (I used to toggle between 14 - 18) Now it doesn't fit anymore... yesterday I managed to slip into a size 10. :rolleyes::lol:

Best wishes with indentifing the nasties and no-no's. I know it's hard but it can be done. I agree with the others. The elimination diet and a diary is the way to go. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - JoJo0611 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Awaiting Biopsy results

    2. - cristiana replied to emzie's topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    3. - emzie posted a topic in Related Issues & Disorders
      1

      Stomach hurts with movement

    4. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      3

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,455
    • Most Online (within 30 mins)
      7,748

    jscal6
    Newest Member
    jscal6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • JoJo0611
      I have had my endoscopy this morning with biopsies. My consultant said that it looked like I did have coeliac disease from what he could see. I now have to wait 3 weeks for the biopsy results. Do I continue eating gluten till my follow appointment in three weeks.  
    • cristiana
      Hi @emzie and welcome to the forum. Perhaps could be residual inflammation and bloating that is causing sensitivity in that area.  I was diagnosed with coeliac disease in 2013 and I remember some years ago my sister telling me around that time that she had a lady in her church, also a coeliac, who  had real pain when she turned her torso in a certain direction whilst doing exercises, but otherwise was responding well to the gluten-free diet. As far as I know is still the picture of health. I often end up with pain in various parts of my gut if I eat too much rich food or certain types of fibre (for some reasons walnuts make my gut hurt, and rice cakes!) and and as a rule, the pain usually hangs around for a number of days, maybe up to a week.   When I bend over or turn, I can feel it.  I think this is actually due to my other diagnosis of IBS, for years I thought I had a rumbling appendix but I think it must have just been IBS.  Reading the experiences of other sufferers, it seems quite typical.  Sensitized gut, build up of gas - it stands to reason that the extra pressure of turning can increase the pain. When I am glutened I get a burning, gnawing pain in my stomach on and off for some days - it isn't constant, but it can take up a few hours of the day.  I believe this to be gastritis, but it seems to hurt irrespective of movement.   Anyway, you are doing the right thing to seek a professional opinion, though, so do let us know how you get on.   Meanwhile, might I suggest you drink peppermint tea, or try slices of fresh ginger in hot water? A lot of IBS sufferers say the former is very helpful in relieving cramps, etc, and the latter is very soothing on the stomach. Cristiana
    • emzie
      Hi! One of the usual symptoms I have with a gluten flare up has deviated a bit and I thought I'd search for advice/opinions here. Also to see if anyone goes through similar stuff. Monday all of a sudden I got really bad pain in my stomach (centre, right under the chest, where the duodenum would be located). I ended up having to throw up for 2 hours, my body was trying to get rid of something from all sides and it was just horrible. Since then I havent been nauseous anymore at all, but the pain has stayed and it always worsens the moment i start moving. The more I move the more it hurts, and when i rest longer it seems to dissapear (no movement). I've had this before, but years ago I think around when I first got diagnosed with coeliac, where each time I moved, my stomach would hurt, to the point where I went to the ER because doctors got freaked out. That only lasted 1 night though, and Now it's already wednesday, so 3 days since then, but the pain persists and remains leveled. it doesn't get crazy intense, but it's still uncomfortable to the point I cant really go out because Im afraid itll turn into a giant flare up again. I couldn't think of where I could possibly have been glutened at this bad of a level and why it hasn't passed yet. I went to the GP, and as long as I have no fever and the pain isnt insane then its fine which I havent had yet. Tomorrow im also seeing a gastroenterologist specialized in IBS and coeliac for the first time finally in years, but I thought I'd ask on here anyway because it still hasnt dissapeared. It also hurts when someone presses on it. Maybe it's just really inflamed/irritated. I'm just frustrated because I'm missing out on my uni lectures and I do a sports bachelor, so I can't get behind on stuff & next to that i'm also going to go to the beach with my boyfriend's family this weekend: ( 
    • Flash1970
      Hi. So sorry to hear about your shingles. There is a lidocaine cream that you can get at Walmart that will help numb the pain.  That's what I used for mine. It can't be put near your eyes or in your ears. I hope your doctor gave you valacyclovir which is an antiviral.  It does lessen the symptoms. If it is in your eyes,  see an ophthalmologist.  They have an antiviral eye drop that can be prescribed.  Shingles in the eye could cause blindness.  I was unsure whether you have celiac or not.  If you do,  follow the diet.  I believe that extra stress on your body does affect everything. Shingles can recur. If you start getting the warning signs of nerves tingling,  see the dr and start taking the valacyclovir to prevent a breakout. If I sound technical,  I am a retired pharmacist. 
    • Scott Adams
      You are right to be proactive, as research does indicate that individuals with celiac disease can have a higher predisposition to enamel defects, cavities, and periodontal issues, even with excellent oral hygiene. While many people with celiac successfully undergo orthodontic treatment without complication, your caution is valid. It may be beneficial to seek a consultation with an orthodontist who is familiar with managing patients with autoimmune conditions or who is willing to collaborate with your daughter's gastroenterologist or a periodontist. They can perform a thorough assessment of her current oral health, discuss your specific concerns about recession and decay, and create a tailored hygiene plan. This second opinion could provide a clearer risk-benefit analysis, helping you decide if addressing the cosmetic concern of the lower teeth is worth the potential risks for your daughter, especially if they are not currently affecting function or her confidence. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.