Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bloating


MsHeart&Soul

Recommended Posts

MsHeart&Soul Newbie

I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ursa Major Collaborator

I find that I get bloated by a lot of things other than gluten. You may need to do an elimination diet to find out if you have other intolerances besides celiac disease. It's not too likely they will be as numerous as mine, but most people with celiac disease have other intolerances as well. The most common ones seem to be dairy and nightshades (potatoes, tomatoes, peppers, eggplant), soy, corn, but it could be anything.

I would start out testing the foods high in lectins (for more info, follow the link in my signature). Start by eliminating them all for at least two weeks, and see how you feel. Then test one group at a time.

I would try that first, before doing any more invasive tests.

Hope this helps.

lisaemu Contributor
I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo

I agree with paying attention to possible other intollerances, especially to dairy since a lot of people with celiacs seem to have that problem. Do you use a lot of gluten free subsitututes, like bread and muffins and such? A lot of them seem to be pretty high in calories and low in fiber, which can lead to eating more. I struggle with bloating too, and am trying to figure out what its from as well. Good luck!

  • 2 weeks later...
deena647 Apprentice
I agree with paying attention to possible other intollerances, especially to dairy since a lot of people with celiacs seem to have that problem. Do you use a lot of gluten free subsitututes, like bread and muffins and such? A lot of them seem to be pretty high in calories and low in fiber, which can lead to eating more. I struggle with bloating too, and am trying to figure out what its from as well. Good luck!

Hello, I get bloated in my lower abs. When I first started eating gluten free, about 4 months now my tummy and body felt lighter, now I have been feeling heavy. I do not eat alot of the sweets and I drink lactaid milk and use lactaid cheese, I also do not eat the gluten free flours, so I am so confused on my bloated feeling.

I love JESUS and I know He is with me......Deena

  • 8 months later...
Guest CarBear
I got diagnosed about 4 years ago with Celiac Sprue. Joined Celiac Association in Omaha, Nebraska. I am still learning, I try to be careful of things I eat. But I always had a flat tummy and all but I now get so bloated under my breast area, it's so uncomfortable, plus in about 5 years I put on about 25 pounds. I am only 5'3 so it feels like more.

My gastro doctor wants me to have another CT Scan pelvicc dye and all, I get panic attacks when I have that done now..So it's hard for me and very expensive....Have any of you had any other tests that may help? Where my stomach meets the intestinonal area there is a vert tender area, it comes and goes but my doc wants to see what's going on?

Again I try to be careful but realize that sometimes the tinest thing can trigger reactions in my body. If you have any suggestions for me please write! Thanks so much..............xo

I think I gained 20 pounds while I was first sick and unaware of my Celiac Disease. Slowly I have lost the weight, but now I am dealing with gallbladder/kidney issues and the HORRIBLE and DISGUSTING bloating feeling has reared its ugly head, although I am still religious about following my diet.

debb Newbie

Look for gluten in unexpected products. I found that I felt great at first, then after about 6 months I began feeling bloated again. A celiac friend told me about hidden sources of gluten that she had found, malt, caramel color and flavors sometimes, msg and more. Look on the celiac.org website. Another big one that I never thought about is beauty products. Sure enough many of my hair products contained wheat protein. Out they went! I still have occasional bouts of bloating and I am pretty sure it is related to eating hidden gluten in some form, it seems to be everywhere. I also found that my reaction time is slower than many, it may often take a day or even two for me to feel the effects of eating a food with gluten in it....I have a very sluggish system!

hathor Contributor

Have you been using any sugar-free products containing sorbitol? That makes some people bloat.

I agree that an elimination diet might be called for if you can't identify the problem. You can either take things out one at a time or start out with a diet without the usual irritants and then add things in one and a time and see how you do. I can find a link for the latter approach if you are interested. Or you can google and see what you find.

Have you noticed the tenderness after particular foods? How well are you digesting things in your stomach? Do you sometimes have the food just sit there and not move out, particularly a high fat meal? If you are having digestive issues higher up (you mention under the breast area), particularly in response to fat, it may be a gall bladder problem. This is something I dealt with before I changed my diet.

Yes, it was akin to the old joke, "Doctor, doctor, it hurts when I do this" ... "Then don't do that." I told him the foods that made my stomach hurt and he told me not to eat them. Yes, that's why he gets the big bucks :rolleyes:

I suggest keeping a food diary and seeing if you can find some pattern to your symptoms. Other than eliminating gluten, did your diet change in any other way? Any changes close to when you started bloating or has that been there a long time?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Just another broken record saying "see if you can identify other foods causing this problem". Milk (lactose intolerance) is a *very common* culprit, but *MANY* other things can cause it as well.

Mayflowers Contributor

Being 25 pounds overweight would make one feel pretty bloated. I'm 40 pounds overweight. :blink:

flowergirl Rookie

After going gluten free there were still many things that made me bloated and caused green diarhea. :ph34r: You'll see in my signature that I avoid gluten free processed foods (like flours etc), soy, sugar and dairy. Things are much better now. When I'm not glutened, my tummy is flat more than 50% of the time. Last month we celebrated because for the first time in 7 yrs I can wear a size 12 jean. (I used to toggle between 14 - 18) Now it doesn't fit anymore... yesterday I managed to slip into a size 10. :rolleyes::lol:

Best wishes with indentifing the nasties and no-no's. I know it's hard but it can be done. I agree with the others. The elimination diet and a diary is the way to go. ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.