Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Add In Children-anyone See A Difference Going gluten-free?


Guest momx3

Recommended Posts

Guest momx3

My 10yo son was diagnosed in kindergarten with ADD. He exhibits all of the classic symptoms of ADD-inability to sit still, lack of concentration/focus, etc-but he also exhibits many of the celiac disease symptoms. Just today, he was in agony all day and vomited this afternoon after eating soy sauce last night. He often has leg cramps, he's short & skinny for his age, often has stomach troubles (which I have often attributed to his ADD meds). We're in the process of screening my 13mo old son for celiac disease and have been reading a little about the connection between ADD & celiac disease & it just all made sense....

Does anyone have experience with ADD and a gluten-free diet? Have you noticed a decrease in symptoms?

Thanks! Kate


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



shayesmom Rookie
My 10yo son was diagnosed in kindergarten with ADD. He exhibits all of the classic symptoms of ADD-inability to sit still, lack of concentration/focus, etc-but he also exhibits many of the celiac disease symptoms. Just today, he was in agony all day and vomited this afternoon after eating soy sauce last night. He often has leg cramps, he's short & skinny for his age, often has stomach troubles (which I have often attributed to his ADD meds). We're in the process of screening my 13mo old son for celiac disease and have been reading a little about the connection between ADD & celiac disease & it just all made sense....

Does anyone have experience with ADD and a gluten-free diet? Have you noticed a decrease in symptoms?

Thanks! Kate

My dd does not have ADD but I can honestly tell you that at 15 months of age, I was TERRIFIED that she'd have it as she already exhibited the symptoms. We were never officially diagnosed with Celiac either but rather, had implemented a gluten-free diet just prior to seeing our GI specialist (didn't know we weren't "supposed" to do that). The change in behavior was the FIRST drastic change we noticed. In 24 hours, our dd could sit still and concentrate and in 3 days, her verbal skills jumped through the roof! Diarrhea cleared up in 3-4 days and appetite increased drastically from that point on and she began gaining weight.

I should also mention that certain other foods ended up coming out of her diet as well. She still reacts to all forms of dairy, artificial sweeteners, food colorings (especially yellow #5, red #33 and #40) and to certain amounts of soy and even eggs (doesn't react if they are baked in a recipe though). I guess what I am saying is that sometimes removing gluten just isn't enough and you have to experiment a bit to see what is working. The best thing you can do is monitor behavior, progress and symptoms in a food journal. By keeping track of things that way, you will find it to be much easier to pinpoint problematic foods. HTH

sarahjo Newbie

we thought that our 2 year old might have it, but when she is milk, wheat, gluten free she improves dramatically. the medicines for add have nasty side effects. there alot of books that explain the relationship between the diet and add/adhd. to be honest i wouldn't give my kid the medicine before trying the diet. you need to do what is best for you and your child. but research the connection between the 2. good luck, let me know.

lonewolf Collaborator

My 11 yo son's teacher suggested he be tested for ADD earlier this school year. I took him to the pediatrician, asked about Celiac (he tested negative) and other food issues. He's already off milk and has been since about 13 months old. The pediatrician suggested going wheat free, no matter what the tests showed. I had him go gluten-free and he has done well. His teacher no longer thinks he needs to be tested. He still sometimes "zones out", but is a LOT better.

DonnaD Apprentice
My 11 yo son's teacher suggested he be tested for ADD earlier this school year. I took him to the pediatrician, asked about Celiac (he tested negative) and other food issues. He's already off milk and has been since about 13 months old. The pediatrician suggested going wheat free, no matter what the tests showed. I had him go gluten-free and he has done well. His teacher no longer thinks he needs to be tested. He still sometimes "zones out", but is a LOT better.

Plse see Open Original Shared Link where I have just posted re this subject and my daughter.

Sorry rushing to go out!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,983
    • Most Online (within 30 mins)
      7,748

    CRae
    Newest Member
    CRae
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      @Riley., Welcome to the forum.   It was once believed that Celiac Disease was only a childhood disease and it can be outgrown.  That was before 1951, before gluten was discovered to be cause of Celiac Disease, also called Infantilism.  Back then Cileac Disease was thought to be only a gastro intestinal disease, once you  "outgrew" the colicky phase, you were cured. You were so lucky to be diagnosed at 5 years old so your developing years were normal.  Gluten can affect multiple systems.  The nervous system, your intellegence. The muscules, skeleton. It can cause neurological issues like brain fog, anxiety, and peripheral neuropathy.  It can cause joint pain, muscle weakness, and skin rashes. Epilepsy is 1.8 times more prevalent in patients with celiac disease, compared to the general population. Because through malabsorption and food avoidances, it causes vitamin D and numerouus other essential nutrient deficiencies, it allows allergies, infections, poor growth, stuffy sinuses and eustacian tubes. There is even a catagory of celiac disease called "Silent Celiac".  Any symptoms are explained away as this, that or the other thing. Gluten is one of the most addictive substances we consume.  Activating the Opiod receptors in our cells, it can numb us to the damage that it, and other foods are causing.  It has become socially acceptable to eat foods that make us feel sick.  "There's a pill for that".   It is generally accepted that n fact you are weird if you don't. The hardest part is that if you don't eat gluten you will feel great and think why not.  But slowly it will effect you, you'll be diagnosed with real diseases that you don't have. You'll be more susseptable to other autoimmune diseases.  As you read through the posts here, notice how many are finally dianosed, after years of suffering at older ages.  Is it worth it? I think not. Perhaps this book will help:  Here is a list of possible symptoms:   
    • Riley.
      Hi! Im Riley, 18 years old and have been diagnosed for 13 years.. the testing started bc I stopped growing and didn’t gain any weight and was really small and thin for my age.  I got diagnosed when I was 5 and have been living gluten free since, in elementary and middle school it was hard for me and I kept contaminating myself bc I wanted to fit in with my friends so so badly. I ate gluten secretly at school and mostly regretted it 30 minutes later.  I’ve had symptoms like diarrhea, nausea, headaches, stomachaches, threw up a lot and was really emotional.  In 2022 I really started working on myself and tried to stay gluten free and if I did eat gluten I wouldn’t tell anyone and suffer in silence.  Last year in July I begged my mom to let me „cheat“ one day bc I just wanted to fit in… I ate a lot of different stuff, all the stuff I missed out on in my childhood like nuggets, pizza and all that.. I didn’t have symptoms that day and was doing really fine My mom and I wanted to test how far we can go and said we would test it for 12 weeks to get my blood taken after to see if I’m doing good or if symptoms start showing  As a now 18 year old girl who finally gained a normal weight and doesn’t get symptoms I’m to scared to get tested/my blood taken cuz I finally found comfort in food and it got so much easier for me and my family.  A year and 4 months later i still didn’t get any symptoms and have been eating gluten daily.  I’m scared to get tested/my blood taken cuz what if I’m actually not fine and have to go back to eating gluten free. Any tips to get over that fear and „suck it up“ cuz I know I could seriously damage my body… sorry if I seem like a idiot here… just don’t really know what to do :,)
    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.