Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Trouble With Soy Anyone?


wonkabar

Recommended Posts

wonkabar Contributor

Hi! I'm not sure if this belongs here because it has to do with my 3 year old son, but it's a global question. I started limiting his dairy last week; he's been gluten free since the beginning of March with tremendous success. He's not on a casein free diet; I've just switched the "major dairy" (milk, yogurt, pudding, etc.) to soy. He seems to be calmer and even less irritable without the massive amounts of dairy in his system...this is within reason for a just-three-year-old boy! :lol: We saw the first wave of calmness and decreased irritability when we eliminated gluten...it still amazes us!! While he doesn't appear to be in any GI distress from the soy, his poops have become soft and pasty (like the paste we used in kindergarten) versus hard and formed when on dairy. If he has a problem with soy, how do I work around the whole dairy thing?? Thanks for your input!

--Kristy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lonewolf Collaborator

I'm sensitive (allergic? intolerant?) to soy. It causes digestive upset and joint pain for me. I, personally, don't think it's good to give small children large amounts of it, since women take it for help with female hormones. It's full of phytoestrogens. You can get more information, if you're interested, at:

Open Original Shared Link

My son and I are both dairy intolerant. We use rice milk (NOT Rice Dream) and almond milk. There aren't any good dairy free, soy free cheeses. There are lots of margarines that are dairy free that just have some soy in them.

jaten Enthusiast
Hi! I'm not sure if this belongs here because it has to do with my 3 year old son, but it's a global question. I started limiting his dairy last week; he's been gluten free since the beginning of March with tremendous success. He's not on a casein free diet; I've just switched the "major dairy" (milk, yogurt, pudding, etc.) to soy. He seems to be calmer and even less irritable without the massive amounts of dairy in his system...this is within reason for a just-three-year-old boy! :lol: We saw the first wave of calmness and decreased irritability when we eliminated gluten...it still amazes us!! While he doesn't appear to be in any GI distress from the soy, his poops have become soft and pasty (like the paste we used in kindergarten) versus hard and formed when on dairy. If he has a problem with soy, how do I work around the whole dairy thing?? Thanks for your input!

--Kristy

I have soy and dairy intolerances. I work around the dairy thing by avoidance of cheese, yogurt, etc. For milk I use Vance's DariFree on my cereal and for cooking. Others here have the same intolerances and hopefully will have more suggestions. With a 3 yr. old, I'm not sure what the recommendations would be. Additional intolerances definitely make a strict gluten-free diet more challenging. Good luck!

jenvan Collaborator

Hmmm, it is really hard to say about your son's stools...especially since it hasn't been for too long. For me, soy causes cramping and gas. You could try eliminating all dairy and soy (not as hard as it sounds) and see if stools change back to normal. For milk alternatives I would recommend a Rice Milk like Pacific, Whole Foods, Wild Oats, Full Circle (NOT Rice Dream) or Vance's Dairy Free, made from potatoes. Some here also enjoy the "nut milks" like almond. Soy is hard when it comes to items like condiments...but perhaps he could tolerate a bit of soy in the end. I can't eat soy chips or soy milk, but soy in small amts of miracle whip etc. don't bother me. My recommendation would be to keep a food/symptom journal during this time to help link his symptoms/stool changes to specific foods. Good luck!

lonewolf Collaborator

Just thought of something else. If he's not casein free, then butter is probably okay and you might try small amounts of raw goat cheese - it's better than it sounds. You can also get goat yogurt in a lot of places - our Trader Joe's has it.

kabowman Explorer

There is rice and nut milks too. Once a person adjusts to the taste, they are fine. I love my hazlenut milk.

If you are just limiting lactose - what about lactaid milk? Is there a gluten issue with that, if not, go that route - it still has casien. My son didn't even notice much of a difference between that and regular milk and now that is all he has. He cannot handle even cheeses or yogurts but the lactose free milk is OK.

wonkabar Contributor

Thanks for the input everyone! I haven't tried just eliminating lactose. I don't want to go to the extreme of a casien free diet if I don't have to. Is it more likely that eliminating the lactose is what's actually helping him feel less irritable and calmer? Hmmm...I hadn't thought about that. He doesn't have any overt GI issues with dairy. Boy, this is all a major balancing act. :unsure:

Also, my son doesn't have a definitive Dx (neg. bloodwork/we think too young for biopsy...he's 3) BUT he is highly symptomatic of celiac; we've thought so for the last year. The only thing I'm not dilligent about is using dedicated cookware and utensils. Should I be at this time? I've checked out everything that he uses and eats, and they're all gluten free. I'm dilligent about baking with parchment, using cupcake papers, using HOT water to clean, not using the same utensils to serve him to avoid cc, foil in the toaster oven, etc. I don't want to sound like some nutcase mommy who's going overboard without a DX, but he clearly has major issues with gluten. If this is something that's simply second nature to him at this young of an age I'm hoping it will help him maintain this diet as he gets older. Sorry this was a little rambling at the end...............

--Kristy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator
Thanks for the input everyone! I haven't tried just eliminating lactose. I don't want to go to the extreme of a casien free diet if I don't have to. Is it more likely that eliminating the lactose is what's actually helping him feel less irritable and calmer? Hmmm...I hadn't thought about that. He doesn't have any overt GI issues with dairy. Boy, this is all a major balancing act. :unsure:

Kristy-

It is possible that a lactose intolerance might be causing him some behavioral changes, simply because of digestive distress...however, lactose intolerance itself will really only cause GI distress like gas, bloating, diarrhea etc...not behavioral changes. Casein however, has been known to cause behavioral changes, ADHD, what have you, like gluten. So, that may be your answer. Perhaps you want to ck into some of the gluten-free/cf sites for kids with behavioral issues/autism...simply for information. Open Original Shared Link

wonkabar Contributor
Kristy-

It is possible that a lactose intolerance might be causing him some behavioral changes, simply because of digestive distress...however, lactose intolerance itself will really only cause GI distress like gas, bloating, diarrhea etc...not behavioral changes.

He definitely doesn't have any GI distress...the only time he's ever had solid poops was when we took him off gluten but stayed on diary! I can certainly try Lactaid and other lactose free stuff. How long should I give eliminating lactose from his diet? His behavior isn't out of control, thank God, but there sometimes seems to be irritability for no apparent reason and that's not his general disposition. I hope that makes sense. Am I trying to do too many dietary things at once?? I just want to help him feel better. :(

--Kristy

wonkabar Contributor

We stopped giving Zachary soy last week after a week of icky poops. We also found out last week that he has a very mild allergy to soy which is probably manifesting itself that way. We've switched to Lactaid which has definately helped. His poops are almost back to normal again, and there's no change in his behavior. I guess it is the lactose that's bothering his belly right now. I've been giving him rice cheese if he wants it and organic vanilla yogurt...neither of which seem to be bothering him. Thanks for the help!! :)

--Kristy

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - Wheatwacked replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      My journey is it gluten or fiber?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oops my gluten challenge was only 12 days It started Jan 21s and ended Feb 1st   worst 12 days of my life   Does not help that I also started on a thiazide-like drug for rule in/out renal calcium leak at the exact same time No clue if that could have been symptoms worse 🤔
    • Wheatwacked
      Welcome to the forum @Known1, What reaction were you expecting? Pipingrock.com High Potency Vitamin D3, 2000 IU, 250 Quick Release Softgels $6.89 I've have been taking the 10,000 IU for close to 10 years. When I started with vitamin D I worked my way up to 10000 over several weeks.  Even at 8000 I felt no noticeable difference.  Then after a few days at 10000 it hit Whoa, sunshine in a bottle.  celiac disease causes malabsorption of dietary D and you've poor UV access.  It took me from 2015 to 2019 to get my 25(OH)D just to 47 ng/ml.  Another two years to get to 80.  70 to 100 ng/ml seems to be the body's natural upper homeostasis  based on lifeguard studies.  Dr. Holick has observed the average lifeguard population usually has a vitamin D 3 level of around 100 ng/ml. Could it be that our normal range is too low given the fact that ¾ or more of the American population is vitamin D deficient? Your Calcium will increase with the vitamin D so don't supplement calcium unless you really need it.  Monitor with PTH  and 25(OH)D tests. Because of your Marsh 3 damage you need to ingest way more than the RDA of any supplement to undo your specific deficiencies. I believe you are in the goiter belt.  Unless you have reason not to, I recommend pipingrock's Liquid Iodine for price and quality.  The RDA is 150 to 1100 mcg.  In Japan the safe upper level is set at 3000 mcg.  Start with one drop 50 mcg to test for adverse response and build up.  I found 600 mcg (12 drops) a day is helping repair my body.  Iodine is necessary to healing.  90% of daily iodine intake is excreted in urine.  A Urine Iodine Concentration (UIC) can tell how much Iodine you got that day.  The thyroid TSH test will not show iodine deficiency unless it is really bad.  
    • xxnonamexx
      I don't know if I am getting sufficient Omega Threes. I read about  phosphotidyl choline may cause heart issues. I will have o do further research on heathy Omega 3 supplements or from foods. Is there a blood test that can tell you everything level in your system such as Thiamine, Benfotiamine levels etc? Thanks
    • catnapt
      If lectins were my problem, I would react to wheat germ (the highest source of wheat lectins) and beans. I don't. I only react to bread and pasta, which are the highest sources of gluten. Therefore, my issue is wheat-specific (Gluten/ATIs), not a general lectin issue.   I have eaten a supposedly high lectin diet (I say supposedly because lectin content in these foods is greatly reduced by proper cooking and I eat very few of those foods raw, and even then, rarely!!) for years. My health has improved greatly on my whole foods plant forward diet. I have asked all my drs and a registered dietician about my diet, asked if eating such a high amnt of fiber might interfere with the digestion of any other nutrients and the answer has always been NO.     while doing the gluten challenge I did not eat ANY wheat germ (since it doesn't have hardly any gluten, and I was too sick from the bread and pasta to want to eat much anyway) I will NOT put that poison in my body again. That was a horrific experience and if this is what most celiac patients have to deal with, I am very sorry for them I don't care if I have celiac or NCGS I won't intentionally cause myself that much pain and suffering it's not worth it.  
    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.