Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Crazy Or What?!


BamBam

Recommended Posts

BamBam Community Regular

I still had some gluten items in my house and the school my husband works at wanted to have a bake sale so two weekends ago I spent te whole day making glutened goodies for this bake sale. I didn't eat or sample anything. I made date bars, granola bars, lemon bars and a raspberry shortbread bar. They all looked fabulously delicious but I didn't taste a thing.

This past weekend I had to bake pies for a pie auction, used corn starch as a thickener, but used store bought glutened pie crusts. The pies turned out great and sold for $90.00 each!

Each week after I have worked with gluten my anxieties get really bad, especially that first time. I thought I was going crazy again. My depression kinda sneaked its way back in, but then felt a little better towards the weekend.

I haven't felt too bad after this second time, maybe because I didn't have to measure flour for all the things I made that first week. I never got the big D but just felt very tired, depressed sort of state.

Do any of you work with flour and if you do how do you feel afterwards?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest cassidy

My mother did this. She loves to bake and baked like 100 loaves of bread (I'm not kidding) around Christmastime. She won't be doing that again.

She feels like her throat is closing when she eats gluten. She also get DH and the usual intestinal symptoms. After baking the bread she couldn't understand why she was having so many "attacks" when she was at home. The flour must have been in the air because she was sick for several weeks after that.

I go to great lengths not to eat gluten because it isn't worth it. If I'm going to get sick because of gluten that I'm intentionally around then it is going to be because I ate a Papa John's pizza and a beer. I love to bake also but it just isn't worth it to me to get sick so I can make food for other people.

So, as long as you know that you can get sick by inhaling gluten then you aren't crazy, you are making a choice to do something that could get you sick.

Hope everything turned out well and that you didn't get that sick.

Guhlia Rising Star

Those sound like definite signs of being glutened. I personally have removed all gluten-containing flours from my house to reduce my risk for cross-contamination. Gluten can most definitely cause damage from being inhaled. Actually, IMO it seems riskier if you're using the wheat flour because not only could you be glutened when you're actually baking, but also the next day and the next and the next from the risidual flour in the air as cassidy suggested. If I were you, I would stay as far away from "real" flour as possible. If you choose to make baked goods, I would go with gluten free flour. If you buy it in bulk, it's not terribly more expensive and there are tons of recipes out there that are every bit as good as the gluten filled ones, if not better.

I hope you're feeling better soon.

tarnalberry Community Regular

Yep, if I'm going to make baked goods for people, they're going to get gluten free stuff. :-P

jerseyangel Proficient

I only bake gluten free, also. I don't even keep wheat flour in the house--no need to! :D I agree with Julia--wherever the flour lands (everywhere), that surface is contaminated. Too big a risk, in my opinion.

NicoleAJ Enthusiast

Even if you could safeguard against all cross contamination, which would be virtually impossible, emotionally you might feel as though you are doing a great thing, but it might only add to your feelings of being isolated when it comes to partaking in particular foods. When I was first diagnosed, I had people come over for a presidential debate party, and I hadn't figured out how to make many of the gluten free goodies I know about now. Consequently, I baked pre-made cookie dough because I felt the risks would be less if I weren't mixing the flour--I felt some effects, probably from not washing my hands or the pans well enough afterwards, but emotionally I couldn't help but feel left out in my own home.

There are so many delicious things we can make for others that there's no sense in taking the risk, physically or emotionally. I teach at a univesity and a few weeks ago I took in the chocolate mousse cake with raspberry sauce that's listed in the recipe forum, and my students ate every last crumb and thanked me for bringing it in--they had no idea it was gluten free and they didn't care--they were just getting a decadent dessert and thought it was nice that their English teacher would bake for them.

CarlaB Enthusiast

I don't do the baking around here. My kids have me leave the house for the day near Christmas, then they have a bake-fest. When I come home, there is no flour dust anywhere to be seen! The only time I cook anything with gluten is the green bean casserole at Thanksgiving (I've changed everything else to gluten-free, but there's nothing like those fried onions so I make it for everyone else) and occassionally pasta if I'm just making it for the kids, and I'm sure to use the "gluten spoons" for it! Fortunately, it's never bothered me that I can't have certain foods ... not having a sweet tooth helps. If there's something I really like, I just savor the smell! :rolleyes:

If I had to bake, I'd do it gluten-free, why take chances? Hmm, almost sounds like a bumper sticker ...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



acousticmom Explorer

I had the same bake sale dilemma: my kitchen is now gluten-free, and I didn't want to spend a fortune on ingredients, so I defaulted to rice krispy treats with regular rice krispies (cheaper than gluten-free). Not a very exciting contribution, but at least there would be less stuff in the air.

But if you or your family do sometimes bake with regular flour, would an air purifier help? I have one in my bedroom for dust allergies, and I've occasionally used it in the kitchen to get rid of fish odors--it works great.

Carol

durhamgrrl Rookie

That has totally happened to me, too! I sell advertising and went to a bakery last December to talk with them and the flour dust was thick in the air. I was sick for weeks after just breathing in there!

key Contributor

I wouldn't risk baking with flour, because it is so airborn. I do make my other two kids sandwiches out of regular bread and just wash my hands afterwards.

Monica

jerseyangel Proficient
I wouldn't risk baking with flour, because it is so airborn. I do make my other two kids sandwiches out of regular bread and just wash my hands afterwards.

Monica

Ha! That's the one "gluten" thing I do, too! I make my husband and son's lunches--I wash my hands immediately after, and have been fine. I actually would rather do it myself because I can contain the crumbs, keep everything on the plastic, etc. And when I clean up after, I know it's really clean :lol:

jenvan Collaborator

Right after my diagnosis I thought I would cook with gluten again...but I changed my tune quick. Not worth the risk, and it certainly is one. Instead I will just try to strive to prove to people that you can have delicious food and go w/o gluten :) Bernadette--You could try some good mixes too to help transition. I haven't ever noticed a reaction on my part when being in a bakery, or in a gluten-full kitchen. ...But I know some folks who swear they do...so I err on caution.

Mo92109 Apprentice

I had a horrible allergy attack, twice, in a bakery just by being around baking food. After that, I got rid of all my flour and bisquick. I miss my Bisquick.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    2. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    4. - SilkieFairy posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
    • catnapt
      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.