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Hypothyroid Again


Sis

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Sis Rookie

Just got my lab tests back today and my TSH is 24.00. Hypothyroid again and increasing Levoxyl to 175 mcg, UGH!!!!

Guess that explains my extreme fatigue even with being gluten-free for almost 6 months!

Sis


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ravenwoodglass Mentor
Just got my lab tests back today and my TSH is 24.00. Hypothyroid again and increasing Levoxyl to 175 mcg, UGH!!!!

Guess that explains my extreme fatigue even with being gluten-free for almost 6 months!

Sis

Hopefully once they get the thyroid leveled correctly your fatigue will lift. Feel better soon.

((((((((hugs))))))

flagbabyds Collaborator

I get so messed up when my thyroid is messed up, mine has gone down to 1, and up to the 40s. very weird!

Sis Rookie

I was dx with Graves disease several years before the celiac and had RAI to kill the thyroid and so now I am Hypothyroid and it has been so hard to keep my levels maintained.

Sis

manja Apprentice
Just got my lab tests back today and my TSH is 24.00. Hypothyroid again and increasing Levoxyl to 175 mcg, UGH!!!!

Guess that explains my extreme fatigue even with being gluten-free for almost 6 months!

Sis

Hi Sis,

Thanks for your earlier response about whether Levoxyl contains gluten.

Just found out from my Doc. that my Thyroid works fine. However, it is enlarged again.

(I' ve got Hashimoto.)

I cannot find out why I am so tired. Also got hit by a bad case of depression, which I usually do not have.

Got off gluten about 2 months ago and did not cheat on my diet since then.

Also, experiencing muscle weakness. Any ideas what else it could be? I am actually feeling worse than when I was on Gluten.

elye Community Regular

I'm hoping you guys will know the answer to this...I was diagnosed with hypothyroidism a couple of months ago, and am taking eltroxin. Can you explain the TSH numbers to me? Normal is between 0.5 and 4 (?)...I'm not even sure if I'm remembering that correctly.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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