Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oatmeal?


dionnek

Recommended Posts

dionnek Enthusiast

I was just diagnosed with celiac and was looking through my cabinet to see what I could eat. Unfortunately, it looks like I will have to have a "pantry sale"! I do have a huge tub of quick cooking oatmeal that is 100% oats (at least, that's what it says) - does anyone know if this is ok to eat? :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

oats are a controverisal topic. here's what we know:

1) virtually all commerical oats are contaminated with wheat at levels above the 200ppm european CODEX standard for 'gluten free'. this includes Quaker, McCanns, and Country Pride. two companies (one in the US, and one in Canada (I think)) are starting to market and sell (via mail order) uncontaminated oats.

2) some studies suggest that many celiacs can tolerate small amounts (~100g/day) of clean (lab grown or otherwise known to be uncontaminated) oats without seriologic or intestinal evidence of damage from gluten

3) those same studies, and others, suggest that approximately 5-10% of the celiac population does react to avenin, the protein in oats, with intestinal damage. there is no current that is able to determine "if you are one of those celiacs".

4) some people here do consume oats without reporting any physical symptoms

mamaw Community Regular

The one in Canada is cream hill estates and the one in the U.S. is called gluten free oats. I loved the ones from cream hill but I ordered from the other one because of shipping.

Both sites tell you to start off very slow when adding oats back into the diet. I never thought I would say I missed oats!!!!Oddly , oats never seemed to be a problem for us but to be a tad more safe we went to the gluten-free ones.....

mamaw

KaitiUSA Enthusiast

Read what Tiffany wrote. I completely agree with that. You see, even with 100% pure and uncontaminated oats, some people still react to the protein, avenin, in oats. Some people still get that intestinal damage so I definitely stay completely away from them because I do not trust it...I think I would be one of the people that react to it.

Anyhow, oats in the US are highly contaminated with wheat. A bunch of brands tested showed high levels of gluten and they are grown and processed with wheat so it's definitely not safe.

If you decide to try oats, make sure they are grown, transported, and processed by themselves.

Lauren M Explorer

I've got some from Cream Hill that I'm going to give a try. I'll let you know how it goes!

- Lauren (aka the guinea pig) :lol:

VydorScope Proficient
oats are a controverisal topic. here's what we know:

1) virtually all commerical oats are contaminated with wheat at levels above the 200ppm european CODEX standard for 'gluten free'. this includes Quaker, McCanns, and Country Pride. two companies (one in the US, and one in Canada (I think)) are starting to market and sell (via mail order) uncontaminated oats.

2) some studies suggest that many celiacs can tolerate small amounts (~100g/day) of clean (lab grown or otherwise known to be uncontaminated) oats without seriologic or intestinal evidence of damage from gluten

3) those same studies, and others, suggest that approximately 5-10% of the celiac population does react to avenin, the protein in oats, with intestinal damage. there is no current that is able to determine "if you are one of those celiacs".

4) some people here do consume oats without reporting any physical symptoms

EXACTLY. Well stated. :)

chrissy Collaborator

we bought the gluten free oats and i made granola for my girls. they have had no problem with them. one of my kids gets nauseated when she eats gluten----and she has eaten a fair amount of the oats without getting sick.

christine


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.