Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is There An Iron Supp That Is Gently On The Stomach ?


marciab

Recommended Posts

marciab Enthusiast

Hi,

I am anemic (hemo 9.9) and in need of an iron supplement. Perimenapause - fun, huh ?

My doc prescribed Niferex, but it made my stomach bloat and gave me tons of gas. I took them for 6 days before giving up on them. It's been 7 days since I took the last one and my stomach is still hurting. He ordered an iron iv for me back in Feb, but won't this time because he said there could be side effects. Evidently someone recently had a problem with this.

I am gluten, soy, dairy, corn, and egg sensitive. But, my stomach is easily offended if I don't watch what I eat. Garlic and onions are out too. And meats just sit on my stomach.

I was hoping one of you would know of a supplement that really is easy on the stomach. I am eating raisins, molasses, spinach, and almonds, but haven't brought myself to buy a steak yet. I've been to the meat counter twice now, but they are just gross looking now that I have been a vegan for 10 months.

Any suggestions would be appreciated. Thanks Marcia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

Slow Fe is definitely the most gentle I've used. I took iron for years b/c I finally had an iron infusion to correct the problem. Go here to view product: Open Original Shared Link

Canadian Karen Community Regular

I always found taking liquid iron was easiest for me to absorb and easiest on my stomach.....

marciab Enthusiast

Jen,

Thanks for our reply. Here is the inactive ingredient list for Slow Fe -

Inactive Ingredients: Cetostearyl Alcohol, FD&C Blue 2 Aluminum Lake, Hydroxypropyl Methylcellulose, Lactose, Magnesium Stearate, Polysorbate 80, Talc, Titanium Dioxide, Yellow Iron Oxide

I am having problems with dyes, red for sure and maybe others. And I am pretty sure lactose is a problem too. Lactose is usually from cows milk, right ? I haven't tried goat milk yet.

I hate to spend anymore money on meds/supplements that I can't use. The Niferex was $22. It has red dye, so that could have been the problem.

Karen,

Thanks for replying. What kind of liquid iron do you take ? I didn't realize there was one. I was considering asking my doctor for whatever iron they give babies. I am assuming it is the least offensive. I even eyed the formula with iron today.

Any other ideas on foods ? I may have to give in and go buy a Maverick Ranch steak at Publix. Boy how things have changed over the last few months. I used to love steak.

Thanks again ... Marcia

CarlaB Enthusiast

I used to take Solgar gentle iron. It's made to be easy on stomachs. I do not know if it's gluten-free as I took it before I went gluten-free. I also don't know about the dyes. But it was easy on my tummy!

jenvan Collaborator

Marcia-

:( Sorry that won't work for you. Leafy greens are rich in iron too. However, my iron was so low that iron-rich foods were not enough. If you continue to have trouble with supplements or your iron continues to decrease, you may want to meet with a hematologist and discuss an infusion.

marciab Enthusiast

Carla,

Thanks for the reply. I will look into Solgar and see if it is a good candidate for me. These food allergies are driving me nuts !! I appear to be allergic to salt now. Actually kinda already knew, just didn't want to give it up. Now, my lips are swelling everytime I eat it though. If they would JUST swell evenly I wouldn't care. : )

Thanks Jen,

I hope it doesn't get that far. I had a Lupron shot yesterday in order to try to control the bleeding. This whole experience has been frightening. I've been going through this this time since Feb. I did this once in 2005 and thought it was a fluke. Not any more though ...

I am hoping I can absorb enough iron through my foods that I don't have to get an infusion. Is that the same as a tranfusion ? My GYN keeps telling me I have to be careful we don't let things get that far. I am wondering if he sees a hysterectomy in my near future.

Today I am going to buy that steak and eat it. Yech !!!

My daughter graduates today from high school !!!! Yeah !!!!

Thanks for being here and being so helpful ... I could not have done all this without you ... Marcia


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jenvan Collaborator

It sounds like it would be frightening Marcia! An infusion is similar to a transfusion in procedure, but the iron is synthetic--it does not come from another person. It was an easy and pretty painless procedure. Your doctor puts you on an iron iv and you sit as the iron goes into your body--takes several hours....but in bad situations its a godsend. My iron levels have stayed normal since, and it has been over a year since the procedure. I may have to have another though, we'll see... So, hopefully things will get better for you soon! But just in case you need one, the infusion is really easy.

aaascr Apprentice

www.florahealth.com - has a gluten free liquid iron

supplement - they sell it in Whole Foods or

it 's available online as well. Hasn't bothered

me yet, just started on it about a month ago.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.