Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Die Off Symptoms


terps19

Recommended Posts

terps19 Contributor

When you start on the GFDF diet is there a peroid that you experience die off symptoms from the gluten and casien trying to exit the body? For the past two days I have had a headache, stomach discomfort, and nausea and I hope it is just from the gluten and casien exiting my body. ANyone else have this happen as well?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lister Rising Star

in my opinon yes, i still dont feel right and its been 3 weeks now, Also there is atleast what seems to be die off of bactera that gets passed as well, judging by the black specks that are in a abondence, you will probably notice everytime u go to the bathroom you feel alot better for a bit, im just now starting to have some normel days where i feeel almost like myself again

mommida Enthusiast

There are some articles that explain wheat has an opiate type affect on certain persons. Opium is addictive, and these persons will suffer withdrawal symptoms when they go gluten free and/or casein free.

L.

dionnek Enthusiast

I have been gluten-free for 10 days now and have started getter annoying headaches for the past 3 or 4 days. I've attributed this to gluten withdrawal :P

Lisa Mentor

Your body needs to adjust. It all depends on how bad the intestinal damage is/was. Even though you may be gluten free and dairy free, you insides are still damaged and it will take some time to heal itself.

For headaches, I take aleve, and for stomach upset, it take zantec 75 or 150 when the bloating and gas gets bad.

Healing will take quite sometime depending on your damage, sometimes up to a years time.

Healing is a slow process and it will not happen over night. Be patient with your self and take every day as it comes. Make sure that you check your soaps and shampoos and facial creams that they are not gluten.

Just remember, that it took a long time for the damage to occure, it will take some time for the healing process to happen. I was dx in August and I try my best to be gluten free and at home is a non issue, socially it is very hard for me.

Good luck to you and please always feel free to ask away. We have all been there and one's experience is anothers knowledge.

Lisa

terps19 Contributor

Well I am glad that people are experiencing die off symptoms. It makes me feel a bit better. There is no significant damage done to my intestines so I hope healing does not take years at it does for some. On average at what point do you start to feel better? One month point, 2 months, 6 months? Just so I can get an idea of what I am getting myself into.

jerseyangel Proficient

Hi Terps--I didn't feel well at all when I first went gluten-free. I had been sick for years, and for the first 3 months gluten-free I felt tired, foggy, stomach issues--pretty much like a wet dishrag! Around the 4th month, I seemed to turn a corner. I'm almost at the 1 year point, and having worked through my additional intolerances, am just now feeling a lot better. It does take time--don't get discouraged! :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



terps19 Contributor

How did you find your additional intolerances? Did you take Dr Fine's tests through Enterolab? I know some on this forum have taken them as well as me. I tested positive for gluten and casien and nothing else (soy, eggs, and yeast). So I hope I dont have additional intolerances.

jerseyangel Proficient
How did you find your additional intolerances? Did you take Dr Fine's tests through Enterolab? I know some on this forum have taken them as well as me. I tested positive for gluten and casien and nothing else (soy, eggs, and yeast). So I hope I dont have additional intolerances.

I found them through trial and error. I did my own version (after seeking advice from my allergist) of an elimination diet. It took me about 6 months. I did look into having blood testing done for the intolerances, but in the end deceided not to.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,532
    • Most Online (within 30 mins)
      7,748

    jimploszay
    Newest Member
    jimploszay
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
    • Jmartes71
      Yarrow Pom works really well with the skin issues I found out.I had to stop so my doterra because dealing with medical celiac circus. I had shingles in Feb 2023. Prayers for healing 
    • cristiana
      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.