Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long After Gfcf Diet Did You Start To Feel Better


terps19

Recommended Posts

terps19 Contributor

How long after Gluten-free Casein-free diet did it take for you to start to feel better?

I have no damage of my small intestines as we caught this early (about 2 yrs after starting to feel symptoms).

Thank you!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

It varies greatly from person to person. Some start feeling some improvement in days, some in weeks, and some take months. Statistically, most see noticable improvement within two weeks, but many still take longer than that, and many don't see full recovery for months.

terps19 Contributor

bump

flagbabyds Collaborator

When i started CF i started to feel better the next day, my Cf symptoms were just heartburn this went away almost instantly and i noticed that night that it didn't wake me up that night for the first time in a long time, and sorry don't know about gluten-free was too young to remember it...

terps19 Contributor

bump

jerseyangel Proficient

I was sick for probably 20 years before finally being diagnosed. When I went on the gluten-free diet, I had already been dairy free for about a year. My GI issues began to improve very quickly. Other things like fatigue, brain fog, neuropathy, anxiety, and the anemia took longer. I feel I "turned a corner" around the 4th month. I had a few really good weeks, and then the other food intolerances began to show up. Now, at a year, I'm finally feeling somewhat normal (unless, of course I get CC!)

sillyyak Enthusiast

It took me about 6 months to really feel better.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dionnek Enthusiast

I'm in my third week and still no improvement - actually feel worse (headaches and sinus problems now, and ear aches) and have lost several pounds (not a problem since I'm not too skinny to begin with) b/c of cutting out the carbs. I haven't tried the gluten-free breads, etc. yet - I will do that when I need to put some pounds back on :)

Ursa Major Collaborator

I showed a marked improvement by the next day. Until my other intolerances reared their ugly heads three months later. I am much better now, but may never get completely well due to being diagnosed so late in life.

emcmaster Collaborator

I noticed a huge improvement on the 3rd day and have gotten even better since then. Once being glutened (which has happened several times due to CC and accidental glutening), it takes me about a week to get back to "normal."

deco2339 Newbie

Hi everyone:

I have had a history of ulcers since I was 18. In the last5 years they have bled 3 times. Came close to buying the farm. 5 months ago a blood test showed I had iron deficient anemia. I thought my ulcer was bleeding again. important to note that I have never had GI symptoms my entire life....no pain, no diarrhea or constipation. Stomach has been fine. The only way i knew my ulcers were bleeding was that I would faint due to having 1 pint of blood in me. My doc did an endoscopy and colonoscopy and only checked for celiac because I asked him to. A woman I worked with had just been diagnosed. Turns out I had it bad with my blood test showing levels over 100 but not sure of exact count. Is over 100 considered very high? Started diet immediately. Used to get very bad migraines every day, my guess is from malnutrition as I was eating wheat like crazy. I looked like crap with dark circles under my eyes. After 5 months on a gluten-free diet I can't really say I feel that much better on a day to day basis. My migraines are fewer and farther between but when I get one now it takes about 4 shots of Immitrex to get the sucker to leave me alone. I just started juicing every day. I think its helping. Thank God for Real Foods corn cakes. they are thin and crisp and much better than rice cakes. They satisfy my craving for something like a cracker. After about 2 months on the diet my blood tests come back normal so that's good but I have been suffering from severe depression. Not sure if it's menopause (I'm 48) or a result of having had celiac. Anyone else suffering from depression? I do have one weird symptom since I was diagnosed. If I lay on myleft side after I eat something small my stomach starts to growl really loud. Sometimes this happens after a meal. I did not have this problem prior to the endoscopy. anyone else experience this? It's driving me nuts!

Anyway, nice to talk to all of you. All my best

debbie

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

    4. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    5. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,328
    • Most Online (within 30 mins)
      7,748

    PattyPagnanelli
    Newest Member
    PattyPagnanelli
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to celiac.com, @Jane02! Have you had your serum D levels checked for deficiency/sufficiency? What about cod liver oil? Egg yolks can also be a good source of vitamin D.
    • Jane02
      Hello, I'm very discouraged. I've been trying to find a safe vitamin mineral supplement brand for months and am tired of testing one after the other and experiencing my typical 'glutening' reactions. I'm really feeling the nutritional deficiencies set in. I'm doing the best I can to get these nutrients from my food, although it's impossible for me to intake enough vitamin D as I can't have dairy and have insufficient sun exposure in the northern hemisphere. I've tried B Complex from Country Life (certified gluten-free) - horrible reaction. I've tried Metagenics vitamin D tab (certified glute-free) - bad reaction. I've tried liquid vitamin D Thorne and D Drops - reactions were mild since I tried a drop of a drop. I understand there could be other things I'm reacting to in my diet, although my diet/intake is pretty consistent with minimal variables so I do think it's something in these supplements. I understand I could be reacting to the active ingredient vitamin/mineral itself or even the filler ingredients. I tried the vitamin D drops since the only filler ingredient is coconut oil, in some brands, which I know I can tolerate really well on its own - I cook with coconut oil frequently and have no 'glutening' reactions at all. Perhaps I'm reacting to the vitamin D itself, although I eat fatty fish every few days, an entire fillet with no 'glutening' reactions, which contains anywhere between 400-600 IU per fillet so I shouldn't be sensitive to vitamin D. All this to say, I'm desperately looking for at least a safe vitamin D supplement. Does anyone know of a safe vitamin D supplement brand? I'd love to know if there are any supplement brands that have absolutely no gluten (especially in flour form) in their facilities. I've heard of Kirkman having no grains in their facility - I may try this brand. Has anyone reacted to this brand?   
    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.