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How Long After Gfcf Diet Did You Start To Feel Better

terps19

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terps19 Contributor
terps19
Posted

How long after Gluten-free Casein-free diet did it take for you to start to feel better?

I have no damage of my small intestines as we caught this early (about 2 yrs after starting to feel symptoms).

Thank you!

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tarnalberry Community Regular
tarnalberry
Posted

It varies greatly from person to person. Some start feeling some improvement in days, some in weeks, and some take months. Statistically, most see noticable improvement within two weeks, but many still take longer than that, and many don't see full recovery for months.

terps19 Contributor
terps19
Posted
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flagbabyds Collaborator
flagbabyds
Posted

When i started CF i started to feel better the next day, my Cf symptoms were just heartburn this went away almost instantly and i noticed that night that it didn't wake me up that night for the first time in a long time, and sorry don't know about gluten-free was too young to remember it...

terps19 Contributor
terps19
Posted
  • Author

bump

jerseyangel Proficient
jerseyangel
Posted

I was sick for probably 20 years before finally being diagnosed. When I went on the gluten-free diet, I had already been dairy free for about a year. My GI issues began to improve very quickly. Other things like fatigue, brain fog, neuropathy, anxiety, and the anemia took longer. I feel I "turned a corner" around the 4th month. I had a few really good weeks, and then the other food intolerances began to show up. Now, at a year, I'm finally feeling somewhat normal (unless, of course I get CC!)

sillyyak Enthusiast
sillyyak
Posted

It took me about 6 months to really feel better.

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dionnek Enthusiast
dionnek
Posted

I'm in my third week and still no improvement - actually feel worse (headaches and sinus problems now, and ear aches) and have lost several pounds (not a problem since I'm not too skinny to begin with) b/c of cutting out the carbs. I haven't tried the gluten-free breads, etc. yet - I will do that when I need to put some pounds back on :)

Ursa Major Collaborator
Ursa Major
Posted

I showed a marked improvement by the next day. Until my other intolerances reared their ugly heads three months later. I am much better now, but may never get completely well due to being diagnosed so late in life.

emcmaster Collaborator
emcmaster
Posted

I noticed a huge improvement on the 3rd day and have gotten even better since then. Once being glutened (which has happened several times due to CC and accidental glutening), it takes me about a week to get back to "normal."

deco2339 Newbie
deco2339
Posted

Hi everyone:

I have had a history of ulcers since I was 18. In the last5 years they have bled 3 times. Came close to buying the farm. 5 months ago a blood test showed I had iron deficient anemia. I thought my ulcer was bleeding again. important to note that I have never had GI symptoms my entire life....no pain, no diarrhea or constipation. Stomach has been fine. The only way i knew my ulcers were bleeding was that I would faint due to having 1 pint of blood in me. My doc did an endoscopy and colonoscopy and only checked for celiac because I asked him to. A woman I worked with had just been diagnosed. Turns out I had it bad with my blood test showing levels over 100 but not sure of exact count. Is over 100 considered very high? Started diet immediately. Used to get very bad migraines every day, my guess is from malnutrition as I was eating wheat like crazy. I looked like crap with dark circles under my eyes. After 5 months on a gluten-free diet I can't really say I feel that much better on a day to day basis. My migraines are fewer and farther between but when I get one now it takes about 4 shots of Immitrex to get the sucker to leave me alone. I just started juicing every day. I think its helping. Thank God for Real Foods corn cakes. they are thin and crisp and much better than rice cakes. They satisfy my craving for something like a cracker. After about 2 months on the diet my blood tests come back normal so that's good but I have been suffering from severe depression. Not sure if it's menopause (I'm 48) or a result of having had celiac. Anyone else suffering from depression? I do have one weird symptom since I was diagnosed. If I lay on myleft side after I eat something small my stomach starts to growl really loud. Sometimes this happens after a meal. I did not have this problem prior to the endoscopy. anyone else experience this? It's driving me nuts!

Anyway, nice to talk to all of you. All my best

debbie

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    • knitty kitty
      ttg iga high (646 mg/dl) other results are normal

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      @kpf, Were you eating ten grams or more of gluten daily in the month preceding your antibody blood tests? TTg IgA antibodies are made in the intestines.  Ten grams of gluten per day for several weeks before testing is required to provoke sufficient antibody production for the antibodies to leave the intestines and enter the blood stream and be measured in blood tests. If you had already gone gluten free or if you had lowered your consumption of gluten before testing, your results will be inaccurate and inconclusive.   See link below on gluten challenge guidelines. Have you had any genetic testing done to see if you carry genes for Celiac disease?  If you don't have genes for Celiac, look elsewhere for a diagnosis.  But if you have Celiac genes, you cannot rule out Celiac disease. You mentioned in another post that you are vegetarian.  Have you been checked for nutritional deficiencies?  The best sources of the eight essential B vitamins are found in meats.  Do you supplement any of the B vitamins as a vegetarian? Deficiency in Thiamine Vitamin B 1 is strongly associated with anemia which can cause false negatives on antibody tests.  Fatigue, numbness or tingling in extremities, difficulty with coordination, headaches and anemia are strongly associated with thiamine deficiency.  Other B vitamins that contribute to those symptoms are Riboflavin B 2, Pyridoxine B 6, Folate B 9 and B12 Cobalamine.  The eight B vitamins all work together with minerals like magnesium and iron.  So your symptoms are indicative of B vitamin deficiencies.  You can develop vitamin and mineral deficiencies just being a vegetarian and not eating good sources of B vitamins like meat.  B vitamin deficiencies are found in Celiac due to the malabsorption of nutrients because the lining of the intestines gets damaged by the antibodies produced in response to gluten.    
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    • trents
      ttg iga high (646 mg/dl) other results are normal

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