Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dietary Fructose Intolerance

Zueban1

Recommended Posts

Zueban1 Newbie
Zueban1
Posted

I am new to this message board. I noticed somewhere people talking about Dietary Fructose Intolerance, is that here. I am six months gluten-free, and lactose free, now I was diagnosised with fructose intolerance too. Anyone else with celiac have this too? Any recipe resources? Mostly, I read that this may be a temporary condition for celiacs. That once you do the strict diet, you can add fructose laden foods (like fruit) back into your diet. Do you know if this is true?

  • 5 weeks later...
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


DebWill Newbie
DebWill
Posted

Yes, I have Dietary Fructose Intolerance, Lactose Intolerance, and Non-celiac gluten intolerance. There is a very good book that helped me with that called the "Self Help Way To Treat Colitis and Other IBS Conditions" Second Edition by DeLamar Gibbons. I had pulled down some files of recipes from a former site that the University of Iowa used to have as a support group. I will be happy to email them to you. The book is good because he explains the mechanisms since as a medical doctor he has it himself.

It is interesting because the DFI causes a different sort of pain/cramping than the lactose. I think it is the worst one, because it is hidden in so many things. And because my sister has it as well, we have been able to compare trial and error notes, such as blueberries are OK, but strawberries are not. Here is the list we have compiled so far:

these things contain fructose:

Onions, artichokes, pears, wheat, apples, peaches, oranges, honey, HFCS made

from corn starch,mangos, papaya,kiwi,guava,cantaloupe, nectarines, apricots,

grapefruit, strawberry, carrots, corn. Dried fruit, tomatoes, molasses,

sweet potatoes, maple syrop, cherries, plums, applesauce, apple juice, pear

juice, apple cider, grapes, DATES (think Larabars!) sugar cane, sugar beets

Hope this helps.

Deb

I am new to this message board. I noticed somewhere people talking about Dietary Fructose Intolerance, is that here. I am six months gluten-free, and lactose free, now I was diagnosised with fructose intolerance too. Anyone else with celiac have this too? Any recipe resources? Mostly, I read that this may be a temporary condition for celiacs. That once you do the strict diet, you can add fructose laden foods (like fruit) back into your diet. Do you know if this is true?
  • 2 weeks later...
Zueban1 Newbie
Zueban1
Posted
  • Author

Thanks Deb,

I am going to try that book. I am now in the re-integration stage. Who knows though. I am also taking major probiotics per my nutritionist, so I am really bloated all the time. The fruit re0integration seems to be going well, but I wish I could see my nutritionist more often to get a sense of what is what. -Suzi

Zueban1 Newbie
Zueban1
Posted
  • Author

Hi Deb,

I am still struggling with the Fructose thing. I have been doing a re-integration, which is not going well. I can tolerate some berries but that seems to be it! Real drag. I have not bought that book yet, I am going to have to succumb to buying it online. However, I did check out that Iowa site too, are they not active anymore, are there any other websites that are helpful. Even though I have a celiac nutritionist, I feel a bit out there on my own with DFI. It is starting to feel like food in general it just making me sick. :(

Thanks, Suzi

BRUMI1968 Collaborator
BRUMI1968
Posted

Is this a test on the regular food panel? I've eliminated all fruits/sugary veggies/sugar of any kind about a week ago. All my bloating went away (already wasn't eating grains/beans, which helped, but was stll bloated). However, I practically couldn't do anything -- no energy. I know the concept of yeast die-off, if I had a candida problem, so I tried to stick with it.

Then I gave in to my fatigue/depression (which I'm not used to having) and got a RICE/ALMOND shake. This cured me...only bloated me again.

Yesterday I ate an apple w/o bloat. It was on an empty stomach.

So I'm debating yeast problem or fructose problem.

Oh anyway, my question - if I just had a food panel run, does it check for that?

rinne Apprentice
rinne
Posted

Hi, thanks for this question. I'm wondering if I should be asking it? :(

I've been gluten free for about two months now and dairy free for about a month and I am definitely better but I know there is still something going on. I definitely react to dates, honey, kiwi, tomatoes, sugar beets and I suspect others on your list now that I see it but I just didn't know that there were differences in the sugars of different fruits. :(

What about bananas?

Onions, artichokes, pears, wheat, apples, peaches, oranges, honey, HFCS made

from corn starch,mangos, papaya,kiwi,guava,cantaloupe, nectarines, apricots,

grapefruit, strawberry, carrots, corn. Dried fruit, tomatoes, molasses,

sweet potatoes, maple syrop, cherries, plums, applesauce, apple juice, pear

juice, apple cider, grapes, DATES (think Larabars!) sugar cane, sugar beets

Thanks for the information about the book, I will look into it.

Zueban1 Newbie
Zueban1
Posted
  • Author

Yes, there is a Fructose Breath test. It's very similiar to the lactose breath test. They tell you right away. In Boston (where I live), they just started doing the test 6 months ago. However, for celiacs, it can be transitional once your gut is healed you are supposed to be able to eat most fructose again, though nothing too preservative filled. I may have already posted this - so sorry for the repeat..

Open Original Shared Link

This website is someewhat helpful, but not the end all be all. Most nuts have fructose except pistachio, most beans exp for garbanzo, whole soy, lentil, mung and lima. Most veggies have some, so you are supposed to only have a few servings per week. Umm... what else oh spices, no garlic, onion or dill too. And no corn or corn starch, though polenta is allowed.

I too go back and forth with the bloating and an unhappy gut. I am going to go back on the fructose free diet again. :(

-Suzi

Oh and if possible use some dextrose on your food, especially on veggies. Dextrose helps to breakdown fructose.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


BRUMI1968 Collaborator
BRUMI1968
Posted

See, onions don't bother me at all. I eat them by the truckload - mostly because I'm not allowed any sweet veggies right now (sweet potato, etc.) and so they help cut the sweet tooth, but also since they are supposed to be good to fight candida, and because I LOVE them. And they don't trouble me, at least not cooked.

Hmmmm. Well, next time I'm in the doc's office I'll see about the breath test, just to be sure. Thanks, guys!

rinne Apprentice
rinne
Posted
Oh and if possible use some dextrose on your food, especially on veggies. Dextrose helps to breakdown fructose.

I'm confused, the information I found said dextrose is made from corn but corn contains fructose so is it the process that changes it from not being okay to being helpful? Do you sprinkle it on?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748
    Patty6133
    Newest Member
    Patty6133
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.