Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Glutened By Bob's Red Mill All Pupose Flour Mix?


TCA

Recommended Posts

TCA Contributor

I used Bob's Red Mill All Pupose Flour Mix in tonight's dinner and having lots of symptoms. Anyone else have problems with this product? I also made Pamela's bread for the first time, but I don't think that was it. Bob's flour is the only thing I can think of.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

While I have no problems with it, and I know they do regular testing on their gluten-free lines, others here have noted that they have had problems with their stuff.

flagbabyds Collaborator

I have problems with bobs all the time, whenever my mom would use it in my bread it would give me horrible stomach cramps and nausea.

Felidae Enthusiast

For whatever reason, I have problems with Bob's products. I wish I knew why.

Becky6 Enthusiast

My daughter and I react to them as well.

penguin Community Regular

I've reacted to both of the products you used, at different times.

terps19 Contributor

Do you have problems with the white rice flour? IT seems to be fine for me


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JenAnderson Rookie

I've had problem with it lately. A lot of bone pain and some cramping. My DH used it yesterday by mistake and I've really been the slug since. I switched to Kinnikinnick, but my husband decided to make me waffles for breakfast and forgot that the "good" stuff was in the freezer.

TCA Contributor

I've been using rice flour a lot with no problems.

I thought Pamela's was in a dedicted facility, so I ruled it out. How did you react to it, Chelsea?

I have a patch of skin between my fingers on my rt. hand that the dermatologist thinks is DH. It flared up big time after eating the Bob's Red Mill, then I got lots of tummy troubles. Lasted all through yesterday. My nursing daughter then broke out really bad with her eczema the next day. Had to be gluten. This stuff is too expensive to not actually be gluten-free!!!!!!!! :angry:

Carriefaith Enthusiast

I believe I reacted severely to their flaxseed.

terps19 Contributor

That would be horrible if Bobs Red Mill stuff was not gluten-free. It says that they test for gluten.

penguin Community Regular
I've been using rice flour a lot with no problems.

I thought Pamela's was in a dedicted facility, so I ruled it out. How did you react to it, Chelsea?

I reacted the same I do to gluten, foggy, stomach problems, etc. I make pizza every week, normally with chebe mix, but this one time I used Pamela's. I did everything else the same, just the mix was different. I react quickly to gluten.

sleepingbean Newbie

I have terrible terrible awful stomach pains when I tried a gluten-free mix by Bob Red MIlls. It had bean flours in it, though, and I think the problem was that they weren't cooked well enough and / or I ate too much of them. I don't do well with beans! Many people don't. If you find that a mix containing bean flours is bothering you, try another mix without beans and see how you do. (or flax, or whatever you suspect). But I avoid beans for the most part. And of course you probably know you should never eat raw cookie dough when it is made with bean flours. Beans have a certain toxicity that I cannot explain well, but it dissapears in the cooking process. When raw, though, they can make a person very sick!

Carriefaith Enthusiast
That would be horrible if Bobs Red Mill stuff was not gluten-free. It says that they test for gluten.
They do test for gluten, but if you read their website, their wording leads me to believe that they do detect gluten in their products and I think that is why some of us are getting sick.

"While the current Codex gluten-free standard specifies a gluten limit of 200 parts per million (ppm), Bob’s Red Mill’s gluten-free products consistently fall below 20 ppm."

Open Original Shared Link

codetalker Contributor
That would be horrible if Bobs Red Mill stuff was not gluten-free. It says that they test for gluten.

The company's web site says the following:

"While the current Codex gluten-free standard specifies a gluten limit of 200 parts per million (ppm), Bob’s Red Mill’s gluten-free products consistently fall below 20 ppm."

The issue therefore of whether their products are gluten-free or not is dependent on each celiac's definition of gluten-free. For celiacs who believe that gluten-free means products that consistently test with less than 20 ppm, then the company's products are gluten-free. For celiacs who believe gluten-free means gluten-free (i.e. zero gluten), then the company's products are not gluten-free. There is no universal standard here.

Further, I have read articles that the gluten from wheat, rye and barley are unique as is corn gluten, which many eat w/o problems. My understanding is that each type of gluten requires its own test. For example, the test for wheat gluten would not detect barley gluten or rye gluten. One source I came across claimed there is no tests for barley gluten and rye gluten.

Going back to the company's web site,

"We stone grind all common and most uncommon grains into flours and meals on our over one-hundred-year-old mills."

The implication is that the mills may well process both barley and rye. That being the case, does the company test for barley gluten and rye gluten in addition to wheat gluten? Or, do they just test for wheat gluten?

Unless you are someone who reacts only to wheat, you might want to get an answer to that question before consuming any products.

Going back to the first statement, "consistently fall below 20 ppm", that statement is not the same as saying "always" fall below 20 ppm. What happens if the test indicates more than 20 ppm or worse yet more than 200 ppm? I have yet to hear a single company state that they throw everything out, wash the equipment down and start from scratch. What happens to a production run that fails the test?

Bottom line, I have given up buying products from non-dedicated facilities. Also, I adhere to the zero gluten rule. It is the only way to have any degree of confidence.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.