Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lupus Or Other Immune Disorder Where

debmidge

Recommended Posts

debmidge Rising Star
debmidge
Posted

anyone familar with these disorders? wondering about symptoms my husband has....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


2kids4me Contributor
2kids4me
Posted

There are numerous connective tissue disorders. Check this site out for info on them - Open Original Shared Link

The home page has link for patient information, click on that and then choose which disorder you want to look up.

The unfortunate part about immune mediated disease is that many have variable symptoms and symptoms that could go along with other disorders.

eg: late stage B12 deficiency has neurological symtoms and can look like MS

Myasthenia gravis can come and go with symptoms

Lupus has 'flares" that come and go and not everyone has the classic symptoms - for Lupus there are specific blood tests that look for ANA (Antinuclear antibodies)... the results have to evaluated carefully because anyone with a pre-existing autoimmune disorder may have positve ANA .

Celiac is of course known as the "great imitator" since symptoms can vary so widely and look like other conditions. Who would think to look at the intestine as a cause for severe migraines? My daughter has not had a migraine since we found out she was celiac and started gluten-free.

To have autoimmune conditions investigated, you will need to be refered to a knowledgable rheumatologist or internal medicine doctor. Try contacting John's Hopkins autoimmune clinic and they may be able to give you a list of doctors in your area.

Open Original Shared Link

Nancym Enthusiast
Nancym
Posted

I was recently diagnosed with ankylosing spondylitis, which explains why my joints, muscles and tendons have been hurting me since I was in my 20's.

kb8ogn Rookie
kb8ogn
Posted

I have several autoimmune diseases. I am being tested and treated for lupus although my test results have been negative. With Lupus you can test falsly on just about anything. I am also being treated for RA(in my hands mostly), Reynauds, Fibro and a severe vitamin D deficiency in addition to the Celiacs which was misdiagnosed as IBS for 3 years.

Lupus can imitate a great many of other autoimmune which is why it can take so long for a diagnosis. I am going on 5 years. I have everything but the positive ana and the butterfly rash.

I belong to another board that deals with all autoimmune diseases. I don't know if I am allowed to promote other boards here, but if I'm allowed, someone please let me know and I will post it for everyone.

Shelli

nikki-uk Enthusiast
nikki-uk
Posted

My husband has Psoriatic Arthritis.

Bloods were negative for Lupus and Rheumatoid Arthritis.

Hubbie had a small patch of psoriasis on his knee-this lead the rheumatologist to the dx.

Hubbie was dx with this 2 yrs before the dx of celiac disease,although when I think back,the stomach symptoms arose around the same time as the aching ,stiff swollen joints.

What symptoms does your husband have?

Shelli,I'd be interested in looking at your 'autoimmune' board.(I've posted links to other boards before with no probs)

ebrbetty Rising Star
ebrbetty
Posted

I have discord lupus, have had it about 5 years now

kb8ogn Rookie
kb8ogn
Posted

The other message board is aptly named, butyoudontlooksick.com

There is a wonderful story there. It is called the spoon theory. It has helped me explain my illnesses to quite a few people including my own family.

The people at the message boards are wonderful and they have illnesses ranging from celiac's to lupus to ms and so on...

There is a wealth of knowledge there about all different "invisible illnesses".

I love this site because it is very detailed about celiac, the other site is where I park my car at night if you know what I mean.

Shelli

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


penguin Community Regular
penguin
Posted

The spoon theory is heartbreaking, but so true. It would be a great way to explain any chronic illness, including celiac. Thanks for the info!

nikki-uk Enthusiast
nikki-uk
Posted
The spoon theory is heartbreaking, but so true. It would be a great way to explain any chronic illness, including celiac. Thanks for the info!

Yeah,absolutely,what a great analogy.Although it's my husband that's ill,obviously I am very aware of how his illnesses have impacted on all our(me + kids) lives.

Interesting message board too,when I get more time I will have a good read through.

Thanks Shelli :)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Kirita
      - Kirita posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Recovery from gluten challenge

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, ...
    2. annamarie6655
      - annamarie6655 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Airborne Gluten?

      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum. Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains...
    3. trents
      - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    4. Celiac and Salty
      - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously...
    5. Rogol72
      - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,235
    • Most Online (within 30 mins)
      7,748
    kssynlson37
    Newest Member
    kssynlson37
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Kirita
      Recovery from gluten challenge

      By Kirita · Posted

      I’m wondering if anyone has had any experience with the gluten challenge. My teenager completed a gluten challenge over the summer, it ended up being 10 weeks although she stopped being consistent eating gluten after 6. Her previous endoscopy was negative but this past August it was positive after the gluten challenge. If you have done the gluten challenge, how long did it take you to feel back to normal? It took about two months before she got “glutened” again but now she’s having difficult coming back from that and has a lot of fatigue. I’m hoping someone has some advice! 
    • annamarie6655
      Airborne Gluten?

      By annamarie6655 · Posted

      Hello everyone, I was on here a few months ago trying to figure out if I was reacting to something other than gluten, to which a very helpful response was that it could be xanthin or guar gum.    Since then, I have eaten items with both of those ingredients in it and I have not reacted to it, so my mystery reaction to the Digiorno pizza remains.    HOWEVER, I realized something recently- the last time I got glutened and the most recent time I got glutened, I truly never ate anything with gluten in it. But i did breathe it in.    The first time was a feed barrel for my uncle’s chickens- all of the dust came right up, and most of what was in there was wheat/grains. The second time was after opening a pet food bag and accidentally getting a huge whiff of it.    When this happens, I tend to have more neurological symptoms- specifically involuntary muscle spasms/jerks everywhere. It also seems to cause migraines and anxiety as well. Sometimes, with more airborne exposure, I get GI symptoms, but not every time.    My doctor says he’s never heard of it being an airborne problem, but also said he isn’t well versed in celiac specifics. I don’t have the money for a personal dietician, so I’m doing the best I can.    is there anyone else who has experienced this, or gets similar neurological symptoms? 
    • trents
      Rectal pain

      By trents · Posted

      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      Rectal pain

      By Celiac and Salty · Posted

      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Guinness, can you drink it?

      By Rogol72 · Posted

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.