Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

For Those With Gluten Tolerant & Intolerant Family Members


Guest momx3

Recommended Posts

jaybirdsmom Newbie

I have two kids but the youngest (17 mo. ) is the one with the possible Celiacs (not DX by docs yet) I changed his diet because he had been sick for 4 months. At the begining i started with a couple of things (1 week) but then threw everything glutened in my pantry away (which was almost everything!!) And went and bought everything gluten free with the exception of cheze it for my 7 yr old daughter. When we started the diet I told my daughter that before giving my son anything she needed to ask me first. We had her glutened snacks for school in a lower latched cabinete and told my daughter that she could eat anything she wanted with gluten at school and outside the house. well, my hudini like son somehow got in to the cabinete and ate some cheze its and that was the end of that!! Now we are completly gluten free and my daughter doesnt care. She eats gluten free pasta and gluten free everything and she likes it very very much! It's become second nature in three months for all of us and she really doesn't miss it. She even has her sandwiches on gluten free bread for her lunch at school!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Smunkeemom Enthusiast

Our house is 90% gluten free now (with the exception of some of hubby's snacks) but when it wasn't all the gluten was out of reach for my girls and they had a "safe snack cabinet" that had healthy gluten free stuff for them. That way they could get their own snacks and I didn't have to check everything every single time.

Also, I don't keep gluten in my fridge at all so everything in there is safe (except for Daddy's butter that has a big red X on the lid in marker)

anerissara Enthusiast

We have a mixed lot around here...my son and I are gluten-free but everyone else isn't. I spent most of this year with 2 extra students home schooling at my house, and ended up making tons and tons of gluten PB&J's for them...I think this has really effected my health because I have been really up and down but I've been very careful about what I eat myself. I am just about ready to cut everyone off the gluten and go completely gluten-free, that way I'd at least know if I'm getting CC'd or if I may have some other problem in addition to the gluten. It should be easier this summer since the students won't be here.

Felidae Enthusiast

Other than my husbands breakfasts and lunches which include regular bread and non gluten-free deli meat, everything else is gluten-free.

VydorScope Proficient

Only our son is gluten intorlernt, but we just made the whole house gluten-free. Its much easier, esply now that he helps in the kitchen!

psawyer Proficient

Hershey's Kisses are gluten-free.

Hershey will clearly disclose gluten sources in the ingredient list, so if you don't see wheat, rye, barley or oats mentioned, the product is gluten-free.

AndreaB Contributor
I don't have the package anymore and I'm starting to react to something so I was worried about eating them today.

Floridian,

How do you do with soy. They may have soy lecithin in them. I know chocolate chips and carob chips do.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    2. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

    5. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,154
    • Most Online (within 30 mins)
      7,748

    bobadigilatis
    Newest Member
    bobadigilatis
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.