Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Which Lab Is Best For Testing


dog lover

Recommended Posts

dog lover Newbie

HI, I need to get tested and was looking at enterolab.

What is everyone's opinion of this lab and do you have

suggestions of other labs that are reliable? Thanks, a newbee.

:D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest greengirl
HI, I need to get tested and was looking at enterolab.

What is everyone's opinion of this lab and do you have

suggestions of other labs that are reliable? Thanks, a newbee.

:D

My experience with Enterolab has been great. I know that Dr. Fine gives lectures around the country and also runs a nonprofit Intestinal Health Institute. He has lots of information posted on his website about gluten intolerance, celiac, and the genes that predispose to this condition. Someone else posted that he is sponsoring a gluten free camp this summer and will give nightly lectures at the 4 day event. When I called there for help getting the insurance to cover my tests, they were more than willing to help. (This is still in the works with BCBS but if I can manage to get it covered as an in-network expense, then I think anyone else with BCBS would be able to as well. I'll let you know...). Once you've gotten your results the staff is available for any questions and I know that at least several people on this board have gotten replies from Dr. Fine addressing their individual concerns.

I truly believe that this will be the "gold standard" for diagnosing celiac/gluten intolerance in the future. I had negative results with bloodwork, biopsy, and had many, many lab tests that were inconclusive. Enterolab confirmed what I suspected all along. For my daughter, I skipped all the labwork and went right to enterolab. She had extremely high numbers in every category. We have both had success with the gluten-free diet, and in her case, Gluten-free Casein-free diet, but we did want a diagnosis to be sure. Incidentally, my Gastro specialist accepted the enterolab results as legitimate.

If you can afford the celiac panel I would do that, rather than just the IgA test. In my daughter's case it showed us the severity of her malabsorption and we found out she was casein intolerant. We also found out that she has 2 copies of the gi/celiac genes, which puts her sisters at an even higher risk (we had no idea my husband was passing down a gene, as well!)

Good luck!

Christine

CarlaB Enthusiast

I also did the full panel, but did not do the genetic part on my kids. One daughter and I came out positive, the other daughter negative. I, too, was very happy with everything about my experience working with them. My primary care doc accepted the testing. I didn't bother working with my GI doc when he was totally discounting my dietary response after all my tests came back negative, I can only assume what he would have thought of the results.

The thing I like about Enterolab is that you can catch it before it gets so bad that you have damage to your intestines and more autoimmune diseases. My daughter's absorption was great. Mine was borderline, and I took it after three months gluten-free (and things had changed dramatically!!). I can't imagine how sick I would have been if I had waited for the current "gold standard" of a positive biopsy!! This is why so many celiacs are so sick for so long before being diagnosed!

I don't know of other labs like them, so I can't recommend anyone else.

AndreaB Contributor

I just had my whole family, except the baby, tested by Enterolab. The results came back quickly and before I placed my order Phyllis was very helpful. Haven't talked to anyone else over there. My doctor was willing to run a celiac panel for me but I had been gluten free (or mostly) for 1 1/2 months. Right now my son is my barometer on whether I've eaten something bad. He's pretty sensitive.

dog lover Newbie

THANKS TO ALL FOR RESPONDING, I REALLY APPRECIATE IT,

AS YOU ALL KNOW THIS ISN'T A PICNIC. I'LL LET YOU

KNOW RESULTS AFTER I GET ALL THIS ORDERED AND SENT BACK.

THANKS AGAIN

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,871
    • Most Online (within 30 mins)
      7,748

    GR82BNTX
    Newest Member
    GR82BNTX
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.