Enterolab

[barbara3675]

Had the full panel and it was the best money I could have spent as I was one of the ones that came up negative in testing at the doctor's office. I also found out I carry a gene which can explain where my granddaughter came up with full-blown celiac disease. I am gluten-intolerant. There have been some symptoms that have plagued me all my life that have gotten worse in later life/now they are gone due to eating gluten-free. It is my feeling that this disease can manifest itself in many ways other than the typical ones. I have had times when I have been so sick that I could not stand up, and I will call them gluten incidents.....I just had to go to bed and sleep it off or wear it off. I can relate it to being very tired and having some major gluten food, like a sub sandwich and an ice cream cone or lot of pizza or something like that. I am 61 now, but looking back, it is very clear. I was diagnosed when I was 59. It can come anytime. Do not hesitate to use Enterolab. Barbara

[celiacgirls]

I have to say that I'm still a bit skeptical of enterolab. I've taken a printout of the website to 3 drs. - pediatrician, ped. GI and an allergist - and all said it wasn't a good test. I'm NOT saying Drs. are always right, but it concerns me that I can't find anyone in the med. community that thinks enterolab really works. Anyone else come up against this?

I was concerned about this so I e-mailed Enterolab to see if they could recommend a doctor in my area. There is a doctor here in Austin who uses their lab so I made an appointment with him. Interestingly, I hear from someone who knows this doctor that his wife has celiac.

I also asked them about a pedi GI and there is a doctor who has used them in the past so I may make an appointment with him for one of my daughters and see what he has to say about Enterolab.

In my extended family, 10 people have been tested by Enterolab and 10 have been positive. Except for my sister, I am not at all surprised by any of them being positive. 4 of them are very short and skinny and 1 has stomach problems. So my family is understandably somewhat skeptical. But for me, the results speak for themselves.

[CarlaB]

I was concerned about this so I e-mailed Enterolab to see if they could recommend a doctor in my area. There is a doctor here in Austin who uses their lab so I made an appointment with him. Interestingly, I hear from someone who knows this doctor that his wife has celiac.

I also asked them about a pedi GI and there is a doctor who has used them in the past so I may make an appointment with him for one of my daughters and see what he has to say about Enterolab.

In my extended family, 10 people have been tested by Enterolab and 10 have been positive. Except for my sister, I am not at all surprised by any of them being positive. 4 of them are very short and skinny and 1 has stomach problems. So my family is understandably somewhat skeptical. But for me, the results speak for themselves.

One of my daughters and I tested positive, but another one of my daughters tested negative. So, not everyone tests positive!! I think the reason so many do is that most of us are pretty sure gluten is what's making us sick before we shell out the money for the tests!

[AndreaB]

My husband has 2 celiac genes but he is not gluten intolerant.

Myself, my oldest son and my daughter are all intolerant and either have 2 celiac genes or 1 celiac and 1 gluten sensitivitly gene. My baby hasn't been tested yet.

We got all our results from enterolab. So that is 3 positive and 1 negative for us.

My husband and I are also soy intolerant.

[carrielynn]

I have to say that I'm still a bit skeptical of enterolab. I've taken a printout of the website to 3 drs. - pediatrician, ped. GI and an allergist - and all said it wasn't a good test. I'm NOT saying Drs. are always right, but it concerns me that I can't find anyone in the med. community that thinks enterolab really works. Anyone else come up against this?

We see very good doctors who we trust who could not figure out what our (now) 6 year old was allergic to that was causing his severe eczema. We took our child to 4 doctors in our city and to one doctor in another city that has several medical hospitals with top doctors in the state. No-one could figure anything out.

Then we went to see a PhD nutritionist in our city who ordered a celiac workup. This guy seems to have a dual-reputation, depending on who you talk to. If you talk to the doctors who we respect, they think he's a quack, especially our allergist, who we really like a lot. If you talk to people who have seen him for their problems, they think he's a godsend.

Anyway, this guy told us that our son had celiac disease based on the test results and had us take him off of gluten and dairy. Within 3 weeks our child's personality had changed dramatically. He went from being a moody tired little guy to being a happy energetic little boy. We'd been so focused on the state of his skin that we hadn't noticed the personality problems until they went away. (Life was unhappy all the way around in our household because of his problem.)

His skin did get better, but he still itches and scratches constantly, so he's still tearing his skin up. We've since added dairy back and in and we don't notice any difference with the itching... if he's on it or off of it.

We decided to do some more research on the celiac situation, since the only person who told us he had it was the Phd nutritionist. We did the Enterolab genetic test for him and it came back positive for a celiac gene and positive for a gluten sensitive gene. So my husband and I are getting tested to see who has these genes. Based on those results we'll do further testing. Either one of us (or both) could have the celiac gene. It could be me because I have all these little health quirks and he doesn't. However, he has relatives who have similar skin problems that my son has, as well as depression issues and migraines and other things.

Anyway, back to the point of your message. I feel like I'm in the middle here. I really do respect all these doctors and I think they are smart. But the reality is, the only thing they ever offered my son was steroids, both oral and topical. The steroids definitely treated the symptoms and made his skin look better, but they didn't treat the cause. These doctors are not trained to find the cause. It doesn't mean they aren't smart or they don't care. But their training is oriented towards treating symptoms.

[mart]

My son had the complete Enterolab celiac panel done. We did because I was still worried about malabsorption issues after almost one year gluten free. The results showed no sensitivity whatsoever to gluten (but then again, he's been gluten-free for almost a year). Also, no problems with malabsorption. However, the swab dna test was positive with 2 celiac genes. I don't know, but this tells me the test is accurate.

Anyway, I freaked out about putting poop in the freezer too. We wrapped it in many layers of plastic bags overnight and then put the container in the DHL package in the freezer in the morning of the day it was to be picked up. When the DHL guy came to get it, the package was in the freezer and even now I have to smile when I remember what he asked me. He took the cold package and said, "wow, what's in here, flowers?" I told him there were in fact flowers in there...lovely and fragrant.