Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Constipation


jsdawson

Recommended Posts

jsdawson Newbie

I have never posted here but read often. My son had a positive blood test for gluten back in January. His nurologist did the test because he was complx partial seizures and we wanted to rule other rhings out and the celiac test came back positve. I put in on the diet right away and he was doing great. He always had constipation since birth and we did not know why. After starting the diet he was having dailey bms. Now we are having problems again. he just went 9 days without a bm. Finally I got him to go last night because I told him if he did not go we were going to the er. I give him fiber pills 2 times a day I do not know what else to do. Has anybody else seen this. We see gi doc on Monday.

Thanks,

Jennifer


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guhlia Rising Star

Jennifer, is it a behavioral problem that he won't go, or is he really constipated? I know that some children, especially those who have been painfully constipated in the past, develop behavioral movement holding. Another possibilty is that he is having a hard time processing casein (milk). That can lead to constipation. I hope you get things figured out soon. It sounds like you've had a hard enough time already.

BRUMI1968 Collaborator

My problem was always constipation, and I know how miserable it is. After going gluten-free for about 6 days, I got it back (hadn't had it in a while), and that was really frustrating because it seemed as though i should be getting better, not worse.

I ended up seeing a nutritionist and he put me on a diet that consisted of slow cooked brown rice, lots of cabbagy style veggies, nuts and seeds and fruits, and of course, some supplements. After a couple days, my constipation subsided. I don't know if it was all the fiber-food I was eating, or if it was replenishing my intestinal bacteria or what, but I'm glad that it is over, at least for now.

the other thing I found out through trial and error, is that dairy products constipated me quite badly. When I quit those, I got better.

Good luck. I hope you find the answer.

CarlaB Enthusiast

Is he getting enough water to go with the fiber pills?

Also, you mention that he went when you told him he was going to the er if he didn't. That seems it may be behavioral. Maybe he doesn't understand that going more often is normal. Maybe he's like my son and is so busy with fun things he just doesn't want to take the time to go. I'd try talking with him about it. You don't mention how old he is, but even three year olds can tell you a lot more of when they're thinking than we give them credit for.

jenvan Collaborator

Good questions from Guhlia... I also wonder if he have issues with another food such as dairy? It causes constipation for a good number of us here. Or could he have gotten an accidental glutening?

TCA Contributor

We just figured out that dairy is making our daughter constipated. you might try eliminating this.

key Contributor

Accidental gluttening can cause constipation for me. Also if he was able to go when you said he would have to go to the ER, he may just be afraid to go. My boys are 7 and 4(don't have celiac), but they sometimes hold it all day until evening. I tell them to go if I think they need to, because they are just lazy. Your son may be afraid to go if he associates it with pain.

Monica


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

My non-celiac son just admitted to holding it because he was too lazy to go back when he was little. So, it might not be a medial problem.

Nic Collaborator

I can so relate to this. My son was diagnosed last year with Celiac and his primary symptom was constipation. When we went gluten free I assumed that he would feel better. My father is also a celiac but suffered with D and once gluten free for a few weeks, he felt much better. This did not happen for my son. After about a month gluten free, he did have daily bowel movements but at least once a month, he gets hit with another bout of constipation. It always baffles us because he is only 5 and his diet it very controlled and really does not change (I am not a very creative cooker so my meals tend to repeat :P , and I know they are gluten free). I do not believe he is being contaminated as we just recently had his blood tested again and it was negative for antibodies. He takes a stool softener everyday (mirolax) and I give him Yummi Bear Fiber everyday. His bowel movements are usually now soft to loose and very heavy and then out of no where, they just stop. And he will go up to a week without going. He will start with the frequent running to the bathroom saying he has to "poop" and then nothing happens. I feel as though his life revolves around pooping. He missed the beginning of his Pre K graduation this week because he was on the toilet (I don't know why the teacher did not wait for him).

We will be seeing his gastro. ped. next week. He said that he is concerned that he is still not completely well but it could just be that his body is not compleley recovered from when he was so sick. As far as behavioral issues are concerned, my doc also said that children tend to hold back the bowel movement when they feel pain. So if it somewhat hard for the child to go, and as it is passing he or she feels pain, they will kind of close of the muscles not letting it pass. I insisted that it looks like he is pushing not holding back and the doc said it is sometimes hard to tell the difference because they start out pushing and then stop from the discomfort.

Another parent on this forum, once replied to me, saying that his daughters gastro. ped. said that when a person is extremely constipated and backed up, the colon gets stretched. Therefore, once the person is better, the colon then needs to heal and get back to normal. I don't know how true this is, I never asked my doctor.

Nicole

burdee Enthusiast

I suffered with lifelong chronic constipation. Even after my Enterolab celiac disease diagnosis and then milk intolerance test results influenced me to abstain from gluten and dairy, I STILL suffered from constipation. I 'went' everyday, but never had normal soft stools ... UNTIL I learned that untreated celiac disease depletes magnesium, which controls smooth muscle (intestines) contractions. Without adequate magnesium all the fluids and fiber in the world didn't help my constipation. While consuming LOTS of fiber, but inadequate magnesium. I twice experienced impacted stools. However with magnesium supplementation (magnesium aspartate NOT oxide which is not easily absorbed), I FINALLY have normal (soft) stools. Here's a good link about magnesium depletion and supplementation:

Open Original Shared Link

For more info on Magnesium, do a google search or search on this site (where I got that link).

BURDEE

jsdawson Newbie

Thank you all for replying my son is 9 and still constipated. THe GI doc gave us miralax again after I told him that we took it for about a month and a half and it did nothing other than cause leakage.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.