Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Upset


taz sharratt

Recommended Posts

taz sharratt Enthusiast

went to my husbands worx bbq today, it wa awfull, ide asked the bbq,er to please cook my food seeratly and first so not to cc, yeah no prob he sed, then as i whatched him cook he was adding sausage and burgers to the grill, which i had asked him to wait for, then went on to use the same utensils to turn the burgers as my food, i was not happy, when the food reached me i said i was ntot hungry ( i was so starving my belly was burning) so not to upset him by telling him of cc, he then turned to his girlfriend and b%$@#ed about me" i cooked it seperatly for her and now she doesnt even want it " he wouldnt even look at me for the rest of the day. i was nearly crying i wa so upset. i wa so down and grouchy for the rest of the day mostly dur to hunger and everyone thinking the worst of me. sorry to go on but i felt so alone whatching all the other people includeing my hubby eat abd enjoy, i felt like swearing at them all, has anyone else had this?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



minibabe Contributor

wow, I am so sorry that this happened to you. I have had cases like this before, when everyone is having a grand old time and you are stuck eating nothing because people are careless. :angry:

Sorry that you had such a bad time at the BBQ. Hope that you feel better. :D

Amanda NY

hez Enthusiast

For me this is really the hard part of this disease, the social isolation. At least that is how it feels for me. I am so sorry that this happened to you. Some people just don't understand the seriousness of cc. Maybe you could do something for yourself tomorrow that will lift your spirits.

Hez

jerseyangel Proficient

I'm sorry you felt bad--I don't blame you! The next time, though, you can go prepared. Bring some foil (folded in your purse) and ask that your meat be cooked in it on the grill. That way, it won't be contaminated, and you can eat at the same time as everyone else. Maybe tuck a few safe snacks in there for yourself, too. I know it's not quite the same, but as least you won't have to go hungry again! :)

angel-jd1 Community Regular

That is exactly why I do not trust many people to cook food for me. I would rather lug a whole cooler of stuff for myself than have a situation like that arise.

You were upset because he did not understand cross contamination and contaminated your food. He was upset because he "thought" he cooked your food very special for you and "thought" he went out of his way to be nice. When you did not eat the food and only explained that "you weren't hungry" thinking that would be the most polite way out of it, he felt like you made a big "to do" for nothing. Ahhhhhhhh so much mis-communication. :blink:

If it were me and I was in that situation I would have tried to pull him aside and explain why I couldn't eat the burger he cooked for me. I would thank him generously for trying so hard, but tell him that you really couldn't risk getting sick. I know that a 5 min. lesson on CC in the beginning of my diagnosis would not have been enough to "get it" and know how to cook something. Our diet is very hard and you can't rely on others to totally "get it".

In the future, however, bring your own food!!! ;) It will save you a ton of headaches.

-Jessica :rolleyes:

CarlaB Enthusiast

Sorry it's so hard sometimes. I, too, would have told him why you had a problem with the burger. In fact, I'd probably call him now and apologize for not eating it and tell him you were embarassed to say something at the party because this is difficult to live with and you hate putting people out, that you know he went out of his way for you, so you didn't want to tell him that it wasn't good enough. After thinking, however, you realize that it looked as if you didn't appreciate his effort, so you wanted to say something now. Then I'd thank him for trying and mention why it was a problem so it might not be one next time. But, that is my personality, so you do what's fitting for you. I would try to communicate something with him because you were trying to be nice and so was he ... it would be a shame for this misunderstanding to make you both uncomfortable in the future.

I think he genuinely was making an effort, and I think people do not want to make us sick or have us go without food. I had a similar experience when I asked someone to cook my food on foil because the other brats were cooked in beer. He took the foil that had been used to cover the other brats, so I told him why that would be a problem. He was very understanding, got some clean foil, and I could eat.

gfp Enthusiast
That is exactly why I do not trust many people to cook food for me. I would rather lug a whole cooler of stuff for myself than have a situation like that arise.

You were upset because he did not understand cross contamination and contaminated your food. He was upset because he "thought" he cooked your food very special for you and "thought" he went out of his way to be nice. When you did not eat the food and only explained that "you weren't hungry" thinking that would be the most polite way out of it, he felt like you made a big "to do" for nothing. Ahhhhhhhh so much mis-communication. :blink:

If it were me and I was in that situation I would have tried to pull him aside and explain why I couldn't eat the burger he cooked for me. I would thank him generously for trying so hard, but tell him that you really couldn't risk getting sick. I know that a 5 min. lesson on CC in the beginning of my diagnosis would not have been enough to "get it" and know how to cook something. Our diet is very hard and you can't rely on others to totally "get it".

Well said, however sometimes easier said than done.

Sympathies with taz however because it really can be hard and most of all tiring keep doing this.

I'd probably call him now and apologize for not eating it and tell him you were embarassed to say something at the party because this is difficult to live with and you hate putting people out, that you know he went out of his way for you, so you didn't want to tell him that it wasn't good enough.

That sounds ideal....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,334
    • Most Online (within 30 mins)
      7,748

    johnfreirefr
    Newest Member
    johnfreirefr
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.