Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Diffirent

Guest ChloeB

By Guest ChloeB
in Introduce Yourself / Share Stuff

Recommended Posts

Guest ChloeB
Guest ChloeB
Posted

some reason I looked at my sisters and felt very diffirent ! I never had this feeling before it feels like I'm sad or want something ! do's anyone have an explanation of why I have this feeling? has anyone ever felt like that or like they wanted to scream something but cant think of what it is that you want to scream or do you ever just want to start crying for no reason?

thanks I really apreciate it, chloe!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I think that's just how all normal girls/women feel sometimes. I know I do here and there. It's not fun but it passes.

CarlaB Enthusiast
CarlaB
Posted

I feel it every day, sweetie!! It's okay though ... it's better to be healthy. Once you start feeling different, you won't worry so much about being different. ;)

corinne Apprentice
corinne
Posted

I think everyone is different in some way. Sometimes it's health problems, sometimes it's family problems, sometimes it's difficulties with school and learning, sometimes it's troubles making friends. Even in the same family, different people go through different things.

You definitely have some talents and abilities that also make you different and make you able to do things that noone else can. It helps to find those. If you're still struggling with these feelings for more than a couple weeks, talk to someone - someone in your family, a family friend, a teacher or a school counsellor.

ravenwoodglass Mentor
ravenwoodglass
Posted
some reason I looked at my sisters and felt very diffirent ! I never had this feeling before it feels like I'm sad or want something ! do's anyone have an explanation of why I have this feeling? has anyone ever felt like that or like they wanted to scream something but cant think of what it is that you want to scream or do you ever just want to start crying for no reason?

thanks I really apreciate it, chloe!

I think everyone feels like this at times but for some of us celiacs those feelings can really be more intense. How long have you been gluten free? If it hasn't been very long these feelings may get less strong and less frequent after a while. I know my DS and I are doing better. What do you do to relieve some of the stress these feelings create? For my DS something like karate helped, for me slapping around some natural clay worked better. I also found dancing in my room by myself helped too. :ph34r: Everyone is different though and what relieves you might be a long hot shower or a brisk walk. When it feels like your going to explode you need to find something to release the pressure. If you live in the country going into a field and just screaming your lungs out can work too, in the city that could test your local police response :blink: . I hope you find something that works for you.

lorka150 Collaborator
lorka150
Posted

Hi Chloe,

Sorry you're feeling a little upset! But it's okay - remember all the wonderful things that you can still do, and the feeling will go away.

It happens to all of us. I was having a discussion with mom the other day about this - how easy it is to not have to think all the time (about eating, or if you might feel sick)... And how some people don't need to think all the time, like we do.

But that ends up being wonderful, as we then don't take anything for granted, and we are so grateful for what we have.

Keep your head up!

Mango04 Enthusiast
Mango04
Posted
some reason I looked at my sisters and felt very diffirent ! I never had this feeling before it feels like I'm sad or want something ! do's anyone have an explanation of why I have this feeling? has anyone ever felt like that or like they wanted to scream something but cant think of what it is that you want to scream or do you ever just want to start crying for no reason?

thanks I really apreciate it, chloe!

I think it's important to remember that it's okay to feel that way sometimes...and whether they admitt it or not, pretty much every other girl on Earth can probably relate....

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest Viola
Guest Viola
Posted

I think most of us have gone through that more than once, and probably it will pop up again every now and then. However ... I have a thought for you.

Somewhere in this forum there was a thread going around that said all the Celiac people look younger than their age...and... I do believe there was even a post saying that Celiac women were hot!

Just keep that in mind when you're looking at someone else thinking how lucky they are ... who knows, maybe all that gluten will be aging them quicker :D

Ashley Enthusiast
Ashley
Posted

I have my emotional ups and downs as well too. But, being different is good. In my eyes, being predictable is not good enough. Having different attributes builds up the little pieces that makes you something unique and not the same uniformed-copy of someone/something else. I know it gets old and stale even people come up and say "I'd die without bread!" and whatnot, but, just be positive and eventually it becomes easier and it the awakardness seems to fade.

If you need anything, just to talk, anything, give me a PM! :)

-Ash

aball2006 Newbie
aball2006
Posted

i have similar problems too but ive been diagnosed with celiac for almost five years now. i sometimes look at myself and just think FREAK. i think that everything would be ok if i didnt have celiac. that i would be a NORMAL teen, and i wouldnt have to explain things to people. I recently went on a week long trip to London, and the whole meal was ok, we had prearranged all the meals, but when the waiter started passing out the dessert, the kid next to me, (who i didnt know) kept pushing me to take it "come on whats wrong with you, why dont you want the brownie? its good, try some" i flipped out on him and just yelled "you dont even know me, leave me the **** alone!!!" i felt bad, but i really hate eating with strangers. that was the last meal i ate with somebody not in my group...

watchthestars Rookie
watchthestars
Posted

It can be really hard sometimes, but you'll get through it! when i start feeling down, i remind myself of how lucky i am to KNOW that i have a gluten problem, unlike 97% of celiacs. we're lucky that our disease is 100% treatable, and since yours was caught early, you're probably in good shape :) we're also lucky to have so many gluten-free options that didn't exist a 10 years ago. that's how i cope. it will get better! and as you get older, you don't care as much about being different.

  • 2 weeks later...
chloeb Newbie
chloeb
Posted
I think most of us have gone through that more than once, and probably it will pop up again every now and then. However ... I have a thought for you.

Somewhere in this forum there was a thread going around that said all the Celiac people look younger than their age...and... I do believe there was even a post saying that Celiac women were hot!

Just keep that in mind when you're looking at someone else thinking how lucky they are ... who knows, maybe all that gluten will be aging them quicker :D

thanks i think i know why some people think im twins with my almost 11 year old sisterwhen im 13 and not almost 11[ its like im past 11 years old people , hello!] thanks, chloe!

  • 2 years later...
eeyore Collaborator
eeyore
Posted

Here's what I think -I'm not allowed to have a lot of the unhealthy things, so I'm actually a lot healthier than anybody who doesn't have diet restrictions.

  • 1 month later...
B R I A N A Apprentice
B R I A N A
Posted

You know, I get that when I eat gluten.

I'll be like totally fine one minute then the next I start crying.

Like where the simplest things just are such a big deal.

For me that went away when I gave up the gluten.

Mine was so bad that ending my life was once an option.

Things always seemed harder than they were.

I taped up a sign on my mirror, "It's the gluten" is what it says; to remind me that its why I'm feeling the way I am.

So like if I accidentally get glutened, it's a reminder.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      @rei.b, I understand how frustrating starting a new way of eating can be. I tried all sorts of gluten-free processed foods and just kept feeling worse. My health didn't improve until I started the low histamine AIP diet. It makes a big difference. Gluten fits into opioid receptors in our bodies. So, removing gluten can cause withdrawal symptoms...
    2. captaincrab55
      - captaincrab55 replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Finding gluten free ingredients

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal. My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet. I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free...
    3. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and...
    4. knitty kitty
      - knitty kitty replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long? DGP IgG antibodies are produced in response to a partial gluten molecule. This is different than what tissue transglutaminase antibodies are produced in response to. TTg IgA antibodies are produced in the intestines in response to...
    5. rei.b
      - rei.b replied to rei.b's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      14

      High DGP-A with normal IGA

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,132
    • Most Online (within 30 mins)
      7,748
    Exhausted-momma
    Newest Member
    Exhausted-momma
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
    • captaincrab55
      Finding gluten free ingredients

      By captaincrab55 · Posted

      Imemsm, Most of us have experienced discontinued, not currently available or products that suddenly become seasonal.   My biggest fear about relocating from Maryland to Florida 5 years ago, was being able to find gluten-free foods that fit my restricted diet.  I soon found out that the Win Dixie and Publix supper markets actually has 99% of their gluten-free foods tagged, next to the price.  The gluten-free tags opened up a  lot of foods that aren't actually marked gluten-free by the manufacture.  Now I only need to check for my other dietary restrictions.  Where my son lives in New Hartford, New York there's a Hannaford Supermarket that also has a gluten-free tag next to the price tag.  Hopefully you can locate a Supermarket within a reasonable travel distance that you can learn what foods to check out at a Supermarket close to you.  I have dermatitis herpetiformis too and I'm very sensitive to gluten and the three stores I named were very gluten-free friendly.  Good Luck 
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      Okay well the info about TTG-A actually makes a lot of sense and I wish the PA had explained that to me. But yes, I would assume I would have intestinal damage from eating a lot of gluten for 32 years while having all these symptoms. As far as avoiding gluten foods - I was definitely not doing that. Bread, pasta, quesadillas (with flour tortillas) and crackers are my 4 favorite foods and I ate at least one of those things multiple times a day e.g. breakfast with eggs and toast, a cheese quesadilla for lunch, and pasta for dinner, and crackers and cheese as a before bed snack. I'm not even kidding.  I'm not really big on sugar, so I don't really do sweets. I don't have any of those conditions.  I am not sure if I have the genes or not. When the geneticist did my genetic testing for EDS this year, I didn't think to ask for him to request the celiac genes so they didn't test for them, unfortunately.  I guess another expectation I had is  that if gluten was the issue, the gluten-free diet would make me feel better, and I'm 3 months in and that hasn't been the case. I am being very careful and reading every label because I didn't want to screw this up and have to do gluten-free for longer than necessary if I end up not having celiac. I'm literally checking everything, even tea and anything else prepacked like caramel dip. Honestly its making me anxious 😅
    • knitty kitty
      High DGP-A with normal IGA

      By knitty kitty · Posted

      So you're saying that you think you should have severe intestinal damage since you've had the symptoms so long?   DGP IgG antibodies are produced in response to a partial gluten molecule.  This is different than what tissue transglutaminase antibodies are  produced in response to.   TTg IgA antibodies are produced in the intestines in response to gluten.  The tTg IgA antibodies attack our own cells because a structural component in our cell membranes resembles a part of gluten.  There's a correlation between the level of intestinal damage with the level of tTg antibodies produced.  You are not producing a high number of tTg IgA antibodies, so your level of tissue damage in your intestines is not very bad.  Be thankful.   There may be reasons why you are not producing a high quantity of tTg IgA antibodies.  Consuming ten grams or more of gluten a day for two weeks to two months before blood tests are done is required to get sufficient antibody production and damage to the intestines.  Some undiagnosed people tend to subconsciously avoid lots of gluten.  Cookies and cakes do not contain as much gluten as artisan breads and thick chewy pizza crust.  Anemia, diabetes and thiamine deficiency can affect IgA antibody production as well.   Do you carry genes for Celiac?  They frequently go along with EDS.
    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.