Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Diffirent


Guest ChloeB

Recommended Posts

Guest ChloeB

some reason I looked at my sisters and felt very diffirent ! I never had this feeling before it feels like I'm sad or want something ! do's anyone have an explanation of why I have this feeling? has anyone ever felt like that or like they wanted to scream something but cant think of what it is that you want to scream or do you ever just want to start crying for no reason?

thanks I really apreciate it, chloe!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

I think that's just how all normal girls/women feel sometimes. I know I do here and there. It's not fun but it passes.

CarlaB Enthusiast

I feel it every day, sweetie!! It's okay though ... it's better to be healthy. Once you start feeling different, you won't worry so much about being different. ;)

corinne Apprentice

I think everyone is different in some way. Sometimes it's health problems, sometimes it's family problems, sometimes it's difficulties with school and learning, sometimes it's troubles making friends. Even in the same family, different people go through different things.

You definitely have some talents and abilities that also make you different and make you able to do things that noone else can. It helps to find those. If you're still struggling with these feelings for more than a couple weeks, talk to someone - someone in your family, a family friend, a teacher or a school counsellor.

ravenwoodglass Mentor
some reason I looked at my sisters and felt very diffirent ! I never had this feeling before it feels like I'm sad or want something ! do's anyone have an explanation of why I have this feeling? has anyone ever felt like that or like they wanted to scream something but cant think of what it is that you want to scream or do you ever just want to start crying for no reason?

thanks I really apreciate it, chloe!

I think everyone feels like this at times but for some of us celiacs those feelings can really be more intense. How long have you been gluten free? If it hasn't been very long these feelings may get less strong and less frequent after a while. I know my DS and I are doing better. What do you do to relieve some of the stress these feelings create? For my DS something like karate helped, for me slapping around some natural clay worked better. I also found dancing in my room by myself helped too. :ph34r: Everyone is different though and what relieves you might be a long hot shower or a brisk walk. When it feels like your going to explode you need to find something to release the pressure. If you live in the country going into a field and just screaming your lungs out can work too, in the city that could test your local police response :blink: . I hope you find something that works for you.

lorka150 Collaborator

Hi Chloe,

Sorry you're feeling a little upset! But it's okay - remember all the wonderful things that you can still do, and the feeling will go away.

It happens to all of us. I was having a discussion with mom the other day about this - how easy it is to not have to think all the time (about eating, or if you might feel sick)... And how some people don't need to think all the time, like we do.

But that ends up being wonderful, as we then don't take anything for granted, and we are so grateful for what we have.

Keep your head up!

Mango04 Enthusiast
some reason I looked at my sisters and felt very diffirent ! I never had this feeling before it feels like I'm sad or want something ! do's anyone have an explanation of why I have this feeling? has anyone ever felt like that or like they wanted to scream something but cant think of what it is that you want to scream or do you ever just want to start crying for no reason?

thanks I really apreciate it, chloe!

I think it's important to remember that it's okay to feel that way sometimes...and whether they admitt it or not, pretty much every other girl on Earth can probably relate....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest Viola

I think most of us have gone through that more than once, and probably it will pop up again every now and then. However ... I have a thought for you.

Somewhere in this forum there was a thread going around that said all the Celiac people look younger than their age...and... I do believe there was even a post saying that Celiac women were hot!

Just keep that in mind when you're looking at someone else thinking how lucky they are ... who knows, maybe all that gluten will be aging them quicker :D

Ashley Enthusiast

I have my emotional ups and downs as well too. But, being different is good. In my eyes, being predictable is not good enough. Having different attributes builds up the little pieces that makes you something unique and not the same uniformed-copy of someone/something else. I know it gets old and stale even people come up and say "I'd die without bread!" and whatnot, but, just be positive and eventually it becomes easier and it the awakardness seems to fade.

If you need anything, just to talk, anything, give me a PM! :)

-Ash

aball2006 Newbie

i have similar problems too but ive been diagnosed with celiac for almost five years now. i sometimes look at myself and just think FREAK. i think that everything would be ok if i didnt have celiac. that i would be a NORMAL teen, and i wouldnt have to explain things to people. I recently went on a week long trip to London, and the whole meal was ok, we had prearranged all the meals, but when the waiter started passing out the dessert, the kid next to me, (who i didnt know) kept pushing me to take it "come on whats wrong with you, why dont you want the brownie? its good, try some" i flipped out on him and just yelled "you dont even know me, leave me the **** alone!!!" i felt bad, but i really hate eating with strangers. that was the last meal i ate with somebody not in my group...

watchthestars Rookie

It can be really hard sometimes, but you'll get through it! when i start feeling down, i remind myself of how lucky i am to KNOW that i have a gluten problem, unlike 97% of celiacs. we're lucky that our disease is 100% treatable, and since yours was caught early, you're probably in good shape :) we're also lucky to have so many gluten-free options that didn't exist a 10 years ago. that's how i cope. it will get better! and as you get older, you don't care as much about being different.

  • 2 weeks later...
chloeb Newbie
I think most of us have gone through that more than once, and probably it will pop up again every now and then. However ... I have a thought for you.

Somewhere in this forum there was a thread going around that said all the Celiac people look younger than their age...and... I do believe there was even a post saying that Celiac women were hot!

Just keep that in mind when you're looking at someone else thinking how lucky they are ... who knows, maybe all that gluten will be aging them quicker :D

thanks i think i know why some people think im twins with my almost 11 year old sisterwhen im 13 and not almost 11[ its like im past 11 years old people , hello!] thanks, chloe!

  • 2 years later...
eeyore Collaborator

Here's what I think -I'm not allowed to have a lot of the unhealthy things, so I'm actually a lot healthier than anybody who doesn't have diet restrictions.

  • 1 month later...
B R I A N A Apprentice

You know, I get that when I eat gluten.

I'll be like totally fine one minute then the next I start crying.

Like where the simplest things just are such a big deal.

For me that went away when I gave up the gluten.

Mine was so bad that ending my life was once an option.

Things always seemed harder than they were.

I taped up a sign on my mirror, "It's the gluten" is what it says; to remind me that its why I'm feeling the way I am.

So like if I accidentally get glutened, it's a reminder.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,553
    • Most Online (within 30 mins)
      7,748

    Jennifer CCC
    Newest Member
    Jennifer CCC
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.