Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac And Stomach Cancer

Fiddle-Faddle

Recommended Posts

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Hi, I saw this on Comcast today:

Open Original Shared Link

Read carefully. Any comments????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


MySuicidalTurtle Enthusiast
MySuicidalTurtle
Posted

I would hope DNA testing in the future wouldn't turn out like how it did in the mvie Gattaca.

eKatherine Apprentice
eKatherine
Posted

Funny, it redirected me to the front page the first time I clicked the link.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
  • Author

I thought it interesting that one of the people who underwent the stomach surgery mentioned that she could eat cabbage, but still had a hard time digesting white bread. Hello, haven't ANY of these people ever heard of celiac????????!!!!! :blink:

Ursa Major Collaborator
Ursa Major
Posted

For anybody who follows this link: It will bring you to the main site, you have to click on the left on 'Health News' to get to the article.

Well, what caught my eye is, that 'white bread is hard to digest', and another said that ice cream is giving her trouble!

Sounds to me like they have a gene causing celiac disease, which causes stomach cancer in the end. Maybe this gene is another, as yet unidentified celiac disease gene?

My mother's mother died of stomach cancer when my mother was 20. And my mother (who had all the same symptoms as me) died at the age of 66 of liver cancer. And my dad, who also had celiac disease symptoms (now that I understand I recognize them) died of liver cancer at the age of 74. Neither of them drank, a glass of wine or champagne on a special occasion, or a bottle of beer (for my dad) about once every two weeks was all they ever had.

Will I now say I have a gene for liver cancer? Not likely. But if I wouldn't have found out about celiac disease now, and went on the gluten-free diet, I would likely have met the same fate as my parents or my grandmother.

Most of my seven siblings (if not all) have digestive problems. All but one deny it is possible they have celiac disease, as they don't want to give up their bread. I am very afraid they will all end up dying of cancer sooner or later, just like our parents. That idea frightens me, but I can't force them to get tested!

jerseyangel Proficient
jerseyangel
Posted

My computer has been down for a while--broken electric circut--but I saw this earlier. I kind of thought the same thing when I read about the white bread vs cabbage! I wonder if they will check for a Celiac connection.

ravenwoodglass Mentor
ravenwoodglass
Posted
I kind of thought the same thing when I read about the white bread vs cabbage! I wonder if they will check for a Celiac connection.

Of course not. In fact I am sure the doctors would be strongly against it. If it was found that the family was actually celiac and had organs removed for nothing can you imagine the law suits.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Girl Ninja Newbie
Girl Ninja
Posted

I'm friends with one of the families that has the gene. The diet they have to follow after the stomach is removed is very restricted. No red meats, very few spices, avoid raw vegetables, nothing carbonated, avoid dairy. Whenever we had sandwiches there they were on Lavash bread. I think they believed yeast was the issue, but it's possible that gluten is just really hard on the intestines.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
  • Author
I'm friends with one of the families that has the gene. The diet they have to follow after the stomach is removed is very restricted. No red meats, very few spices, avoid raw vegetables, nothing carbonated, avoid dairy. Whenever we had sandwiches there they were on Lavash bread. I think they believed yeast was the issue, but it's possible that gluten is just really hard on the intestines.

It also said that they were started on a bland diet. White bread toast has always been the basis of a bland diet...BRAT diet, too (Bananas, rice , applesauce, and toast).

jerseyangel Proficient
jerseyangel
Posted
Of course not. In fact I am sure the doctors would be strongly against it. If it was found that the family was actually celiac and had organs removed for nothing can you imagine the law suits.

(Hitting myself on the side of the head)--Of course--I didn't think of that ;)

eleep Enthusiast
eleep
Posted

This was on the front page of the local paper this morning -- I only had time to scan it, but I'm glad someone's posted about it because my only thought was -- "Wow -- if this isn't the ultimate example of treating the symptom and not getting to the underlying cause".

Having said that, I'm not sure whether this particular cancer is related to celiac or not -- anyone with more of a medical background able to weigh in on this?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. ShariW
      - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

      In addition to gastrointestinal symptoms like diarrhea, I had gastroesophageal reflux that was becoming intolerable despite treatment with PPIs and antacids. When I went gluten-free, the GERD lessened tremendously (as did the other symptoms).
    2. klmgarland
      - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      Thank you so very much Scott. Just having someone understand my situation is so very helpful. If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    3. Scott Adams
      - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to ...
    4. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating...
    5. Scott Adams
      - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748
    ebrown
    Newest Member
    ebrown
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • klmgarland
      Help I’m cross contaminating myself,

      By klmgarland · Posted

      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      My only proof

      By Scott Adams · Posted

      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisone treatment for inflammation?

      By Scott Adams · Posted

      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      I think I am gluten intolerant

      By Scott Adams · Posted

      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.