Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is It Possible To Be Intolerant To Gluten-free Products?


aparth

Recommended Posts

aparth Newbie

Hi all,

I have had Crohn's disease for half of my life, the last 11 years. In the years since I have been diagnosed the condition has improved steadily so that I now lead a normal life. While I am unable to drink beer, coffee and milk, most other foods I can generally tolerate (if i dont overeat).

However I do occasionally get bloating, gas (burping repeatedly!), and some constipation/diarrheoa. I have recently switched to a new doctor who thinks diet may be the cause of these few nagging symptoms.

I was sent to undertake a fructose intolerance breathtest, which came out negative, despite getting obvious symptoms of diarrheoa. A dietician suggested i may therefore be intolerant to gluten and wheat products as well as fructose.

Here is my problem. During the week of breathtesting, I had to go on a special restricted wheat-free, calcium free, fructose free diet. On the third night I tried some gluten free bread - i actually loved the taste! But that night I awoke with bad diarrheoa, something which is completely rare for me (unless i had food poisoning).

I assumed it was the effect of the breathtesting (which was generally unsettling my gut throughout the week).

Yesterday, after purchasing a gluten-free cookbook I decided to give gluten free bread another shot. The last two days my gut had been feeling rather problem free. Once again, I awoke last night with unusually formed diarrheoa.

The only conclusion i can make is I'm allergic to gluten-free....because gluten-filled bread and pasta doesnt seem to make me feel ill as it does to some of you guys here.

Can anybody advise on my situation?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

Could you be intolerant of rice or corn? Most gluten free products are heavily rice and corn based.

Just a thought.

Elonwy

BRUMI1968 Collaborator

I've read lots of folks on here have trouble with tapioca, too.

aparth Newbie

that may be it, Bully4You. The second largest ingredient in the bread is tapioca flour.

I'm definitely not intolerant to rice and corn as I can eat these in fairly large quantities without trouble.

can anyone who has a problem with tapioca please share their thoughts?

AndreaB Contributor

I have a problem with beans which are in a lot of recipes and dry packet mixes.

Deej Newbie

I have problems that I think (don't know) are related to guar and xanthum gum which are often found in gluten-free baked goods. I get bloated and then suffer D. badly. I eat the baked goods only rarely. It never occurred to me it might be tapioca!

jerseyangel Proficient
that may be it, Bully4You. The second largest ingredient in the bread is tapioca flour.

I'm definitely not intolerant to rice and corn as I can eat these in fairly large quantities without trouble.

can anyone who has a problem with tapioca please share their thoughts?

Hi Aparth--I am one who is sensitive to tapioca. Before I was gluten-free, if I ate tapioca pudding (the only way I ever had it before), I would get a very dry mouth. I didn't notice any stomach reactions then, but I was sick for a good 20 years before I was diagnosed so it was not unusual for me to have stomach problems anyway. When I went gluten-free, after a few months, I was noticing a lot of my GI symptoms that had initally gone away on the diet were returning. I was eating gluten-free breads, and also using tapioca flour in my flour mix for baking. When I began reading up on the additional food intolerances that some Celiacs can develop--probably due to leaky gut--I began to experiment with my own version of a rotation diet. I found that with tapioca, I get symptoms very similar to gluten--D, nausea and stomach pain. I know there a few others here on the board who have reported being sensitive to tapioca, also.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



IrishLisa Newbie

I don't know what ingredients the US gluten free breads contain, but I do know that many of the European brands contain soy of some sort. Being intolerant to soy, gluten free bread also gives me GI problems. You might also want to consider the yeast, which is another thing that I am intolerant too. Eating gluten free bread or any other yeast containing product gives me the same GI problems that you describe.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Insomnia help

    2. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Insomnia help

    3. - hjayne19 posted a topic in Traveling with Celiac Disease
      0

      Mallorca Guide

    4. - hjayne19 replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Insomnia help

    5. - cristiana replied to cristiana's topic in Related Issues & Disorders
      2

      Healthy diet leading to terrible bloating

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,934
    • Most Online (within 30 mins)
      7,748

    Lisan4g
    Newest Member
    Lisan4g
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • hjayne19
      Hi @trents thanks so much for the insights this helps alot.    These were my metrics at celiac diagnosis. In which my diet has since changed over the past 3 months Magnesium: 0.80 mmol/L Vitamin B12: 1021 Vitamin D (25-OH): 102.8 I would say I do get tired after eating more carbs and the only thing that really helps me fall asleep with insomnia is if I eat a banana or a snack. I have a follow up appointment soon so will look into those other B vitamin levels. 
    • trents
      When you say "vitamin B" was normal? Which vitamin B are you referring to? Typically, physicians will only check for B12 deficiency because it can connect to iron deficiency via something called "pernicious anemia". But all the B vitamins work together in a synergistic fashion. That's why we recommend a high potency B-complex. And D3 is turning out to be much more important than we ever realized. In many ways, it is a "master vitamin". And in the modern world where we spend much more time indoors than our ancestors did, we often don't get enough of it, especially if we live in northern latitudes. And it's also true that "normal" levels may not be the same as optimum levels.  Ferritin is an iron storage protein. The body can rob from storage in order to maintain immediate blood levels of iron so, yes, ferritin can take longer to rebuild than hemoglobin counts. Your ferritin levels are low end of normal.
    • hjayne19
      Hi celiac community. Reaching out for some help. I am traveling to Mallorca in May for a cycling trip and would like some recommendations on gluten free safe eats and if there are things in the stores to buy. Let me know what works 
    • hjayne19
      Hi @trents Thanks for the reply. I appreciate it. I have been on an iron supplement for 4 years. (Started at Ferratin at 6) and has always sat around 20-30s. I also have been a high level athlete so I’m sure that doesn’t help. I will sometimes get readings around 50 but haven’t stopped my supplement so assuming it can be from taking it the day before.  Also get muscle twitches too which maybe is pointing to some other deficiency.    My magnesium vitamin B and D were all normal right before going gluten free but I’m also reading more about zinc and the different types of b vitamins that may affect some symptoms as well. So will have to look into that. When can iron stores expect to replenish? Does it take awhile? 
    • cristiana
      @trents - THANK YOU, that is a really helpful and interesting post. I have had fairly extreme symptoms. Being a veteran hypochondriac I've been imagining all sorts and what you say makes me think I've probably been up to my usual catastrophizing!    That said, I foresee another colonoscopy appointment if things don't settle down soon., and if I have got diverticulosis I guess that is how they will find out. I've just checked some statistics and I had no idea until I googled the condition that such a large percentage of the UK population has diverticulosis, i.e. 50 per cent by the age of 50, and that diverticulitis itself - i.e.  inflammation of the diverticular - affects 5-25 per cent of the population.  Oddly enough I knew a young woman with it and she told me years ago that it felt like there was a baby's foot wedged into her stomach at times, just like when she was expecting a baby, and this is exactly how it feels to me at times (although I realise as a man you will not be familiar with this sensation!)   I also do have an umbilical hernia which I think plays me up. On your other earlier points - I have read elsewhere that sudden intake of fibre can cause a lot of discomfort.  It reminds me of the time I swapped a chocolate bar with a muesli bar with apricots in an effort to be healthy, and there was a stone in it which broke my tooth!  No pain no gain I suppose!  And re: new intolerances, that too is very likely.   I will start keeping a food diary and my husband has today bought me some peppermint tea, hopefully that might help disperse some of the bloating! Thank you.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.