Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Often Do You Meet Other Gluten-intolerant People In Restaurants?


munchkinette

Recommended Posts

munchkinette Collaborator

This was so weird. I was visiting my friend in Albuquerque over the weekend, and we drove up to Santa Fe. We had lunch at a cute little restaurant. We were discussing the whole wheat issue while we were eating (I had a breakfast plate and corn tortillas were one of the toast choices! Yay!). Five minutes later we hear the next table discussing dessert with the waiter. Apparently one lady was also gluten intolerant. It was so weird. I don't know if they heard us or not, but they were having the same conversation we were.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

At the Starbucks on the westside of Bloomington, IN one of the ladies who works there has celiac. I've asked her lots of questions. She heard me talking to one of the cashiers one day about some of the pastries, I wasn't going to order them, I just wanted to know what was in them, so she came over and told me I couldn't have them. Other than that, I've never met someone else in a restaurant, but have been told at places with gluten-free menus that lots of people come in with gluten intolerance.

megzmc3611 Rookie

I have not met anyone in restaurants, but have at my local Whole Foods. This one particular store has a "gluten-free" aisle and everytime I am in it there will be someone else searching through the gluten-free items. Usually we will spark up a conversation about celiac,diagnosis, gluten-free diet, etc. Once I talked to a woman for 45 minutes! I thought it so funny because I normally do not strike up conversations with strangers in a grocery aisle....

I guess it is that "common bond" thing... :)

penguin Community Regular
I guess it is that "common bond" thing... :)

Yup! You know how some breeds of dogs recognize eachother as being the same breed? (I'm thinking of pugs)

We're a lot like that :P

megzmc3611 Rookie
Yup! You know how some breeds of dogs recognize eachother as being the same breed? (I'm thinking of pugs)

We're a lot like that :P

as long as we do not start sniffing eachothers' bums! ;)

jenvan Collaborator

Its happened to me a few times... Once was at Risotteria in NYC, so no surprise there! I saw a wife take picture of her husband with his gluten-free beer and breadstick. I said to my mom--"Okay, he has to be a Celiac!" I went over and talked to them for a bit, it was fun. He had celiac disease and they were visiting from Maine.

jkmunchkin Rising Star

Just about anytime I'm in Rissoteria I meet someone with Celiac, but that is no suprise.

I've definately had the encounters in Whole Foods and Mrs. Greens.

And my dad will call me every once in awhile and let me know about someone that came into his restaurant with celiac. Now we are starting a gluten-free menu so I'm sure there will be more to come.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



queenofhearts Explorer
I have not met anyone in restaurants, but have at my local Whole Foods. This one particular store has a "gluten-free" aisle and everytime I am in it there will be someone else searching through the gluten-free items. Usually we will spark up a conversation about celiac,diagnosis, gluten-free diet, etc. Once I talked to a woman for 45 minutes! I thought it so funny because I normally do not strike up conversations with strangers in a grocery aisle....

I guess it is that "common bond" thing... :)

I've had the same experience in Whole Foods. It's comforting to meet others with the same issues. I wish our local support group were more active... I'd especially love to descend on a restaurant en masse (with prior warning of course)... I think it would raise awareness, & we could sure use some raised awareness around here! Has anyone tried this?

Leah

Guest nini

I've never met anyone in a restaurant, but definitely in the grocery store... usually hovering around the gluten-free aisle! LOL! It is a "common bond" thing, I find myself talking to strangers in a way I never would have thought of before... one time I actually ended up walking this older woman around the store for an hour and pointing out gluten-free foods to her! It was almost funny... a lot of times I'll be in the co op, and the grocery manager will see me and pull me over to talk to someone who has just been dx'ed...

MySuicidalTurtle Enthusiast

While I was in Portland, Oregon a vegan restaurant said they have a woman with Celiac Disease who eats there often but I have never met them. In NYC people next to us were eating there because of of their friends has Celiacs and told him how yummie it was.

megzmc3611 Rookie
I've never met anyone in a restaurant, but definitely in the grocery store... usually hovering around the gluten-free aisle! LOL! It is a "common bond" thing, I find myself talking to strangers in a way I never would have thought of before... one time I actually ended up walking this older woman around the store for an hour and pointing out gluten-free foods to her! It was almost funny... a lot of times I'll be in the co op, and the grocery manager will see me and pull me over to talk to someone who has just been dx'ed...

I can always tell the " very newly diagnosed" by how disoriented and over-whelmed they look staring at the gluten-free filled shelves! I don't envy that stage...it took me a good two years to get the hang of it (still w/ some blunders of course)!

kaciemarie Contributor

Carla - I used to live in Bloomington, IN...I went to IU! Small world I guess. Speaking of, I have definately met people at the grocery store, but I can top it all. I met my boyfriend at work and guess what he has Celiac Disease (along with a lot of his family members)! I can't tell you how easy it is to be Gluten Free when your boyfriend is gluten-free too!

CarlaB Enthusiast
Carla - I used to live in Bloomington, IN...I went to IU! Small world I guess. Speaking of, I have definately met people at the grocery store, but I can top it all. I met my boyfriend at work and guess what he has Celiac Disease (along with a lot of his family members)! I can't tell you how easy it is to be Gluten Free when your boyfriend is gluten-free too!

I went to school there, too from 1981-1984. We lived there from 1999-2006. Great place!!

There is a restaurant in B'ton called Malibu Grill. We stopped in there right when they'd open at 5:30 on Friday night almost every week for a drink and an appetizer, so we got to know the manager. After I went gluten-free, I talked to him about it and we came up with something I could eat. Just the other day we were over in B'ton (we don't live there anymore) and stopped in for a drink. The manager came over to the table and said there had been someone else in there who had celiac and he told me how he was able to take care of the man. So, it's good when we take time to educate the right people -- it can pay off for the next celiac that comes along!

Oh, and I was over there for my daughter's freshman orientation. There was another couple there that I had known several years ago, but hadn't seen in at least 5 years. Ends up she was diagnosed with celiac 16 years ago and I had never known. Thinking back, I don't think we had ever eaten with them.

kaciemarie Contributor

Carla,

That is crazy! I was at IU from 1999-2003! I have only been gluten free for a year now and haven't been back to B-town since I have been gluten-free, but I will definately have to go to Malibu Grill when I am there. It was one of my favorite places! Is the manager's name Brian? I was friends with someone that worked there. I worked at the Outback Steakhouse off of the highway from 2000-2003...did you eat there?!!! I love Bloomington though, I miss it very much!!!

CarlaB Enthusiast
Carla,

That is crazy! I was at IU from 1999-2003! I have only been gluten free for a year now and haven't been back to B-town since I have been gluten-free, but I will definately have to go to Malibu Grill when I am there. It was one of my favorite places! Is the manager's name Brian? I was friends with someone that worked there. I worked at the Outback Steakhouse off of the highway from 2000-2003...did you eat there?!!! I love Bloomington though, I miss it very much!!!

His name might be Brian, we've always called him JB. Their solution is to grill stuff plain, so it's safe, but not necessarily great. Be sure you have them cook it on foil on the grill as their skillets are cast iron. Cheeseburger in Paradise is there now and is great, and has a gluten-free menu. It's where Chi Chi's used to be. Nick's also will make stuff special. Kate, also from B'ton, told me she eats there all the time and Raggs makes her food special for lunch. They really took care of me last time I was in town, too.

I didn't eat at Outback until recently. We used to go eat over at Kirkwood then walk around town. I practically lived at the Starbucks on that side of town though!

Girl Ninja Newbie

All the time! I met a girl who has Celiac (or is it is Celiac??) who works at McDonald's near me and A girl who works at the Seattle's Best coffee thingy inside Border's bookstore. I get people at work (Kroger) all the time who appear to be searching for something in particular on ingredient lists so I ask if they need help and they're looking for gluten-free stuff.

kabowman Explorer

I used to love Malibu Grill but haven't been there since going gluten-free - I will have to go give it a try!!!! Carla, thanks for the tip.

As to the topic - I haven't run into anyone in a restaurant but notice that servers are becoming more aware and have at least heard of gluten and some people must avoid it.

I have run into gluten intolerant/celiac disease people in the local health food store though, one lady really didn't want to chat which I thought was strange. Also, I have a friend who has a friend and we were chatting and she has a friend that has celiac disease and was trying to plan food to have her over for dinner - if you can follow all that!!

jenvan Collaborator
I can always tell the " very newly diagnosed" by how disoriented and over-whelmed they look staring at the gluten-free filled shelves! I don't envy that stage...it took me a good two years to get the hang of it (still w/ some blunders of course)!

Yeah, when I see someone staring hard at the gluten-free stuff I usually strike up a conversation :)

CarlaB Enthusiast
I used to love Malibu Grill but haven't been there since going gluten-free - I will have to go give it a try!!!! Carla, thanks for the tip.

Like I mentioned, you are going there for the atmosphere, as they are not too creative replacing sauces, etc. I'd have them use foil on the grill, not a cast iron skillet. They cook their veggies in chicken broth ... I've only assumed it's not gluten-free, but if you're in there early, you can drill them on what's in it. Maybe they could grill the veggies. Ask for JB, the manager. He said the "other celiac" who came in there got a burger with chips and salsa. They buy premade chips, but they have no dedicated fryers.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748

    Tara M
    Newest Member
    Tara M
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.