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Thanks Scott!


imsohungry

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imsohungry Collaborator

Just had to drop a quick "thank you" message to Scott! With his help, I finally discovered what was wrong, and he was able to restore access with the correct e-mail address. I appreciate his patience and helping me "research" what was going on. The answer was simple and not surprising: I'm computer ignorant! ;)

Thanks again Scott. -Julie :)


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plantime Contributor

I want to add my thanks just for having this website. I don't know how I would have managed without all of the information I have learned here.

THANK YOU!!

Ursa Major Collaborator

It can't be said often enough: Thanks a million, Scott!!!!!!!!!! For the first time since being a child I have hope of getting better, thanks to the information provided here.

KaitiUSA Enthusiast

Alot of effort is put into this site. Thank you Scott!

AndreaB Contributor

Thank you Scott!

It's great to have such a wonderful community. :P

StrongerToday Enthusiast

I have learned so much from this great group of people!! I would have been so lost without this site. THANK YOU SCOTT! :D

celiac3270 Collaborator

Thank you!!! :D


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ianm Apprentice

I find it amazing that a commercial website has become the best source for information on Celiac. Nothing else out there even comes close. Keep up the good work for we are lost without it.

jerseyangel Proficient

You said it, Ian, this is an amazing place! Don't know what I would have done without it. Thank you Scott for providing us with this forum that helps so many :)

jennyj Collaborator

I would also like to say Thank You :lol:

schuyler Apprentice

THANK YOU SCOTT

This site has given me so much information and it helped me make a smooth transition to a gluten-free diet!

Thanks a million!!!!!

Danielle

JenAnderson Rookie

Thanks Scott for giving me the opportunity to live happily!!!

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  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
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